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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Your conclusion seems reasonable to me but you might want to modify your declaration to say something like, "I'm reasonably certain I have celiac disease."
  2. trents
    Welcome to the forum community @Sharm! My guess is the answer to your first question is very likely "yes" and "quite possibly" to the second one. But more importantly, you obviously have discovered the root cause of these several maladies and whether or not you have celiac disease or NCGS (Non Celiac Gluten Sensitivity) is a rather moot point. You need...
  3. trents
    Welcome to the forum community @Blanco! Which TTG test was that for which you report the result of 1540? There is the TTG-IGA and there is the TTG-IGG. If it was the TTG-IGA your score was 77x normal and I'm surprised the physician is asking you to go forward with a biopsy as in the UK it is common to forego the biopsy when the TTG-IGA scores are 10x...
  4. trents
    There is a very short time window for editing posts. This is to thwart spammers. Physicians are trained to spot acute vitamin deficiency diseases like rickets and beriberi but not trained to spot the effects of sub acute deficiencies.
  5. trents
    Some people have genetic deficiencies that require them to use methylated forms of vitamins. B vitamins are water soluble so excess is excreted in our urine and is nontoxic. You can't overdose on the common forms of them. There is vitamin D deficiency in many parts of the world either because of lack of sunshine (climate factors) or indoor living. Our ancestors...
  6. trents
    It is common for silent celiacs to react (symptomatically) more strongly after going truly gluten free for a significant amount of time. Before diagnosis, when we are consuming gluten regularly, we force our bodies to tolerate it even though it is doing damage. When we go completely off of it, we lose that tolerance. However, as in your case, if someone is...
  7. trents
    Welcome to the forum community, @heyitsme! Some parallels between your experience and mine in that I was a silent celiac and what led to my diagnosis back around 2000 was 7 years of mildly elevated liver enzymes that could not be explained by the usual causes. I am no longer "silent" as any significant exposure to gluten after being gluten free all these...
  8. trents
    You seem to be of the not super sensitive subset of celiacs so that is in your favor when forced to eat outside of your home where you find yourself in situations where you can't maintain tight control of cross contamination. I'm like that too. Just do the best you can in choosing things from menus or when in ala carte situations. In restaurants you can request...
  9. trents
    Blood levels of vitamins and minerals don't necessarily reflect what is getting into the tissues and cells. Yet, the only way to address that problem is increase the concentration in the blood. I would take the vitamins and minerals I suggested for several months and see if it helps. If not discontinue them. They will not harm you. Low vitamin D is a chronic...
  10. trents
    Welcome to the forum community, @Jane07! The problem you describe is very common in the celiac community. Our teeth are something that we cannot make stronger. Once we get our adult teeth the goal is to slow their deterioration as much as possible but they can never be made stronger after they first come in. Unattended celiac disease wreaks havoc with...
  11. trents
    Healing begins as soon as you begin eating truly gluten free. But learning to eat truly gluten free instead of just eating a lower gluten diet is more challenging than most people realize. You not only have to consider macro sources of gluten like bread and pasta but cross contamination issues like when gluten free things are cooked on the same surfaces with...
  12. trents
    Welcome to the forum, @Sammy cat! That would not likely be a symptom of celiac disease but of a kidney or bladder infection or possibly even bladder cancer. Sometimes there is no pain with these problems but often there is. I would get your urine tested for infection.
  13. trents
    Good question and I don't know that there is a definitive answer. It probably varies enormously from person to person depending on how much damage was done and what kind of damage. I know for certain that my celiac disease started at least by age 37 and it was another 13 years before I got an official diagnosis and started on the gluten free journey. But...
  14. trents
    By neurological I mean caused by nerve dysfunction. Possible physical damage to a nerve pathway that serves the areas you experience pain in or unhealthy nerves due to nutritional deficiencies from celiac disease.
  15. trents
    There are anecdotal claims out there that bread made from heirloom wheat and also sourdough processes lowers gluten content or alters the gluten enough to permit some to consume it without issue. However, there is not yet a scientific consensus around this so I wouldn't assume it is doing you know no harm. We can experience gluten exposure that is subclinical...
  16. trents
    No, it is not okay to begin a gluten free diet that far out from the endoscopy/biopsy. Doing so will likely compromise the results and could put you in a conflicted situation between blood test results and biopsy results. However, you have plenty of time to go back to consuming gluten and expect a valid biopsy by May 31. Just eat the gluten equivalent of...
  17. trents
    Welcome to the forum, @Hailey niemann! Try focusing on mainline simple, fresh foods that are naturally gluten free rather than prepackaged gluten free facsimile foods. For instance, fresh meat, veggies and fresh fruit. Of course, it would mean foregoing a lot of snack foods and deserts. Prepackaged gluten free facsimile foods are indeed expensive.
  18. trents
    I also wonder if reported gluten reactions to skin care products might be due to the presence of fractured gluten molecules that are small enough to pass through the skin matrix. We already know that there some celiacs cross react to some proteins that closely resemble gluten.
  19. trents
    javadesigner, I must admit, I have had my doubts about whether or not a person can really be "glutened" transdermally. However, we have reports on this forum from people who also claim they get a celiac reaction from just walking down the bread isle of the supermarket and smelling the aroma of fresh-baked bread. What would be your thoughts on that? Is this...
  20. trents
    Thanks for the additional info. In answer to your original question, yes, it is certainly possible that your daughter has celiac disease with only the one positive test. In fact, seldom do we see all the test lights lit up. The DGP-IGA and DGP-IGG tests can be especially helpful with young children since their immune systems are immature and they often don...
  21. trents
    What you describe sounds like it could be a neurological effect caused by a vitamin deficiency. Vitamin and mineral deficiencies typically accompany celiac disease because of the damage it does to the villous lining of the small bowel. This is the area of the intestinal track where all of our nutrition is absorbed and the constant inflammation over time in...
  22. trents
    First, how old is your daughter? Second, when the blood draw was done for testing, was she still eating plenty gluten? Third, the issue isn't that the DGP test is less sensitive but that it is less specific for celiac disease. And was this the DGP-IGA test or the DGP-IGG test? Fourth, what are her symptoms.
  23. trents
    How long have you had her on a gluten free diet? Believe me, I understand that you do not want to torture your daughter by keeping her on gluten but testing is a waste of time if she has been on a gluten free diet for any length of time. The blood tests are checking for antibodies produced by the inflammatory reaction to gluten in the gut experienced...
  24. trents
    Unfortunately, if she was already eating gluten free when these blood tests were taken the results would not be accurate unless it was within days (as opposed to weeks) of beginning the gluten-free diet. However, the IGA is a little elevated. Is that tTG-IGA or is it total IGA? If it is tTG-IGA it would suggest celiac disease. We need more specific information...
  25. trents
    The DGP-IGP is a secondary test used for detecting celiac disease and is not as reliable as a diagnostic tool as the tTG-IGA and the EMA. But it is still used and is still valuable, especially in pediatric cases or situations where other factors such as low total IGA, anemia, diabetes or having already begun limiting gluten intake are at play to cause false...
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