Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New To Discussion Board


maya

Recommended Posts

maya Newbie

My husband and I first heard of celiac disease on Monday and yesterday we got our confirmation (from a blood test) that our daughter has celiac disease. Actually, I am grateful to actually have an explanation for why our daughter is so tiny and not growing. I am quite overwhelmed with how to cook for my family now. Does anyone know of a good cookbook or website with recipes? Also, is there a way of telling if food has gluten by reading the ingredients and package labels? I would appreciate any information you can pass along.

Maya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

You need to read labels every time, without fail. If you see wheat, barley, or rye, do not give it to her. Anything that says "wheat allergens" is a no-no. Of course, you could always just give her meat, veggies, and fruit, with no processed foods or grains. I like Celiac.com for my information, and the Gluten Free Mall for foods. Just do not forget to ALWAYS read the label, as ingredients change. And come back with questions, updates, or just to talk!

Guest jhmom

HI Maya, welcome to the board :D

I know it may seem very overwhelming right now but I promise it will get better :)

Here are some links that I hope are helpful to you and your daughter.

Open Original Shared Link

Open Original Shared Link

Safe and forbidden Food & ingredient list

zippyten Newbie

Hi Maya, and welcome.

I am pretty new to this also but am getting the hang of cooking for my family without gluten. Actually, I think the breakfast-lunch meal is harder to figure out, but dinners have been pretty good (actually, my husband says we've never eaten better!) and both my daughters, who are big pasta eaters, aren't missing it too much. You can get a couple of decent regular cookbooks that have good recipes that don't feature a lot of additives, breadcrumbs, flour, or pasta . Here are 4 meals I made last week, and no one even noticed they were "gluten-free," including the other family we had over.

Pot roast with gravy (I just used cornstarch instead of flour to thicken and some red wine), mashed potatoes, and salad.

Chicken cutlets with cornflake crumb coating (use organic cornflakes from a health food store, not a commercial brand like Kellogg's, which uses gluten ingredients, and always check the label -- I just put them in a large baggie and ground them up with a rolling pin, then dipped the cutlets in egg and then crumbs), sweet potatoes, spinach salad with tomatoes and mushrooms.

Grilled pork chops with vinegar glaze, twice-baked potatoes, green beans with lemon juice.

Roast chicken with garlic and rosemary, rice cooked in gluten-free chicken broth, stir-fried zucchini and tomatoes.

If your daughter is young, some of this food may not appeal to her, but by experimenting you'll find lots of things she'll like, and you can cook things more plainly as well.

Also, there are two really good gluten-free breads that you can order through www.kinnikinnick.com -- I was very surprised and pleased to find that they are a decent substitute (I just don't eat them that often because they're expensive). They have an excellent pancake and waffle mix as well.

Two other good sites for products are www.gluten free.com and www.glutenfreemall.com.

You can get some gluten-free cookbooks by Bette Hagman and I think even Amazon and Barnes & Noble carry them now. Keep reading the messages posted on this site, they've been very helpful to me. The beginning is hard, but you'll figure it out and your daughter will recover, which is the most important thing.

Good luck.

Ellen

DLayman Apprentice

A book you might find helpful is Kids with celiac disease by Dana Korn you should be able to find it at Borders

There are several gluten free foods out there.. cereals and such most health food stores carry them, and alot of regular supermarket stores as well. Our local Acme just started carrying Amy's gluten free pizza!!

So consult with the manager of you local grocery store on that.

Here is a link to a list of gluten free foods found in regular markets.. but as always consult with that safe/forbidden ingrediant list..

Open Original Shared Link

A note Kellogs Corn Pops are no longer gluten free they started adding wheat in them in January.(they might be on that list)

Hope this helps!

Denise

maya Newbie

Thank you so much for all the replies. It's nice to know that I am not alone in this! I think I am starting to get used to all this, but I am so nervous all the time about what to feed Kayla, what will we do when she goes to daycare, etc.

A couple questions I still have are:

1. Do you buy the $5 bread or do you bake bread yourselves?

2. How diligent do I have to be about contamination with wheat?

Heather Newbie

For those of you in Michigan I just found that Meijers carries BOB Mill gluten-free Bread mix. And it was a lot cheaper then at the health food store. I do know my sons doctor was insistent that I feed my son from brand new jars of everything from butter to jelly and anything in between to avoid any wheat contamination. I am also new to this whole diet but after a few tears in the middle of the grocery store I think I can do this. By the was does anyone know about red 40 and weather those with celiac can have it the reason I am asking is Trix cereal has no wheat and no gluten in it.

Thanks

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest aramgard

The big problem with most cereals from the large companies, is not necessarily gluten, but cross contamination from their manufacturing proceedures. Many times they do not clean the belts and other equipment between batches, so you have major contamination. Personally I really like Corn Crunch-Ems and Rice Crunch-Ems with a little sliced fruit and I've never had a problem with them. Shirley

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - glucel replied to glucel's topic in Super Sensitive People
      16

      iron digestibility

    2. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    3. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

    4. - knitty kitty replied to Aileen Cregan's topic in Related Issues & Disorders
      5

      Coeliac And Cardio Vascular Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
    • gregoryC
×
×
  • Create New...