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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    @CeliacPI, I know this does not directly address your question but it is well-known that in the celiac population, intestinal diseases in general are statistically more common than they are in the general population - IBS, colitis, lymphoma, etc.
  2. trents
    @N00dnutt, been there, done that! Cheers!
  3. trents
    @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
  4. trents
    @N00dnutt, can you find that article from the Mayo Clinic? That one would be a handy one to have for education purposes.
  5. trents
    It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits...
  6. trents
    Marish makes a good point. Even if there is an effective "pill" therapy developed, how expensive will it be and will insurances cover it?
  7. trents
    I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over...
  8. trents
    Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference...
  9. trents
    Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
  10. trents
    @Ronnie d, there is a small percentage of celiacs who have dermatitis herpetiformis but have no small bowel mucosal involvement. Also, we have had some reports on this forum from dermatitis herpetiformis suffers who said Dapsone did not work for them. But for the vast majority it does.
  11. trents
    @judycs, will you be following up with the company on this? But before you do, find out what kind of "flour" was used in the apples. Do you know for sure it was wheat flour? The term flour doesn't necessarily imply a wheat product.
  12. trents
    How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time.
  13. trents
    I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried...
  14. trents
    Welcome to the forum, @Betsy Crum! That you have either celiac disease or NCGS (Non Celiac Gluten Sensitivity) seems not to be in doubt as the classic symptoms of headache, fatigue, diarrhea, brain fog, etc.) cleared up when you went gluten free. The chest pains with breathing difficulty onset being so quick after the consumption of gluten, even in the...
  15. trents
    @nataliallano, whatever else can be said, you need to get serious about eating gluten free. Lots of people with celiac disease are like you. We call them "silent celiacs". They have few or no GI symptoms and falsely assume no damage is being done to their body so continue to consume gluten. Neurological damage is one of them.
  16. trents
    That may or may not be true, depending on what that one marker is. Can you ask him specifically what that one marker is and post back about it?
  17. trents
    Not to eat or drink certain ones of what? Do you know what it is specifically you are trying to avoid when you eat? I kind of get the feeling you don't really understand much of this celiac thing.
  18. trents
    Hello, Jeff and yes, PTL! The word "marker" is typically used in connection with gene testing but gene testing is not usually where testing for celiac disease starts. It usually starts with blood work looking for antibodies that are more or less specific to celiac disease. The most popular antibody test ordered by doctors is the tTG-IGA test but there are...
  19. trents
    @MegRCxx, it is common for people with celiac disease to have other food intolerances as well. Most common offenders are oats (even gluten free oats) and dairy. Soy, eggs and corn are less common but not rare. So, factor into your consideration.
  20. trents
    @Theresa2407, different labs use different reference ranges and even different units of measurement for the same tests. Because of that, you can't compare test scores from tests administered at different labs.
  21. trents
    I think the best you will be able to do is to find out if gluten, or at least wheat, barley or rye is an intentional ingredient in a smoke product and only the manufacturer can answer that question. Since smokes are regulated by the AFT and not the FDA, allergens are not required to be declared in the labeling.
  22. trents
    Welcome to the forum, @brian weinstein! Gluten is a protein found in wheat barley and rye kernels. Pectin is a polysaccharide (a very complex sugar) found in the cell walls of fruits and vegetables. It is most commonly used as a thickening agent in food products, particularly jellies. So, pectin is naturally gluten free. That is not to the...
  23. trents
    First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac...
  24. trents
    Welcome to the forum, @max it! By "one celiac marker" do you refer to a genetic marker or a blood antibody test result?
  25. trents
    Well then, I'd say he's making excellent progress. It can take some time for antibody numbers to normalize. Even though new antibodies are no longer being produced, it takes a while for the old ones to be disposed of. Make sure you keep an eye on the alkaline phosphatase levels. It is probably true that is tied to his adolescent growth spurt but it's...
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