Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How To Treat A "glutening"


Elfbaby

Recommended Posts

Elfbaby Apprentice

I'm just wondering. Is there any way to treat the rash once it happens?

I have been following a gluten free diet for just shy of a month now, and I was doing ok. My symptoms has gotten SOOOOOO much better during the first two weeks. But now, I have had a couple of accidents. The lastest one was two days ago. I accidentally stuck a spoonful of multigrain baby cereal in my mouth to make sure it wasnt too hot to feed the baby. I immediately realized what I had done and kicked myself for it. But now, I have blisters on my hands and arms, and rashy areas on my legs. I am so itchy that I could cry. Earlier today I took 3 benadryl to try to relieve some of the rashy symptoms, but it didnt even help a little bit. What can I do to make this better, and how long is it going to last?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Benadryl won't help at all because this is an autoimmune response.

I hope you are different than I am, but any accident results in several weeks of flaring DH.

DH Celiacs are extremely sensitive to the slightest traces of gluten. Dr. Peter Green says it can take up to 2 years for the rashes to completely resolve because the antibodies are still in your skin and they can be easily activated by gluten and/or iodine. Some articles say the antibodies can remain in your skin for up to 10 years.

You will have to be very vigilant, but accidents do happen...

Can your baby be gluten free? It would save you cross contamination.

The only thing I have found for relief is an ointment by Walgreens called Pain Relieving Ointment...it is like 20% benzocaine. It doesn't stop the reaction at all or shorten reaction time, but it does relieve the pain temporarily.

Elfbaby Apprentice

Benadryl won't help at all because this is an autoimmune response.

I hope you are different than I am, but any accident results in several weeks of flaring DH.

DH Celiacs are extremely sensitive to the slightest traces of gluten. Dr. Peter Green says it can take up to 2 years for the rashes to completely resolve because the antibodies are still in your skin and they can be easily activated by gluten and/or iodine. Some articles say the antibodies can remain in your skin for up to 10 years.

You will have to be very vigilant, but accidents do happen...

Can your baby be gluten free? It would save you cross contamination.

The only thing I have found for relief is an ointment by Walgreens called Pain Relieving Ointment...it is like 20% benzocaine. It doesn't stop the reaction at all or shorten reaction time, but it does relieve the pain temporarily.

Thank you very much for the reply. I am considering having the baby go gluten free. We currently live with my mom and her husband, and neither of them are gluten free, but I also dont have to feed them their food, so. I'm definitely thinking about it.

I will try the ointment, thats a great tip. I know that the blisters will heal faster and go away easier if I dont scratch them, but that is IMPOSSIBLE. My mom told me that she walked by my room and I was scratching in my sleep!

eatmeat4good Enthusiast

Yes, the itching is maddening.

Ice really helps to calm down the inflammation, but only temporarily.

I try to keep my sores covered with bandaids so I don't scratch at night.

Iodine is another factor in the flares if you haven't been gluten free for very long.

Shellfish, asparagus, any salty food like chips etc...can be iodized.

Use uniodized salt for a while...it will help.

We all do need iodine, but DH is activated by it, so I limited mine for 3 months and it helped a whole lot.

...that is, until I got accidentally glutened...then I have to start all over.

I checked with my Endocrinologist and he said that limiting iodine for 3 months or so would not be harmful as long as it is temporary.

Hope you feel better soon.

Good luck with the baby and keeping safe while living with gluten eaters.

It's hard, but you can do it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    2. - knitty kitty replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    3. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      11

      No red meat

    4. - yellowstone posted a topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,002
    • Most Online (within 30 mins)
      10,442

    Boikanyo William Mompati
    Newest Member
    Boikanyo William Mompati
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
×
×
  • Create New...