Nervous

[Nathansmom]

My 2 year old son had the panel for celiac disease run a week ago. I called the MD office today to inquire about the results, and she had just left! Of course the nurse wouldn't give them to me. She said they are waiting for "a few more" to come back, but that she would have the doctor call me tomorrow afternoon. I'm really nervous.

I have seen that many of your kids have had massive diarrhea/vomiting, and some failure to thrive. Nate has loose, mucoid, pale stools, but not many per day and NO vomiting. He is small for his age, but weight for height is ok. What symptoms did your kids have that "clued you in?" Thanks!!

Jessica

[Guest nini]

my daughter had some behavioral issues that presented when she ate foods with gluten. She would have violent outbursts that she couldn't come out of easily. She would thrash about violently on the floor and couldn't stand to be touched and she would kick and hit and scream and it was way worse than any temper tantrum. When they would pass she would lay sobbing on the floor saying "I sorry mommy"It would just break my heart...

She had projectile vomiting from birth, GERD, explosive diarrhea, and would break out in hives all over her body. She refused to eat because eating made her tummy hurt. She was malnourished with the "famine" belly and no butt.

I don't think there was "one thing" that clued me in, more like a compilation of all of these things, PLUS the fact that I had been recently dx with Celiac myself. That clued me in more than anything.

Her blood tests were inconclusive, BUT her dr. was willing to DX her based on how well she did on the gluten-free diet. Almost instantaneous recovery.

[Guest taweavmo3]

It was a combination of things for us....I didn't really have a clue what was going on until I came to this board, and got some wonderful feedback.

It wasn't until Emmie was about 18 months old that she started declining, but it took a while for us to realize something wasn't right. She was irritable, extremely clingy, wanted to be held but not touched. After age two, her belly really started popping out, then at age 2 1/2 her arms and legs were pencil thin. She never had vomiting or diarrhea, just large bulky stools and gas. She lost two pounds from age 12months-3 years and only grew 1/4 inch. But I'm really small, so the doctors didn't think much of her lack of growth. More than anything, I would say her irritability is what tipped me off, she was never happy.

Hope you get your results today!

[JacobsMom]

We didnt really notice anything until after we took Jacob off formula....People around us noticed how he looked before we did b/c we lived with him...By the time he turned 2 he was throwing up several times a day and the diapers were horrible....His belly too looked like the kids you see in Africa and you could really count and run your fingers along every bone in his chest and back it was horrible looking...I would just cry while I gave him a bath...He was wasting away....He did NOTHING at all...I mean the daycare was worried sick b/c he would lay in a corner on a pillow that they fixed for him b/c he had NO energy....I finally changed Ped's and the new one tested his stools and told me he had C-diff...Not sure if that is how you spell it but that is what it sounds like....She thought after that was treated that he would be fine...It didnt get fine...Finally went to a GI doc on a Thursday...Monday morning he did the biopsy...Friday we knew he had Celiac......

Every child is different so the symptions your child is having may be his....We have been gluten-free since Feb....Jacob has gained 8 pounds and looks like a different child and acts like one...

Your in my prayers that you get your answers tomorrow and can get on the road to a normal.....well Sorta ~~ life...or should I say a life for your child to feel great...