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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
  2. trents
    Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac...
  3. trents
    Welcome to the forum, @JulieRe! You would do well to get checked for a candida infection of the gut. Yeast thrives on carbs so you might also look into a low carb diet. These kinds of things seem to be more common in the celiac community than in the general population. There is a growing body of evidence that the development of celiac disease is rooted...
  4. trents
    Makes me wonder if it has something to do with the fact that the protein avenin in oats triggers a gluten-like reaction in some celiacs and that this stricter standard for oat products is concession to those people making noise on that basis.
  5. trents
    @Winnie-Ther-Pooh, we are talking about two different standards here. In the U.S, the Food and Drug Administration (FDA) has set the standard for using "Gluten-Free" in product advertising at not more than 20 ppm of gluten. There is another standard, an internationally-recognized one, known as "Certified Gluten-Free" which is stricter, requiring not more...
  6. trents
    @Winnie-Ther-Pooh, Does Bob's Red Mill offer certified gluten-free oats in CN? I cannot find any certified gluten-free oats on their U.S. website, just gluten-free.
  7. trents
    Welcome to the forum, @humerme! Two or three things. If you are looking to eliminate gluten, you will have to avoid not only wheat but also barley and rye. Those are the three gluten-containing grains. In recommending gluten-free breads, it would be helpful to know where you live since not all products are available everywhere. For instance...
  8. trents
    Yes, 50k IU daily would be an a short term front end loading dose for those having critically low levels but you wouldn't want to take it for an extended period.
  9. trents
    That's 20ppm, not 20,000 ppm. https://www.fda.gov/food/nutrition-education-resources-materials/gluten-and-food-labeling "The rule specifies, among other criteria, that any foods that carry the label “gluten-free,” “no gluten,” “free of gluten,” or “without gluten” must contain less than 20 parts per million (ppm) of gluten."
  10. trents
    I think in the UAE you may have access to pistachios, cashews and coconut. All would be packed with calory and nutrient dense. Cashews especially, are both high in fat and higher in carbs than most other nuts.
  11. trents
    Keep in mind that a celiac diagnosis normally involves two steps: 1. blood antibody testing and 2. if there are positive antibody test scores, an endoscopy with biopsy of the small bowel lining. You have only mentioned the first in your strategizing.
  12. trents
    There are about 8 grams of protein in an egg and also in a cup of milk. About 90 calories in an egg and around 100 to 120 calories in a cup of milk, depending on the fat content. To increase your calorie intake with food items that are also nutritionally dense, concentrate on seeds and nuts. They are high in fat content, so lots of calories, but also rich...
  13. trents
    1000 calories per day is not near enough to sustain your body's needs. You should be aiming for twice that much. You are in a borderline starvation mode and even apart from celiac disease that explains a lot of your medical issues. And you should be aiming for 75-100 gm of protein per day. Do you have access to eggs? Protein powders are good for supplementing...
  14. trents
    How many grams of protein per day would you say you are getting and how many calories per day? I did some research on causes for low creatin and low urea.
  15. trents
    Thanks for explaining your situation in more detail. You are in a difficult place it seems, not having the control you need over what you eat. What are the possibilities in the foreseeable future of you finding another living situation where you have more control over your diet? You are seventeen so soon you will be an adult. What is in your future? Education...
  16. trents
    Two thoughts: 1. What if the testing turns out negative? That won't rule out the development of active celiac disease later in life. You may have NCGS now which will transition in to celiac later on. 2. Your plan implies dishonesty in hiding it from your doctor and your insurance company.
  17. trents
    Welcome to the forum, @Janet McAlpin! Using the gluten-free label doesn't mean there is 0 gluten in a product. It means there is <20ppm of gluten according to FDA standards. So, it is not surprising that there is some gluten in this product. What is the sensitivity of the ELISA test you are using? And the NIMA device has a reputation for giving erratic...
  18. trents
    Then it sounds like the thing you really need to focus more on is being more consistent with the gluten-free diet. Another suggestion I would make is to avoid using a lot of pre-made gluten-free food. Gluten-free facsimile flours are not enriched like their wheat counterpart and are full of empty calories. Focus on naturally gluten free foods that are nutrient...
  19. trents
    It's normal for the pee to turn yellow when taking large doses of B vitamins, particularly riboflavin (B2). That doesn't mean they are building up in the kidneys. It means the excess is being excreted. The B vitamins are water soluble.
  20. trents
    Welcome to the forum, @Kimmy88! Most toothpastes are actually gluten-free. Most meds are gluten free. There are lists available for most prescription meds to determine if they contain gluten as an intentional ingredient. Google. Remember, "gluten free" does not mean "contains no gluten" it just means it contains less than a certain parts per million of gluten...
  21. trents
    Kidney issues? What makes you say that? Villi can take up to two or three years to completely heal in mature adults adhering to a strict gluten free diet. Less time for younger people like you. Get antibody levels checked about every 6 months.
  22. trents
    Can you be specific about what supplements you are taking? The form of a supplement can be critical in how well it is absorbed. Many over the counter vitamin and mineral supplements are optimized for shelf-life rather than absorbability. For instance, take magnesium. On the store shelves you will often see Magnesium oxide or Magnesium citrate. Magnesium glycinate...
  23. trents
    Do you have a soy or peanut allergy? This shouldn't be a concern purely from a celiac or gluten sensitivity perspective.
  24. trents
    Welcome to the forum, @Sarawiththeceliac! Can you give us the reference range for your celiac test? Different labs use different reference ranges for negative vs. positive so without that a test score of 32 is not that helpful. And its that a recent test or was it done when you were 5 years old? It is imperative that you begin to observe a strict gluten...
  25. trents
    I don't think we can say that just one thing, whether vitamin D deficiency or emotional trauma, or a viral infection, or what ever is always what triggers the onset of celiac disease. We do know there is a genetic component to it and there is increasing evidence that factors creating gut dysbiosis (such as overuse of antibiotics and preservatives and environmental...
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