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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I don't see how cornstarch could alter the test results. Where did you read that?
  2. trents
    Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen? I don't see that it would have any impact on the test results to take Tylenol.
  3. trents
    Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction...
  4. trents
    The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for...
  5. trents
    As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable...
  6. trents
    Buckwheat is not related to wheat at all. Buckwheat is related to rhubarb. There should be no dermatitis herpetiformis trigger there.
  7. trents
    Or at least with a form of gluten that did not cause reaction. If that could be accomplished then I would assume the same could be done for the barley, rye and those cultivars of oats that contain gluten.
  8. trents
    Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS...
  9. trents
    @ShariW, this is true.
  10. trents
    Yes, there would need to be years of strict control in the cultivation of these GMO products in dedicated fields to prevent that from happening. It would take time to implement and get to the point where it was reliable.
  11. trents
    Fascinating! As with all GMO products, however, there will be questions of whether or not it would trigger other immune system reactions as a new foreign protein substance. Don't get me wrong. I'm not against GMO technology in a carte blanche sense. I just think each GMO product needs to be evaluated on its own merits and risks and there needs to be thorough...
  12. trents
    @JoJoColes, I was thrice vaxed (Moderna) during the original COVID pandemic era and still got COVID twice within a year after that. Although it may have lessened the severity of the infections, it certainly didn't prevent it. The long-term potential dangers of the MRNA vaccines as well as the steady decline in the severity of infection connected with COVID...
  13. trents
    @Anne65, yes, presently, in order to diagnose celiac disease, a person must be actively consuming regular amounts of gluten. The first stage of testing is designed to detect antibodies produced by an inflammatory autoimmune reaction to gluten in the villous lining of the small bowel. When you remove gluten from the diet, the inflammation begins to subside...
  14. trents
    @Idnam, maybe it's time to reach out to your GP and inquire about follow-up.
  15. trents
    Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency...
  16. trents
    Let me suggest some possibilities for your nausea/heart burn besides gluten cross contamination that are common in the celiac community: 1. You may have other food intolerances. This is exceedingly common in the celiac community. The two most common food offenders are oats and dairy products. Eggs, corn and soy are also on that list. But it can be almost...
  17. trents
    Welcome to the forum, @petitojou! You say, "Unfortunately at home, even with all the care I have, I’m still exposed to possible gluten contamination." Are you living with family who are still consuming wheat products? Are you living with your parents? Are you "at home" every day or only occasionally? Is this cross contamination you speak of from shared c...
  18. trents
    Probably more than have even heard of "celiac disease".
  19. trents
    Yes, I use Aveeno Moisturizing Body Lotion with prebiotic oat, unscented. I really only use it on my hands and not every day. Haven't noticed any problems. I don't have dermatitis herpetiformis.
  20. trents
    It's usually better to use the term "gluten intolerance" rather than celiac disease when talking to the uninitiated about these things. Gluten intolerance covers both celiac disease and NCGS (Non Celiac Gluten Sensitivity or just gluten sensitivity for short).
  21. trents
    That's why we have the term "silent celiac". And it might not be a stretch to say that most of us have fit into that category. But when you see those early symptoms in friends or family and try to encourage them to get tested, you usually get blown off.
  22. trents
    Welcome to the forum, @Celiac50! Vitamin A toxicity is not to be taken lightly. If you suspect that is the case, I would certainly discontinue the beta-carotene supplementation. Vitamin A from natural sources is unlikely to cause toxicity. I would also get labs done to check your levels. May we ask your age? It's been over a year since you began...
  23. trents
    @chrisinpa, this is done on children in Italy as part of their screening as they entering the school system.
  24. trents
    I think sometimes it is the case when people are diagnosed later in life that the actual onset was years earlier but was not of an acute nature. As it gradually took it's toll on the small bowel lining and other body systems it got to a point where symptoms were noticeable enough to finally prompt investigation and diagnosis. Then people look back in time...
  25. trents
    That's a question I have as well. Who are the appropriate people in high places to lobby. I'm thinking RFK, Jr. might be willing to get on board with this. If the celiac community, not just individuals gut recognized organizational leaders, would come together and present a unified effort with this we might see results.
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