Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Brain Fog Recovery.


jpt2014

Recommended Posts

Estes Contributor
On 4/21/2014 at 9:12 AM, jpt2014 said:

Just thought I'd update for anyone else searching on this topic who may see this post.

 

In my 8th month gluten-free and enjoying the continued settled stomach, will stick with it.

 

Still have brain fog and phlegm, but still hopeful it will lift in time.

 

Seen head and ENT doctors, had all manner of head scans and blood tests. Nothing abnormal found.

 

For the past 7 days I've tried an elimination diet, just veg (not potatos, tomato), fruit (not citrus), rice, sea salt and oil.

It is very boring.

Felt worse for the 2nd, 3rd and 4th day, just back to normal fog/phlegm levels now.

I'm sticking with it to see what happens.

The fog came on slowly so I expect it'll be slow to go.

 

Good luck to anyone else who's having issues, especially the above people who posted.

I say cut the rice.  Seeet potatoes are ok.  Look at the AIP food lists.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Peaceflower Apprentice
3 hours ago, Estes said:

I say cut the rice.  Seeet potatoes are ok.  Look at the AIP food lists.

Rice can have a similar effect to gluten on your brain, with the gluten like starch.  Sweet potato is a complex food like potatoes so although I don't strictly rule it out, some people would still have a problem with it... nothing to do with the AIP food list.

NightSky Explorer

This is the diet I have been on! It got rid of the horrendous brain fog. I do not eat anything processed. I cook everything from scratch and have a gluten-free home. My health has improved ten fold and I had the diet assessed by a medical professional and it's nutritionally complete. The research I found suggests there is a range of reactivity with some reacting to smaller amounts of gluten than others so a grain-free diet in particular can benefit some who are still symptomatic on a standard gluten free diet. It was an adjustment to begin with but so happy I stuck with it.

Scuff Apprentice

Perhaps try a whole foods elimination diet? I felt amazing after 8 wks on Whole30. Brain fog is back now, though, as I'm back on gluten for testing. 

  • 4 years later...
Margarita Apprentice
On 10/9/2013 at 4:19 AM, greenbeanie said:

Welcome!

 

My brain fog took a good three months to improve. My long-standing diarrhea, night sweats, and insomnia improved within days of going gluten-free, but impaired memory and coordination difficulties actually seemed to get slightly worse before they got better. Then I suddenly realized one day that I hadn't walked into any door frames or forgotten what I was doing in quite a while. It was great!

 

I have celiac in the family but no clear diagnosis myself, so I can't say definitively that my neurological problems were due to gluten. However, I was hospitalized for ataxia in the past, and doctors never found an explanation then. All of my previous memory and balance problems are slowly but steadily improving now, after almost four months gluten free. I have been completely strict, with a gluten-free household (celiac daughter), no restaurant food except occasional Chipotle salads, and almost everything cooked from scratch at home. I definitely do not feel like my brain fog is gone or my memory is normal, but it's improved enough that I can carry on a normal conversation without forgetting what I was saying in the middle (unlike before). The neurological improvements seem to parallel improvements in rashes I've had for 30 years - that is to say, much slower than improvements in the digestive symptoms, but more or less steady improvements at this point.

 

My advice is to stick with it for at least a few months, even if you see no obvious improvement in the brain fog at first. Hopefully the brain fog will lift soon. Good luck!

I find all your comments to be informative, relatable and encouraging. Right now I'm in a bad place with brain fog, ataxia, aches, and all that jazz and even though I've been gluten free I still get reactions and I feel I'm not getting much better. Reading your comments gives me some hope.

1desperateladysaved Proficient

Allergies were a big part of brain fog for me.  Now I eat to cater to them based on what Teri Cochrane nutritionist in Reston, Virginia has recommended.  IF you have a bunch of phlegm; that would make me think you may have allergies as well.  You might read Teri Cochrane's Wildetarian cookbook or take her online quiz to see if you have problems with certain families of foods.  (sulfur, fats, proteins)  Teri called this list the three biggies and I had to cope with all of them!  I haven't been on much, but was called in when someone posted on this thread.

Another suggestion that I have is to look up Draining lymph on YouTube.  Lymphatics for Life Dry Brushing Made Easy.  First I pump near my neck and then I feel movement in my throat.  As I brush my head, ears and neck I feel lymph draining through my throat.  I never knew I had a lymph system but when I started working on it I feel better and better.  Lymph system is pretty much the garbage disposal of the body and living with garbage isn't good!

 

Dee

Margarita Apprentice
33 minutes ago, 1desperateladysaved said:

Allergies were a big part of brain fog for me.  Now I eat to cater to them based on what Teri Cochrane nutritionist in Reston, Virginia has recommended.  IF you have a bunch of phlegm; that would make me think you may have allergies as well.  You might read Teri Cochrane's Wildetarian cookbook or take her online quiz to see if you have problems with certain families of foods.  (sulfur, fats, proteins)  Teri called this list the three biggies and I had to cope with all of them!  I haven't been on much, but was called in when someone posted on this thread.

Another suggestion that I have is to look up Draining lymph on YouTube.  Lymphatics for Life Dry Brushing Made Easy.  First I pump near my neck and then I feel movement in my throat.  As I brush my head, ears and neck I feel lymph draining through my throat.  I never knew I had a lymph system but when I started working on it I feel better and better.  Lymph system is pretty much the garbage disposal of the body and living with garbage isn't good!

 

Dee

Me clearing the phlegm in my throat casually reading your comment like O-0


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 8 months later...
TrishaRabbit Newbie
On 10/8/2013 at 3:11 PM, jpt2014 said:

Hi all,

Does anyone suffer with brain fog?

If so how long did it take to go after you ceased eating gluten?

 

I have had brain fog for a long time now, pretty much solid for the last 3 years.

I am desperate to get rid of it.

I've tried all sorts to shift it and recently read about the links to gluten intolerence.

 

For 5 weeks so far I have been gluten free.

After 2 days my unpredictable stomach issues (gas, bloating, loose output etc) which I thought were just the way I am have cleared up completely and I now have a near perfect stomach for the first time I can remember.

The change here has been incredible and it's great but it is the fog I am desperate to clear.

 

After 5 weeks I have seen no change at all in my levels of brain fog.

Has anyone had any experience of this or can offer any advice.

Thanks all,

SD

 

 

Since it is winter time i find that low vitamin D levels affect my brain fog too...try a good multivitamin or D3 supplement and drink enough water. 

trents Grand Master

Hi, Trisha.

Just wanted to make you aware you are responding to a post that was made in 2013. I doubt if the OP is actively following this thread.

Ucat Apprentice

Sounds like you may have to try a very strict clean diet to make sure the brain fog goes away and then add a few foods at a time to see what brings it back... My brain only ever felt normal on a raw food diet and a raw juice fast; but it also felt better (not as good) on a strict diet of fresh fruit, fish, raw vegetables, some nuts and seeds, eggs and tofu.

You may have to look at the bigger picture too: If you have a lot of stress in your life, environmental allergens, not enough fresh air/ daylight/ exercise/ downtime, etc. - they all may play a role. You may have a 'movement deficiency'! Ferritin levels (deficiency in iron storage) also may be an issue, etc. Do you have enough relaxed times/ laughter in your life, etc. Think back to any times when you didn't feel brain fog and what was different then (just being younger doesn't count as many health issues (incl. celiac gene) can get triggered at certain age).

I can do many things to make me feel better, and the more I do (from the list of things that work) the better I feel. But, the only thing that made a huge difference to how my brain felt was the raw food diet and/or the raw juice fasts. Worth a try, just to see if you can feel better. But even then you have to be careful not to include processed foods like agave syrup, or raw dairy, foods including gluten, etc. 

I'm just suggesting this extreme option so that you can feel better, narrow down the list of culprits, and then you can add foods in and see how they affect you.

1desperateladysaved Proficient

Not sure if anyone mentioned this, but I get sinus pressure in my forhead (with viruses) and that does return me to the fog.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    2. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - knitty kitty replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Skin issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,044
    • Most Online (within 30 mins)
      10,442

    Cayla
    Newest Member
    Cayla
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
    • knitty kitty
      @Jmartes71, Been here.  It's okay.  You're not imagining things, but there's no bugs or parasites in your skin.  The cats are not infecting you with anything.  That's a hyperkeratotic plug that builds up in a hair follicle which does go deep and is attached by the hair sheath that looks stringy.  It's a type of thing seen commonly in Dermatitis Herpetiformis.   Niacin B 3, in the form Nicotinic Acid (active form that causes flushing) or in the form Niacinamide will help immensely with clearing this up.  Take 100 mg three times a day, and Tryptophan (another form of Niacin) to help you sleep and heal your intestines at night.   Kidney stones can result when the body doesn't have sufficient Thiamine B 1.   Are you taking a B Complex supplement?  The eight B vitamins are water soluble.  Many people with Celiac Disease benefit by taking a B Complex to boost absorption.   The cloves are great because they can reduce inflammation, but your body needs the Bs and extra Niacinamide as well.  Benfotiamine, a form of Thiamine B 1, is also needed in higher doses to heal the intestines.  If you get your intestines calmed down, your skin will calm down, too.  Benfotiamine has anticancer potential in higher doses. Rapid resolution of delusional parasitosis in pellagra with niacin augmentation therapy https://pubmed.ncbi.nlm.nih.gov/19061687/ Tryptophan metabolism: From physiological functions to key roles and therapeutic targets in cancer (Review) https://pmc.ncbi.nlm.nih.gov/articles/PMC12139378/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
×
×
  • Create New...