Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Reflux Is Killing Me!


jesimae

Recommended Posts

Opa3 Apprentice

To date, chocolate, spices, tomato sauce, caffiene, salt (something new!), and fatty foods were mentioned. We should also avoid citrus fruits, mint, vinegar and alcohol.

To date, Rx's lansoprazol, carafate and omeprazole (aka: Prilosec) were mentioned.

My input to this very interesting topic follows;

I was Dx'ed with AR/GERD in Sept, 2007 having indulged in foods as listed. I started out with Aciphex and later used Famotidine off and on for 5 years.

In Dec, 2012, I had an endoscopy which resulted in mildly active chronic peptic duodenitis with villous abnormality and minimal squamous features of reflux. Negitive for H. pylori. My GI Doc Rx'ed 40 mg omeprazole, 30 minutes before breakfast. Based on my history with AR, one/day for the REST OF MY LIFE was recommended. It's safe, he said.

The pathology report also stated "early feature of fundic gland polyp noted." Taking PPI's (ie: omeprazole @ 20mg) long term(1,2-5 years) therapy develops these stomach polyps. Ref: Open Original Shared Link/diseases/stomach_fundicglandpolyp, page 6 (of 18). I tried to link the address but didn't work.?????

I read the Patient Information Leaflet from Mylan Pharma (April, 2012) that came with my omeprazole Rx. The common side efects are headaches, abdominal pain, nausea, vomiting, gas, respiratory system events ( not explained) and fever. Also mentioned ..... may have an increased risk of fractures of the hips, wrist or spine. PPI's can inhibit the absorption of calcium, Vit. B12 and iron. Low magnesium can occur with PPI's within 3 months to 1 year. PPI's can destroy good gut bacteria causing C.Diff. Need to take probiotics with treatment.

The leaflet also states Tell Your Doctor about all the medicines you take. It lists 19. Among them is "products that contain IRON."

Omeprazole treatment(Rx or OTC) should be 4-8 weeks only. To date, my symptoms are stomach pain and gas. I will tolerate them for 8-12 weeks and stop. I will make a greater effort to avoid AR/GERD foods. Now that is the SAFEST thing we can do for ourselves. I'm 68 and my mom is 90. If God grants me another 22 years on a lifetime of PPI's, I'll die of stomach cancer.

Truely a profound title," Reflux Is Killing Me." OTC users beware.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CommonTater Contributor

Nexium is not meant to be a long term solution. It can do more harm then good.

Doesn't surprise me that those foods would set ya off. Those are ones that are generally connected to it.

Have you tried removing all reflux meds? I ask because when i finally went "cold turky" on them (do not suggest this) that it finally started to die down for me (over a course of a few months). Now, I still on occasion get it, but its nothing that a really starchy food and a nice big glass of water can't fix. Sometimes it goes beyond that, but its rare.

Yes i did stop for a time but the ref;ux was so bad i couldn't stand it. You can't take enough Tums in 24 hours to help. After taking 2 it would return within an hour and burn all the way into my throat.

shadowicewolf Proficient

Yes i did stop for a time but the ref;ux was so bad i couldn't stand it. You can't take enough Tums in 24 hours to help. After taking 2 it would return within an hour and burn all the way into my throat.

Oh i know the feeling, trust me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...