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How Long Does It Take For Skin To Clear Up?

carrielynn

By carrielynn
in Dermatitis Herpetiformis

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VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I have had DH since I was diagnosed (1997).

It is nowhere near as bad as the first 2 years, however, it still comes up -- especially if I do not take Dapsone every other day or so....

Problem is, I eat out 2-5 times a week, so it is going to happen no matter how careful I am...

For occasions at friends houses, I always have aluminum foil in the car (for BBQ purposes) and I always bring chips that I can have/like.

The DH will eventually clear up (especially with the assistance of Dapsone), but it takes time -- his body will take a while to clear up the "histamine" reaction it has had for the past several years -- Rome wasn't built in a day.

I also used Fluoconide (a steroid cream when I was first diagnosed) -- it helped the bad areas (joints, eyes, beltline, etc)

Things will improve as long as he is is eating well (no gluten, lots of veggies, lots of fruit)....

Oh, and sometimes execise and sunlight make the DH worse -- I don't know why..

  • 12 years later...
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Glk Newbie
Glk
Posted

Have you had your son tested for other allergies? I just found out I am allergic not only to gluten but also corn, soy and peanut, possibly more things. We did just a basic food allergy panel for starters. These  4 ingredients are in nearly everything.  It has only been 1 week since  my  diagnosis. Hope is getting better soon. And yes the sun or any hear aggravates the rash.

  • 3 weeks later...
disgruntledceliac Explorer
disgruntledceliac
Posted

If you've ruled out cross-contamination, I would look into the Fasano diet. Studies indicate 3-6 months on this diet will give your stomach the chance to heal properly, after which most people can go on to a more standard gluten free diet.

The Fasano diet means avoiding processed foods, as well as other triggers. It definitely limits your options. But after 10 years of celiac/DH, I was still having major problems. I took Dapsone, but I was still getting DH. It was only after I started the Fasano diet that my DH went away. My mood has improved, and my energy has increased. I'm two months in, and I don't care that it is limiting ... I just look and feel better.

It may not be the solution for you, but if you haven't already, I encourage you to read up on it.

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      Hypoglycemia, ketones in urine and weight lost. I need advice.

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    • Aretaeus Cappadocia
      Hypoglycemia, ketones in urine and weight lost. I need advice.

      By Aretaeus Cappadocia · Posted

      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      Hypoglycemia, ketones in urine and weight lost. I need advice.

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