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trents

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Everything posted by trents

  1. trents
    I agree with Mamma Gooses' advice and I would also ask you if when you do consume gluten are you symptomatic? If you are then it will be easier for you to tell if food items produced on equipment that also is used to process wheat items is giving you a Celiac reaction. If not, well, you are just guessing.
  2. trents
    Good point in distinguishing between precision and accuracy. The ELISA testing results should not be looked at as definitive with regard to symptoms you actually experience. Not only is there not a particularly good correlation between the lab results and what you feel and experience when eating the foods the testing identifies as allergens or intolerance...
  3. trents

    Happy birthday and may God bless you today!

  4. trents
    I wonder if you don't have some kind of yeast or other micro biologic infection in your bowel.
  5. trents
    Rolling, I recently had an ELISA food allergy panel done. All my research indicates they aren't very reliable but "milk' was one that turned up strong. Unfortunately, "milk" wasn't broken down into its various components that, each one, can cause problems. Where can you get casein intlolerance done? Is it a blood test? I had this test done to try and run...
  6. trents
    Thanks, GFinDC, for that old string. I am contemplating eliminating as much soy and dairy from my diet as I reasonably can. One thing that I can't figure out is with all this inflammation still present, why don't I have any pain or discomfort? I fully realize that most celiacs don't exhibit the classic symptoms of GI distress but you'd thing that even if...
  7. trents
    Thanks for your encouragement, JodiC. I ran into my GI doc this week at lunch (we both work at the same hospital). He had just gotten back from vacation and I hadn't talked to him since the biopsy and now had the lab results back. I commented that the gliadin antibodies were very low and and that I thought this demonstrated I was not being glutened. He said...
  8. trents
    I have somewhat the same problem. After 5 years of very conscientious gluten free eating (including attention to pills and oral hygiene products) I recently had a follow-up endoscopy and biopsy. Inflammation and flattening of villi are still present. I was very discouraged. My local doc has thrown his hands up. Refractory sprue is when celiac symptoms and...
  9. trents
    Recently I posted concerning my frustration following a biopsy that revealed continuing villi flattening and inflammation after five years of being gluten free. The GI doc felt I must be still getting gluten somewhere on a consistent basis and urged me to take a closer look at what I eat. Well, I was certain I was not overlooking anything but to be sure I...
  10. trents
    Iron is best absorbed in an acidic environment and it binds with many foods like things that are calcium rich, egg yokes, and tannins (coffee, tea) so that these foods render it ineffective as a supplement. I take a 65mg ferrous sulfate tab between meals to avoid this and take the iron with a vitamin C tablet to create an acidic environment. I tolerate it...
  11. trents
    I have scoliosis and kyphosis. Kyphosis runs in my mother's family and I have an uncle on my father's side who was dx with celiac about two years ago.
  12. trents
    After disappointing news from my second biopsy in 5 years since dx I am beginning to think I may have refractory sprue. I have reviewed my diet, meds and oral hygiene products for possible gluten contamination and I just don't see any. Anyone out there been clinically diagnosed with refractory sprue? I want to here about your experience. I am a soon-to...
  13. trents
    I think low RDW (red cell distribution width) is good. It indicates little variance in the diameter of the red blood cells, i.e. few poorly formed ones. Normal MCV is also good. Just looking at those two indcators, I would not think you have low iron stores. What about your hemaglobin and hematocrit levels? Blood cells parameters don't affect folic acid...
  14. trents
    Yeah, I googled "refractory sprue" and found this article myself early this morning. Seems to be saying that refractory sprue is a condition that has a foundation in gluten intolerance/celiac disease but then takes on a life of its own apart from the presence or absence of gluten in the diet. It's an excellent article to give to m GI doc. If nothing else...
  15. trents
    Thanks for this resource, happygirl.
  16. trents
    Thanks for those suggestions about the consultation services and the GIG conference. Those tips sound promising.
  17. trents
    Thanks for all of your encouragement. It really means a lot to me. A few months after being dx 5 years ago and working to be gluten free this doc ordered repeat antibody tests and they were in the safe range. Also, my liver enzymes (which had been elevated for 7-8 yrs.) were back into normal range and have been ever sense. So there was evidence that I was...
  18. trents
    I was diagnosed with celiac disease 5 years ago with blood antibiodes and biopsy positive. I have been very conscientious about gluten-free living. I am aware of all the places gluten can be hidden in sauces, medications, seasonings, oral hygiene products, food ingredient label nomenclature, etc. and have been very careful. Recently I had an endoscopy done...
  19. trents
    Carpal tunnel?
  20. trents
    I haven't tried teff very often but the last two times I've eaten it I got very sick with severe stomach cramps. Teff kernels have a resin that if not thouroughly washed off can do this for some people.
  21. trents
    Food allergy testing is fraught with problems and shouldn't be taken as definitive. It may be helpful to the extent that it suggests patterns of things, especially if your actual symptomatic experience fits in with patterns you see in the allergy panel results. A lot of us with celiac disease will show allergies to so many foods it is impractical/impossible...
  22. trents
    Canker sores are actually caused by one of the herpes viruses.
  23. trents
    If you aren't absobing calcium through the gut I don't think it would wind up in your gums or any other part of your body. It would just pass through your intestines and into the potty.
  24. trents
    Trying to eliminate sinus/nasal problems/cough at night and frequent morning headaches. No GI problems. I should have mentioned that I also had the inhalent skin prick allergy testing done and it was positive for many common things like molds, grasses, dust, dust mites, tree pollens, pets, ect. I started allergy shots last week. So you see, I'm dealing with...
  25. trents
    Thanks for the advice about eliminating the personal info. Yes, I am a Celiac - confirmed by blood testing and biopsy. Yes, I am on a gluten-free diet and have been for several years.
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