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Sores In Nose?


sodakgal

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sodakgal Newbie

Could it be that this has been an effect of Celiac? I've gotten sores in my nose for at least 10-15 years, usually a few times a year, usually when I am feeling under the weather or tired, or stressed. At one point a Dr. gave me antibiotics for it because he said it was a staff infection. That helped for a couple of years, but they have returned. I just assumed it was a cold sore and now I am wondering if it is related to gluten exposure. I'm fairly new at the Celiac thing (a few months since diagnosed) and now I am starting to connect all of the weird conditions I have had to gluten. It's really blowing my mind... I tell ya.... Anyway, I bring it up now because I have been gluten free for a couple of months, and I do have a little sore forming in my nose now. It's not huge like it usually is, but I wonder if I have been exposed to gluten within the last few days and not known it. I have been good about the diet, but I have not replaced any pots and pans, or the toaster, basically I have been pretty relaxed about CC. Wonder if it's time to get serious about this change of lifestyle.


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ravenwoodglass Mentor

I have been good about the diet, but I have not replaced any pots and pans, or the toaster, basically I have been pretty relaxed about CC. Wonder if it's time to get serious about this change of lifestyle.

Your last sentence says it all. We often become more sensitive to CC after we have healed a bit and it is something you do have to be careful to avoid.

rosetapper23 Explorer

Since you describe the sores as being like cold sores, which are caused by the herpes virus, and the skin condition associated with celiac is called Dermatitis Herpetiformis ("herpes-like"), you may very well have DH. Many of us with celiac do. If you want to ensure that you NEVER get another one of those sores again, try eliminating iodine along with gluten. Many DH sufferers have to ingest BOTH gluten and iodine to cause the DH to flare up. Before I knew I had celiac, I controlled the blisters by eliminating iodine (thought I had an allergy to iodine). Iodine can be found in iodized salt, seafood, dairy products (except organic), and asparagus. I've found that as long as iodine is avoided, accidental CC from gluten doesn't cause a DH outbreak. Maybe this will work for you, too...

sodakgal Newbie

fresh asparagus? darn, just had that tonight.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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