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Coping With Celiac


glutenfreeanddiabetic

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glutenfreeanddiabetic Newbie

I find at times it is hard for me to cope with my disease. I feel that it is running my life because I have asthma, diabetes, fibromyalgia and celiac. I hate it that at times my friends think that I am faking. It hurts my feelings that I can't just not feel good. My immune system is very weak and I keep getting sick. Right now I have pyloris which is swelling of the lining of my lungs. I go a couple of weeks and get sick. My mom has a cold I get the flu. I don't know what to do. I lost my job because I'm so sick. I wonder if anyone has had to file for disability because they just can't get better?


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alicewa Contributor

I find that when this happens to me eating simple foods like rice or even just plain rice noodles can go a long way in restoring a healthy immune system.

Also, be sure and get lots of rest. You really need it for your immune system to come right. In some cultures all people eat day in and day out is rice :unsure:

GlutenDude Newbie

Tell your friends to stick it. I've seen that look too when I don't feel well for the tenth straight day and when I order so specifically when we eat out. Honestly, all you can do is control yourself...not others. I would take a few weeks and eat nothing but natural food...nothing processed. Give your insides some time to heal. Keep us posted.

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    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
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