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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. Welcome to the forum, @Soleihey! Undoubtedly, you are experiencing vitamin and mineral deficiencies. Superficial serological vitamin and mineral deficiency testing often does not tell the whole story as it only measures what's floating around in the blood, not what is actually getting into the tissues and being used by them. There are more in depth tests...
  2. Welcome to the forum, @Lenabeana! Because you do not work in the production area of our company, I do not think you have cause to worry about gluten exposure. I would not overthink this if I were you. Worst case scenario would be needing to wear a KN95 mask if there is enough suspended wheat dust in the office air to cause a reaction. Take one thing...
  3. The gluten challenge guidelines are in the process of being revised to reflect the fact that formerly they were not intense enough and too many people who actually had celiac disease were testing negative in the blood antibody stage of testing. But you will still find a lot of the older guidelines on the internet which generally advocated 1-2 pieces of wheat...
  4. "the reference range for my test was 0.0-14.9 U/ml." Which test or tests do you refer to? Your symptoms align well with celiac disease and the fact that you were eating a lower gluten diet and have low iron stores casts doubt on the validity of your antibody testing. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) which shares...
  5. Welcome to the forum, @Sunflowers06! By any chance were you already cutting back on gluten when you had the blood draw done for celiac antibody testing? Also, a test that should have been run that wasn't is "total IGA." If total IGA is low then it will skew other IGA test down toward the negative range. I would ask for that one to be run. Are...
  6. Frankly, I don't buy one of the major assertions at the beginning of this article and that is that departing from the paleo diet is the cause of all of our modern diseases. There is no way to prove that. All we have are their bones. And ancient human lifespans were apparently very short compared to that of today.
  7. That's not my understanding of what is meant by cross reaction but you could be correct. At any rate, in this person's case, there seems to be doubt as to whether he is truly eating gluten free.
  8. Is he consuming dairy? About 10% of celiacs react to the protein casein in dairy like they do the protein gluten in wheat/barley/rye. The structures are very similar.
  9. Welcome to the forum, @Patsul! There is no way to gauge how long you have had celiac disease from the Marsh analysis alone. A better gauge would be the timing of the onset of symptoms. But even then, there can be a significant delay between the onset of the disease and the appearance of recognizable symptoms. Many celiacs are "silent" for years until...
  10. The particular magnesium formulation makes a huge difference. The vast majority of magnesium supplements on store shelves are magnesium oxide and it can have a very definite laxative effect because it isn't absorbed well and draws water into the colon. A much better choice is magnesium glycinate.
  11. Makes no difference whether it is whole wheat or white. Whole wheat is white bread with the chaff not removed. That's not the main gluten containing part of t he wheat seed.
  12. High liver enzymes, including alk phos, are common with celiac disease.
  13. If you get skin reactions from gluten it may not be practical for you to undergo the gluten challenge in order to get tested for celiac disease. Can you describe the appearance of your skin reactions? Is it a rash with small blisters in the bumps? Any physician can order a DNA test or you can pay to have a private company to do testing. 23 and Me is...
  14. Antibody testing is blood testing but you still have to be eating gluten for weeks ahead of time for it to be valid. The equivalent amount of gluten found in about 6 slices daily of wheat flour bread for at least two weeks. All celiac disease testing, whether involves checking in some way for inflammation and/or the damage caused by it to the small bowel...
  15. The noodles in the chicken noodle soup will be a good source of gluten.
  16. Many have. It's been on the market for years. Many report good results. The manufacturer of Gliadin is one of our forum sponsors. It needs to be understood that the product is intended to protect against minor exposures to gluten such as you would experience with cross contamination in a restaurant. It will not be effective if you throw caution to the wind...
  17. The "gluten challenge" guidelines have recently been under revision to advocate for more intense exposure to gluten leading up to the either the blood antibody testing or the endoscopy/biopsy. I would recommend 6 slices of wheat flour bread daily (or the gluten equivalent) for at least two weeks. It is now felt that earlier gluten challenger guidelines were...
  18. I agree with what knitty kitty is saying. Celiac disease results in vitamin and mineral deficiencies because of the damage done to the villous lining of the small bowel.
  19. Welcome to the forum, @Lrgthrcl! Your daughter has many symptoms that point to possible celiac disease. You mention that her "ttg levels are normal." Which ttg do you refer to? ttg-iga? ttg-igg? You also mention that her "ig levels are low." Do you mean igg? I am adding an link giving an overview of celiac disease blood antibody testing: Terminology...
  20. Keep us posted when you find out more or if things change. Hope you feel better soon.
  21. Yes, but if it makes you feel worse, no need to start that early. If it doesn't then go ahead. We have no idea at this point if gluten is even an issue with you.
  22. Start loading up on gluten several weeks before the gastroenterologist appointment. He/she will likely start with blood antibody testing and if that is positive he/she may order an upper GI scoping with a biopsy.
  23. Absorption for newly diagnosed celiacs is compromised but not totally absent. Iron supplements are absorbed better in an acidic environment so take vitamin c along with the iron. Try oral iron first and see if you respond. If not, then you can look at infusion. Iron assimilation can be a complex thing dependent on several factors. I would also take some high...
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