Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Want To Start A Family - What Should I Be Aware Of With Celiac?

OleMissLass

By OleMissLass
in Related Issues & Disorders

Recommended Posts

OleMissLass Rookie
OleMissLass
Posted

My fiance' and I would like to try to start a family once we're married in December. I am 34 and he is 32 so we don't want to wait much longer. I have celiac and have been on the gluten-free diet pretty faithfully for over a year. I also have hypothyroidism, migraines, and dermatitis which I'm fairly certain are all related to my gluten allergy.

I've read (and seen on this forum) that celiac can cause infertility, miscarriage, and other problems with pregnancy. My OBGYN doesn't seem very concerned, but she also doesn't seem to know much about celiac. What should I be aware of as we try to get pregnant? Should I try to find an OBGYN who specializes in mothers with celiac? Is there even such a thing? Also, is there anything I can do, besides sticking to the diet, to make pregnancy with celiac safer and easier?

I'd really appreciate any advice from people who have dealt with this issue.

Tara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Be sure your vitamin levels are back to normal and start taking a good gluten-free pre-natal vitamin BEFORE you try to conceive (start now if possible). Also if you have not been retested to see if your antibodies have gone down you might want to ask to have that done to make sure you are complying well with the gluten-free diet (tests will be negative if you are gluten-free). Beyond that, I reccommend the book "Taking Charge of Your Fertility" by Toni Weschler. She teaches you how to chart your cycle and know when your most fertile times are.

violentlyserene Rookie
violentlyserene
Posted

My fiance' and I would like to try to start a family once we're married in December. I am 34 and he is 32 so we don't want to wait much longer. I have celiac and have been on the gluten-free diet pretty faithfully for over a year. I also have hypothyroidism, migraines, and dermatitis which I'm fairly certain are all related to my gluten allergy.

I've read (and seen on this forum) that celiac can cause infertility, miscarriage, and other problems with pregnancy. My OBGYN doesn't seem very concerned, but she also doesn't seem to know much about celiac. What should I be aware of as we try to get pregnant? Should I try to find an OBGYN who specializes in mothers with celiac? Is there even such a thing? Also, is there anything I can do, besides sticking to the diet, to make pregnancy with celiac safer and easier?

I'd really appreciate any advice from people who have dealt with this issue.

Tara

I asked both of my doctors about this since we'd started trying before I was diagnosed and both agree there's nothing to be concerned about other than the usual need for prenatals, etc. If you have no known fertility problems, just carry on as normal. I use Rainbow Lite Prenatal minitabs since they are the most complete prenatal vitamins I could find (and are gluten-free).

lovegrov Collaborator
lovegrov
Posted

Ditto what others said. If you've been gluten-free for a year and vitamin levels are normal, you should have nothing to be aware of other than the usual things non-celiacs watch for.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    3. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442
    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...