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Enlarged Spleen.....


Canadian Karen

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Canadian Karen Community Regular

Hi Guys!

My sister just called. She is going through numerous tests. She goes this Thursday to a GI specialist and will be getting the blookwork done for celiac disease. So far the tests she has had shows she has a hiatus hernia and an enlarged spleen. I know hiatus hernia could be common in celiacs but what could cause an enlarged spleen?

Thanks!

Karen


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KaitiUSA Enthusiast

Well everything can be affected by celiac so yes the spleen can be affected. Mono which was my celiac trigger also caused my spleen to become enlarged for a while.

Guest DanceswithWolves
Well everything can be affected by celiac so yes the spleen can be affected. Mono which was my celiac trigger also caused my spleen to become enlarged for a while.

<{POST_SNAPBACK}>

So I'm wondering, if I do in fact have it (just not diagnosed officially) can a nervous breakdown or alcohol consumption over the years trigger it?

I guess I pretty much "trashed my body" in the past and now I'm paying for it. :(

jenvan Collaborator

Danceswithwolves--

I would say either one of those could be a trigger for Celiac. For some its an illness, a surgery, a pregnancy...there are many...

KaitiUSA Enthusiast
So I'm wondering, if I do in fact have it (just not diagnosed officially) can a nervous breakdown or alcohol consumption over the years trigger it?

I guess I pretty much "trashed my body" in the past and now I'm paying for it.  :(

<{POST_SNAPBACK}>

Yep, as Jen said, there are many triggers and that could have been yours. Your body just said "Enough" and snapped.

emeraldskies Rookie

It can be caused by anemia or inflammation elsewhere in the body. Did she have a biopsy and if so, was it recently? I could provide more information based on this.

Canadian Karen Community Regular

I will know a lot more after today, she goes to see my gastro today. I know he is doing the bloodwork today but I don't know whether he will automatically schedule an endo or wait until bloodwork.....

Thanks!

Karen


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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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