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NightSky

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NightSky last won the day on September 26 2016

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  1. Ok thank you. It's Mutaflor, manufactured in Germany
  2. Hi, Can any supersensitives confirm whether Maltodextrin has caused them problems. J have been on a super strict non processed diet for several years but my doctor has prescribed a medication that contains Maltodextrin. It may be corn derived but I have been grain free for years so very wary. Many thanks,
  3. Hello, I have started Low Dose Immunotherapy. Firstly this is just to support my existing limited diet, to avoid me becoming sensitive to what I am currently eating. They have helped me stop reacting to B vitamin supplements that previously caused problems. In a couple of months I can start LDI in order to reintroduce some foods. As stated previously, I will never again eat gluten but I would like to eat foods like rice so this should help. I feel better since I started it and I must be looking a lot younger as I keep getting asked for ID despite being in my late 30s.
  4. Hello, Yes I have no plans to eat gluten ever again! I just want to eat things like Humous but can't because I get gluten-like reactions from cross contamination and all grains. I found out from genetic testing that I don't have celiac disease. I was concerned that it could be refractory, with all the health issues attached to that so that's a relief. As I'm not celiac, I don't know if Low Dose Immunotherapy is as relevant for you healthy squirrel. I'll report back though. I won't start for at least another month. Best wishes,
  5. Hi, I am going to start Low Dose Immunotherapy soon and plan to include wheat as one of the things I'm treated for. Has anyone tried this? I am not diagnosed as I took gluten out of my diet years ago and I have been super sensitive for the last two years with multiple food and chemical sensitivities. My hope is that LDI will reduce my sensitivity to gluten so that I can eat foods such as animal products reared on gluten (eggs etc) and also rice which has a small but significant risk of tiny trace elements of gluten cross contamination. I have been on the Fasano Cross Contaminati
  6. Hi, I was a bit delayed replying to this as I have been battling airborne gluten of all things! (The building I live in has had the entire front removed and re-plastered.) I live on the ground floor so every time I opened my door, a gust of wind blew plaster dust in to my house and particularly living room. I have had to sleep in my daughter's room, eat dinner standing in the kitchen and on two occasions I had to escape and stay elsewhere. I'm pleased to say though that I bounced back from the reactions waaaay better than I did before I started avoiding all sources of cross contamination.
  7. This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bi
  8. Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. If I ever get glutened by something then I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I can hear in your tone this tired, fed up tone that I recognise so well from when I get glutened. I know what it's like to dream of living in a far away gluten free bubble. I felt like that but after a couple of months (which were a hard a
  9. Hi, I feel your pain. Sorry you've been going through it. Interestingly, my sensitivity went up when I was massively sleep deprived looking after my baby. Anything that stresses your body, stresses your immune system. Good work with the handwashing by the way - definitely a winner when sharing a kitchen with gluten-eaters. Lots of good suggestions from people. I would also like to say that for me, I needed to not share an oven with people who ate gluten. Loose flour in the kitchen is a no. I know some people have recommended vitamins. I'm going to be controversial though and say
  10. Oh and plaster dust was a problem for me.
  11. Oh I worried about that too It'll be ok though. It's just a question of working it out x
  12. Hi, Sorry to hear you have been getting these symptoms. I too had symptoms despite my strict diet. I agree with the above. First port of call Eating out - I advise not doing this Sharing a kitchen with people who eat gluten - I advise not doing this Eating processed foods - if you are very sensitive then this could be problem Eating grains and other foods that are often culprits for cross contamination - I advise not doing this If you have are avoiding the above and have cut out oats then, yes I believe airborne could be worth considering. I would avoid farmlan
  13. This is the diet I have been on! It got rid of the horrendous brain fog. I do not eat anything processed. I cook everything from scratch and have a gluten-free home. My health has improved ten fold and I had the diet assessed by a medical professional and it's nutritionally complete. The research I found suggests there is a range of reactivity with some reacting to smaller amounts of gluten than others so a grain-free diet in particular can benefit some who are still symptomatic on a standard gluten free diet. It was an adjustment to begin with but so happy I stuck with it.
  14. With all due respect, Gemini, AristotlesCat is not "the vast majority of celiacs", he/she is a specific person who has posted on the forum because a doctor has advised that their celiac disease is not under control. Repeating the same old information again and again about the standard gluten free diet, being strict etc etc isn't going to help every single person you encounter on the forum. Everyone has a different level of experience with gluten, health and diagnositic status. Finally, the Fasano diet does not strip everything down to basic nutrition. I have been on it for six months and
  15. With all due respect, Gemini, AristotlesCat is not "the vast majority of celiacs", he is a specific person who has posted on the forum Hi AristotlesCat, I'm sorry about some of the responses you have had here. I felt pretty annoyed on your behalf that this is still happening on the forum. I also posted a while back about my symptoms that were not under control despite being a savvy, long-time strict adherer to the diet and I experienced a similar situation on here. I received an apology for it and an assurance that this does not reflect the what the forum is about. Please
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