Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Tingling/hurting Feet And Legs


abqrock

Recommended Posts

abqrock Newbie

My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here.

Does anyone know if this could be connected to celiac disease or DH?

Tas


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

to answer your question, yes it can be related... look into Peripheral Neuropathy related to Celiac... I'm actually experiencing something very much like this at the moment. Numbness and tingling in both arms and legs and feet and hands... it's very disconcerting to say the least!

Rachel--24 Collaborator

I get tingling/numbness in my face, hands, arms and feet.

ravenwoodglass Mentor
My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here. 

Does anyone know if this could be connected to celiac disease or DH?

Tas

<{POST_SNAPBACK}>

This can definately be connected. Before diagnosis this was a great problem for me. One thing that helped was sublingual B12. You should be able to stop the B12 after he has been gluten-free for awhile and his gut has had a chance to heal. Of course ask the doctor first but there shouldn't be any contraindications for this. Make sure the b12 is sublingual that way you know it is getting into his system. Of course make sure it is gluten-free. Also about the senses this is not your imagination, my son was so skin and noise sensitive that he would only wear sweats for over 5 years and music at any level physically hurt him. My daughter and I have the same thing but not as severe. Maybe it is something that is related to our genetic difference. Good luck and thank goodness this was recognized early our families delayed diagnoses resulted in unresolvable problems.

julie5914 Contributor

I'm surprised no one has mentioned Raynaud's yet. I was recently diagnosed. It is also autoimmune and is tied to the same gene as Celiac. It is also related to lupus and other rheumatic diseases. Basically, the immune system overreacts to changes in temperature or emotional upset and sends all the blood away from the extremeties and towards the internal organs as a survival reflux.

My doctor simply put me on calcium channel blockers to relax my blood vessels and tame the reaction. It doesn't completely resolve symptoms, but it helps. I am also being tested for lupus because of the strong connection.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...