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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Welcome to the forum, @Heatherisle! Yes, not uncommon for multiple celiac antibody tests to not agree. The Endomysial IGA was the first antibody test developed to detect celiac disease. It is expensive to run and has largely been replaced by the tTG-IGA. But some physicians, particularly those who have been in practice for awhile, still order the EMA...
  2. trents
    It can be almost anything for the individual but I would suggest getting in the habit of reading labels to see if there are patterns. The form of magnesium is very important. Go for magnesium glycinate. A lot of over the counter stuff puts the emphasis on shelf-life as opposed to bio-availability. Magnesium glycinate is very bioavailable, very absorbable...
  3. trents
    As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you...
  4. trents
    Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products...
  5. trents
    @Viv Hesketh, at least in some places in England there are stipends for those officially diagnosed with celiac disease. But I think it may depend on postal codes. Perhaps our Brit moderator, Cristiana, can elaborate for you.
  6. trents
    @Theresa C, not sure why you posted this question in Pete Dixon's blog about hook worm therapy for addressing celiac disease. If I were you, I would repost in the actual forum in an appropriate topic area so that your question will get more eyes.
  7. trents
    @Izelle, you are welcome! It is important to know that beginning the gluten-free diet or even a reduced gluten diet previous to celiac testing will invalidate the testing. One should seek out testing before experimenting with eliminating gluten. Also, remember that celiac disease is not a food allergy. It is an autoimmune disease. When a celiac consumes gluten...
  8. trents
    Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages. The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the...
  9. trents
    "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis...
  10. trents
    First of all, being able to return to foods that you have developed a sensitivity to in connection with celiac disease is not a given. You may or may not be able to do this with time. But the ability to do so seems to be connected with the healing of the villous lining of the small bowel which often takes 2-3 years in adults after attaining to consistently...
  11. trents
    Welcome to the forum, @Waterdance! Constipation and diarrhea are classic celiac symptoms and hemorrhoids is usually the outworking of either or both of those two problems. But I'm curious about your statement, "I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease." Perhaps your understanding of what that encompasses is...
  12. trents
    I hear you. My extended family is very good about factoring in my celiac disease safety needs when making family celebration meal plans but sometimes it breaks down in the spur of the moment decisions to "Oh, let's go out and get some teriyaki" or the like. Especially when my brother in law comes into town 'cause he's pretty particular about what he likes...
  13. trents
    Yes, probably slipped his mind. Grace is in order here is my thought.
  14. trents
    But if you were not in the office and would not not have access to your phone, how could he inform you of the change in venue?
  15. trents
    Read and understood with sympathy. Food for thought, excuse the pun. For future reference, is there an officemate you can count on to alert you when the group makes sudden changes in plans like that? Someone who is truly looking out for you?
  16. trents
    Okay, I'm taking a guess here. We are used to hearing in layman terms that having either the HLA-DQ2 or the HLA-DQ8 gene, either heterozygous or homozygous, presents the possibility of developing active celiac disease. So, I'm guessing that the HLA-DQ2 gene is actually a range of variants (2.01-2.99) with HLA-DQ 2.5 being in the centerpiece of the range...
  17. trents
    No. It's over the counter. Readily available on Amazon. Good bio availability but shelf-life is not as good as thiamine mononitrate which is the most common form found in over the counter vitamin products.
  18. trents
    Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
  19. trents
    Welcome to the forum, @QueenBorg! Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct?
  20. trents
    Welcome to the forum, @Garlic! This kind of question is always a gray area and the answer must be nuanced. Ideally, every celiac should stay away from any potential source of gluten, however small. But we don't live in an ideal world and sometimes it is appropriate to take risks as long as the risks aren't too large and the consequences not too drastic. Realize...
  21. trents
    @alltheceliacquestions, 20ppm, even 10ppm will still cause reactions in the more sensitive subset of celiacs.
  22. trents
    "He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong...
  23. trents
    Welcome to the forum, @ARutherford! Have you considered that your child may have gluten intolerance/celiac disease? It's not an allergy, it's an autoimmune response to the ingestion of gluten. It cannot be diagnosed by allergy testing but there are some specific antibody blood tests that any physician can order to check for it. Ask for a "total IGA test...
  24. trents
    Good idea, @LynnM! That would be helpful to other celiacs who find themselves on the more sensitive end of the spectrum. You might also want to send them information about how to initiate the process with GFCO. But just a word of caution here, don't be surprised if the company is reluctant to pursue this certification as it can tie their hands with regard...
  25. trents
    Cutting out major sources of gluten in one's diet is pretty easy. It's the hidden sources where it shows up in products you would never expect to find wheat in (like soy sauce and Campbell's tomato soup, most canned soups, many pork n' bean products), medications, supplements, oral hygiene products, etc. that are the things that trip you up. And then there...
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