Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Lupus Or Mctd Or Microscopic Colitis

isasmommy

By isasmommy
in Related Issues & Disorders

Recommended Posts

isasmommy Newbie
isasmommy
Posted

Hello everyone, I'm new to the forum and want some input of people that have gone through the testing previously.

I was diagnosed with Celiac two years ago and have been following the gluten-free diet. Over the last year, symptoms have gotten worse: more cramping, extreme fatigue, joint pain, and had been hospitalized with inflamed colon. Had subsequent endoscope/colonoscopy again and had found inflammation in my colon suggestive of colitis. They diagnosed me with microscopic colitis on top of the celiac. So I have been on Entocort for 2 weeks. I had also been referred to Rheumatology after a positive ANA (1:320) because of the joint pain and fatigue that did not seem to go away even when the vitamin D level in my serum increased (initially 10 then went to 30's).

I recently got some test results back for ENA (positive for dsDNA ab, anti-RNP ab, anti-SSA (Ro) ab, anti-cardiolipin ab (both IgG + IgM). The nurse called and said they wanted to schedule an appointment to discuss the test because the doctor believes I have another autoimmune condition and wants to sit down and talk to me. This got me thinking and worried that they think it is Lupus. I have a family history on both sides of autoimmune (crohn's, ulcerative colitis, hypothyroid, RA, lupus--> no body has celiac except me). I am thinking that they will say Lupus and want to get some feedback on others that have gone through this also.

I read the previous post asking about lupus, and read the comments regarding letting my body wait a while after the celiac diagnosis. However, I have been gluten-free for 2 years and now the symptoms are getting worse, I have never felt so tired in my life without wanting to do anything. I used to be a really positive thinker and with lots of energy and now I have turned into a person that is the person that is too tired to do anything and unmotivated. I know the ANA can be false positive for other autoimmune or it can be just normal in people but I tested positive for a bunch of the other antibodies associated with Lupus.

I have looked up all these tests and know what they are testing. I guess what I am looking for is some feedback from anyone that has both Lupus + celiac or the other two (MCTD, microscopic colitis). How did they come to the diagnosis and did it get diagnosed after your celiac?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    3. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Zaalouk moroccan eggplant salad

      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped...
    5. Scott Adams
      0

      Celiac.com Video News: April 2026

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,058
    • Most Online (within 30 mins)
      10,442
    Barbjwils
    Newest Member
    Barbjwils
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Terrible Neurological Symptoms

      By trents · Posted

      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the hell. I've never seen a direct trigger such as this before that I can recall. The pain was the usual type I get from this problem - I suspect somehow the head movement was interrupting descending inhibition processes, causing the pain to leak through somehow.
    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped baby spinach or celery leaves to add a dash of green color to this red dish. Best eaten in first couple days because flavor tends to fade. Leftovers are still good, but not as vibrant. Ingredients 2 medium eggplants, partially peeled and cut into cubes (original recipe says 1 in, but I prefer 1/2 to 3/4 in) 2 tomatoes, peeled and crushed 4 garlic cloves, finely chopped or minced 1 tablespoon fresh flat-leaf parsley, chopped 1 tablespoon fresh cilantro, chopped ¼ cup extra virgin olive oil 2 tablespoons spicy harissa (I use Mina brand) 1 teaspoon cumin 1 teaspoon paprika ½ teaspoon black pepper 1 tablespoon apple cider vinegar or lemon juice 1 tablespoon tomato paste (optional) Salt to taste Preparation     • Heat olive oil in skillet or pot over medium heat. Add all ingredients and cook for 10 minutes, stirring occasionally. Cover and cook on low heat for an additional 20 minutes, stirring occasionally.       • Serve warm or cold as a side or with bread for dipping. Enjoy! Original recipe is here, if you want to see photos: mina.co/blogs/recipes/zaalouk-moroccan-eggplant-salad  
    • xxnonamexx
      1 Year Elimination Diet journey

      By xxnonamexx · Posted

      I checked consumer labs that I'm a member of they independently check products for safely and claims the wolfs was rated great and bobs redmill buckwheat cereal. Ultra low gotten no dangerous levels of arsenic heavy metals, mold, yeast etc. plus they mention to refrigerate. I wonder if the raw buckwheat they rinse bc it's not toasted like kasha. Toasted removes the grassy taste I have to try the one you mentioned. I also bought Qia which is a quinoa mixed got great reviews. 
×
×
  • Create New...