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irish11

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About irish11

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  1. forgot to add, they refill up the minute I get rid of them, in the same spot. is that typical?
  2. I never see this as a symptom from others and wonder about it. Does anyone have balls of fluid under their skin that they can roll around? And are pushing their way out, thus forming the blister? I have burn and itch and balls that then squish right out, but they won't go back the other...
  3. Is it typical to have it run down both sides of neck and both sides of spine , down middle crack of scalp and on both eyebrows? Does oatmeal stuff come out? my doc thinks its pemphigoid...i still dont. I get full of liquid and i can move the liquid balls under my skin in the forehead or back...
  4. wow, thats interesting. I have a lot of cheese and chocolate, crud. What else is high histamine? besides milk products.......
  5. Does anyone know if cellcept (immunosuppressants) aggravate DH or help it? I think I should stop them right now if they don't do anything. Maybe go back on pred for awhile (which I had weaned down to 5mg but im in too much pain and itch right now) cant get in to see my unfavorite...
  6. Thank you for your response:) Its been pure H for me these past few years, and I get angry at all the sideways avenues they have had me down. If they would just LISTEN to what you are saying as far as your symptoms throughout the day (not your 5 minute apt), then maybe with an open mind they can...
  7. Hi there all. I was a poster here about year and a half ago I think. And you will not believe my odyssey. I am sick to my stomach with what I've been through, but I KNOW its DH now. I know for sure, with no positive test and nothing I can do about that. I remember squirmingitch...
  8. any good dh docs in california? a recommend please
  9. Omigosh Laura Z. What you described , describes ME perfectly this past year. Perfect description of the scalp. That has been my biggest problem. And it increases late afternoon and night. I couldnt get docs to understand that a 9 am appt would not produce that for them. I have been through...