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Staceyshoe

Negative Test---How Long Until We Test Again?

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My 6y.o. son's celiac test was negative. He is not symptomatic, so I do trust the result. He is positive with THE genetic subtype most likely to result in celiac, and he is IGA deficient (which I understand also increases the risk that he may develop celiac). I've heard of too many people without classic symptoms who have celiac and don't want to overlook it. At this point, I'm thinking that I may have him tested again around age 16--so there is time to adjust to a new diet before he leaves home if it's positive. Does this sound like a reasonable plan? How often would you test on someone without symptoms but who is higher-than-typical risk for developing it?

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In countries that routinely screen for celiac they test around age 4 and again at puberty. Of course if he develops any issues, even with learning and mood not just GI related he should also be tested then.

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Thank you! That really helps with decision-making for the future.

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