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Dr. Says Gluten Intolerance, Is This The Same Thing As Celiac Disease?


koober1

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koober1 Newbie

This question is in regards to my 3 year old son. I finally found a dr that would run tests on him and he came back with around 30 food sensativities. On his IgG he had about 30 (one of them being gluten, scored a 3) and on his IgE he had about 5 allergies, one of them being wheat. So we put him on a gluten free/casien free diet and also cut out the other foods he had sensitivities too. He also had blood work done before the diet and his ferritin levels were 14 (low) and his iron was really high. 5 months later, since starting diet, we retested some things and his ferritin levels went up 5 points (19), iron levels in blood went down 30 points (139 still high but better). Hes' not vitamin d defiecent anymore and his glucose levels improved along with some other things.

Anyway.... is this celiac disease? My dr has never straight out called it that but from what I am reading about it and my sons symptoms (bloated stomach, always had really mushy stools before diet, purple rings under his eyes all the time, brittle hair, super skinny besides bloated stomach, stimming behaviors, very significant speech delay (didn't speak till he got on supplements and off gluten....)

any info would be great!


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seezee Explorer

You may want to follow up on the celiac with a pediatric GI specialist. They would be the ones to make an official diagnosis. Usually, the followup to a positive celiac blood panel is to one of these. I'm not sure where you live but you may want to try to see a GI specialist who is an expert in celiac. In our case, my daughter was 10 when she was diagnosed and had a number of things which her GI doctor helped with or tested for.

As to the other food allergies, are you seeing an allergist or a regular pediatrician?

Kimmik95 Rookie

In order to positively diagnose for celiac disease, you have to have the biopsy to confirm villa damage in the small intestine.

You can have a gluten sensitivity or intoloerance and a very severe one without actually having celiac disease. celiac disease is an autoimmune disease where the body attacks itself when gluten is consumed.

This question is in regards to my 3 year old son. I finally found a dr that would run tests on him and he came back with around 30 food sensativities. On his IgG he had about 30 (one of them being gluten, scored a 3) and on his IgE he had about 5 allergies, one of them being wheat. So we put him on a gluten free/casien free diet and also cut out the other foods he had sensitivities too. He also had blood work done before the diet and his ferritin levels were 14 (low) and his iron was really high. 5 months later, since starting diet, we retested some things and his ferritin levels went up 5 points (19), iron levels in blood went down 30 points (139 still high but better). Hes' not vitamin d defiecent anymore and his glucose levels improved along with some other things.

Anyway.... is this celiac disease? My dr has never straight out called it that but from what I am reading about it and my sons symptoms (bloated stomach, always had really mushy stools before diet, purple rings under his eyes all the time, brittle hair, super skinny besides bloated stomach, stimming behaviors, very significant speech delay (didn't speak till he got on supplements and off gluten....)

any info would be great!

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    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
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