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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
  2. trents
    Good catch, @RobinGroenevelt, and an excellent point!
  3. trents
    Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly.
  4. trents
    "When comparing gluten-free oat-only products with general gluten-free foods and ordinary oat products, the study found that gluten-free oat-only products had the highest contamination rate. For instance, gluten-free foods in general had contamination rates of around 18 percent, while oat-only products labeled gluten-free had rates nearing 73 percent. Ordinary...
  5. trents
    @NoriTori, you say, "No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. " We hear this all too often. Sloppy medical practice.
  6. trents
    @NoriTori, "gluten intolerance" is a general term that can refer to either celiac disease or NCGS. NCGS is often referred to as "gluten sensitivity" for short. Though, admittedly, there is still a great deal of inconsistency in the use of terms by the general public.
  7. trents
    Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions...
  8. trents
    Welcome to the forum, @Mpanknin! Questions like that really have no definite answer. Even if you tested a container of it for gluten content, the test results would only be good for that production batch. Assume it has some degree of CC. A more important question might be, how sensitive are you to minor amounts of gluten exposure?
  9. trents
    @jeffpine, please realize that GliadinX is not designed to allow you to eat large amounts of gluten without celiac repercussions. It is designed to counteract cross contamination situations where you might be exposed to small amounts of gluten accidentally such as you might get in a restaurant when you order something that should be gluten free but it is...
  10. trents
    Welcome to the forum, @Dema! The current recommendations for the "gluten challenge" leading up to the day of testing are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily for at least two weeks. I hope this helps you in your decision. This information represents more recently updated guidelines...
  11. trents
    "Yes, but it was less than I’d normally eat, I felt sick and just restricted everything. I felt like it was something do with gluten so I’d started eating less of it as well - I had something wheat every other day" In order for celiac testing to be valid, you need to be eating a significant amount of gluten daily for a significant amount of time. Fo...
  12. trents
    Welcome to the forum, @NoriTori! Some questions: 1. When you had testing done for celiac disease, whether antibody testing or biopsy, had you been eating normal amounts of gluten for weeks/months leading up to the testing? 2. Did your antibody testing include a "total IGA" test to check for IGA deficiency? 3. Have you considered the possibility...
  13. trents
    Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this...
  14. trents
    Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
  15. trents
    Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac...
  16. trents
    Welcome to the forum, @JulieRe! You would do well to get checked for a candida infection of the gut. Yeast thrives on carbs so you might also look into a low carb diet. These kinds of things seem to be more common in the celiac community than in the general population. There is a growing body of evidence that the development of celiac disease is rooted...
  17. trents
    Makes me wonder if it has something to do with the fact that the protein avenin in oats triggers a gluten-like reaction in some celiacs and that this stricter standard for oat products is concession to those people making noise on that basis.
  18. trents
    @Winnie-Ther-Pooh, we are talking about two different standards here. In the U.S, the Food and Drug Administration (FDA) has set the standard for using "Gluten-Free" in product advertising at not more than 20 ppm of gluten. There is another standard, an internationally-recognized one, known as "Certified Gluten-Free" which is stricter, requiring not more...
  19. trents
    @Winnie-Ther-Pooh, Does Bob's Red Mill offer certified gluten-free oats in CN? I cannot find any certified gluten-free oats on their U.S. website, just gluten-free.
  20. trents
    Welcome to the forum, @humerme! Two or three things. If you are looking to eliminate gluten, you will have to avoid not only wheat but also barley and rye. Those are the three gluten-containing grains. In recommending gluten-free breads, it would be helpful to know where you live since not all products are available everywhere. For instance...
  21. trents
    Yes, 50k IU daily would be an a short term front end loading dose for those having critically low levels but you wouldn't want to take it for an extended period.
  22. trents
    That's 20ppm, not 20,000 ppm. https://www.fda.gov/food/nutrition-education-resources-materials/gluten-and-food-labeling "The rule specifies, among other criteria, that any foods that carry the label “gluten-free,” “no gluten,” “free of gluten,” or “without gluten” must contain less than 20 parts per million (ppm) of gluten."
  23. trents
    I think in the UAE you may have access to pistachios, cashews and coconut. All would be packed with calory and nutrient dense. Cashews especially, are both high in fat and higher in carbs than most other nuts.
  24. trents
    Keep in mind that a celiac diagnosis normally involves two steps: 1. blood antibody testing and 2. if there are positive antibody test scores, an endoscopy with biopsy of the small bowel lining. You have only mentioned the first in your strategizing.
  25. trents
    There are about 8 grams of protein in an egg and also in a cup of milk. About 90 calories in an egg and around 100 to 120 calories in a cup of milk, depending on the fat content. To increase your calorie intake with food items that are also nutritionally dense, concentrate on seeds and nuts. They are high in fat content, so lots of calories, but also rich...
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