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JaneWhoLovesRain

Celiac Gene Test - One Step Closer

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I asked my PCP if he could test me for the gene last month. He did it without any questions. If I had known it was going to be that easy I would have asked him months ago. This morning I found out I tested positive for one of the celiac genes. He told me (through his secretary) if I'm not having any GI symptoms there is no need to see a GI doctor. He apparentely has not a clue my GI symptoms are minimal but skin and balance is where it all shows up on me.

Needless to say, I was overjoyed to hear the news (am I crazy to say that?). While it isn't a defiinite diagnosis I am one step closer. The problem with me is that I am the kind that DOES need a DEFINITE diagnosis for various reasons and that is going to be pretty hard to get without ingesting lots of gluten which I am not willing to do.

I guess my chances that I actually do have celiac are 1 in 30 which still makes it a long shot but I plan on making an appt with the celiac specialist and I'll see what he has to say about all of this. At least now I feel I have something concrete to give to him.

Jane

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30% of the population (U.S?) has at least one gene. So while its entirely possible that you do not have it, it is also very possible you may develop it.

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Statistically wise it's a long shot that I have it but considering the rash I've had for almost a year (it's 95% gone after a flare up when I experimented with gluten in Sept/Oct) as well as other odd assorted problems throughout the years I think it is very possible. If it wasn't for the fear that a lot of gluten may posssibly give me vertigo I would do the gluten challenge in a heartbeat.

I have an appt in Jan with the celiac specialist. My plan is to eat a bit of gluten (a cookie or two a week) for about a month before the appt and maybe it will give me enough of a rash for a biopsy or at least for him to say it sure likes like dh to me. We'll see how it goes . . . .

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