Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Wish Me Luck!

Jatango

Recommended Posts

Jatango Rookie
Jatango
Posted

Hey all you Silly Yaks! :)

I'm off to get blood tested tomorrow and just need to commiserate with some other gluten sensitive people. That gluten loading the day before is TORTURE! So far today, I've had a biscuit, cruddy lipton noodles for lunch and mac and cheese for dinner. My gut isn't pleased, but I really want a clear result.

A wee bit of history, I am a 25 female, no children with a TSH of 90(!) and potential Hashimoto antibodies. My DO thinks I have the DQ2 or DQ8 HLA complex, testing will be performed for that too.

The bloating and constipation has been so bad since I started treating my thyroid that even if I come back "negative," I'm going off. I know I can feel better than this, and I really want to.

Thanks for being here!

Jess

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

You say the gluten loading day the day before the tests is awful, does that mean you have been gluten free or gluten light? If so that one day back on gluten is not likely to give positive results on any testing. A gluten challenge is usually needed for 2 to 3 months for the antibodies to present in the blood. It sounds like you know you need to gluten free no matter what the results so I hope the gluten loading doesn't make you feel too awful.

GFinDC Veteran
GFinDC
Posted

Well, I hope you have been eating gluten longer than 1 day before your testing! The usual recommendation around here is 3 months at least. Even at that, there is still a chance of a false negative, as the tests are not 100% per cent accurate.

So it would be good to do the diet for several months anyway, regardless of the test results.

Good luck on your test! :-)

Jatango Rookie
Jatango
Posted
  • Author

Well, I hope you have been eating gluten longer than 1 day before your testing! The usual recommendation around here is 3 months at least. Even at that, there is still a chance of a false negative, as the tests are not 100% per cent accurate.

So it would be good to do the diet for several months anyway, regardless of the test results.

Good luck on your test! :-)

Oh no, I am gluten-full and have been for years. I just made sure to go overboard on that last day. :) Today I am VERY gluten lite and feeling much much better. :) The vampires took NINE tubes of blood this morning. Sheesh!

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh no, I am gluten-full and have been for years. I just made sure to go overboard on that last day. :) Today I am VERY gluten lite and feeling much much better. :) The vampires took NINE tubes of blood this morning. Sheesh!

If you are going to have the biopsy done do keep on a gluten full diet until afterwards. After the biopsy is done or if you are done with testing don't go gluten lite go gluten free. Gluten light won't stop the antibodies.

Jatango Rookie
Jatango
Posted
  • Author

If you are going to have the biopsy done do keep on a gluten full diet until afterwards. After the biopsy is done or if you are done with testing don't go gluten lite go gluten free. Gluten light won't stop the antibodies.

Yeah, I just reduced the gluten today because I was feeling so cruddy. After we're done diagnosing things, I will probably go gluten free, one way or the other. I've been down this road before with an elimination diet, but my compliance as a 17 year old wasn't fantastic.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Iron loss and potential celiac.

    2. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
    3. Joseph01
      - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

      This is way past due for your post. I have Celiac and have been recovering for more than a year. Doing well. Used Essential oil to day to fry some chicken. Read the label all good. Then ate some chicken. Here comes the gluten reaction. I haven't had a gluten reaction since year. I am angry. I have been so careful with this crap and don't wan't any...
    4. ThomasA55
      - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Iron loss and potential celiac.

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      We Keep Getting Glutened With Vegetable Oil

      By Joseph01 · Posted

      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
×
×
  • Create New...