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trents

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Everything posted by trents

  1. trents
    @judycs, will you be following up with the company on this? But before you do, find out what kind of "flour" was used in the apples. Do you know for sure it was wheat flour? The term flour doesn't necessarily imply a wheat product.
  2. trents
    How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time.
  3. trents
    I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried...
  4. trents
    Welcome to the forum, @Betsy Crum! That you have either celiac disease or NCGS (Non Celiac Gluten Sensitivity) seems not to be in doubt as the classic symptoms of headache, fatigue, diarrhea, brain fog, etc.) cleared up when you went gluten free. The chest pains with breathing difficulty onset being so quick after the consumption of gluten, even in the...
  5. trents
    @nataliallano, whatever else can be said, you need to get serious about eating gluten free. Lots of people with celiac disease are like you. We call them "silent celiacs". They have few or no GI symptoms and falsely assume no damage is being done to their body so continue to consume gluten. Neurological damage is one of them.
  6. trents
    That may or may not be true, depending on what that one marker is. Can you ask him specifically what that one marker is and post back about it?
  7. trents
    Not to eat or drink certain ones of what? Do you know what it is specifically you are trying to avoid when you eat? I kind of get the feeling you don't really understand much of this celiac thing.
  8. trents
    Hello, Jeff and yes, PTL! The word "marker" is typically used in connection with gene testing but gene testing is not usually where testing for celiac disease starts. It usually starts with blood work looking for antibodies that are more or less specific to celiac disease. The most popular antibody test ordered by doctors is the tTG-IGA test but there are...
  9. trents
    @MegRCxx, it is common for people with celiac disease to have other food intolerances as well. Most common offenders are oats (even gluten free oats) and dairy. Soy, eggs and corn are less common but not rare. So, factor into your consideration.
  10. trents
    @Theresa2407, different labs use different reference ranges and even different units of measurement for the same tests. Because of that, you can't compare test scores from tests administered at different labs.
  11. trents
    I think the best you will be able to do is to find out if gluten, or at least wheat, barley or rye is an intentional ingredient in a smoke product and only the manufacturer can answer that question. Since smokes are regulated by the AFT and not the FDA, allergens are not required to be declared in the labeling.
  12. trents
    Welcome to the forum, @brian weinstein! Gluten is a protein found in wheat barley and rye kernels. Pectin is a polysaccharide (a very complex sugar) found in the cell walls of fruits and vegetables. It is most commonly used as a thickening agent in food products, particularly jellies. So, pectin is naturally gluten free. That is not to the...
  13. trents
    First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac...
  14. trents
    Welcome to the forum, @max it! By "one celiac marker" do you refer to a genetic marker or a blood antibody test result?
  15. trents
    Well then, I'd say he's making excellent progress. It can take some time for antibody numbers to normalize. Even though new antibodies are no longer being produced, it takes a while for the old ones to be disposed of. Make sure you keep an eye on the alkaline phosphatase levels. It is probably true that is tied to his adolescent growth spurt but it's...
  16. trents
    Welcome to the forum, @CeliacMom79! Not sure what you mean when you say you are pleased that his ttg levels are now at "detectable levels"? Earlier in your narrative you said they were originally above 250. Was 250 the upper limit of the scale that was used, such that you actually don't know how high they were originally, i.e. "off the charts"? Were...
  17. trents
    Two weeks is the minimum according to the guideline. I would go for four weeks if you can endure it, just to make sure.
  18. trents
    It applies to both blood tests and biopsies. Guidelines for the gluten challenge have been revised for the very issue your question raises. It was felt by medical professionals that the longer term but less intense consumption of gluten approach was not proving to be reliable for testing purposes and was resulting in too many false negatives. But do keep...
  19. trents
    Okay, so the term was being used loosely and informally, then.
  20. trents
    Alzheimer's is caused by a buildup of beta amyloid plaque tangles in the neurons. I don't see how that would be influenced by hearing loss. I can see where sensory deprivation could contribute to mental decline in indirect ways but Alzheimer's is a disease with a biochemical base.
  21. trents
    About 9% of celiacs react to the protein in oats (avenin) like they do gluten. The dairy protein casein is also known to damage small bowel villi like gluten does in some celiacs. In addition to that, many manufactured gluten-free food products contain difficult to digest polysaccharides like xanthan gum that are famous for causing digestive distress.
  22. trents
    @Pablohoyasaxa, if your diet is truly gluten free you should not still be experiencing stomach cramps and diarrhea. So, maybe gluten is still getting in there somehow or you have developed other food intolerances which, by the way, is very common in the celiac population. Are you still consuming dairy and oats (even gluten free oats)?
  23. trents
    Are you a super sensitive celiac? I shouldn't think that would be an issue for the average celiac. I would be more concerned about cross contamination in cooking areas.
  24. trents
    Welcome to the forum, @BlakeAlex! Is this the GI Reset product you are using?: https://inwellbio.com/wp-content/uploads/2023/08/GI-Reset_Info-Sheet.pdf There is a lot of weird stuff in that you could be reacting to. Personally, I would discontinue it as I doubt it's really doing you any good anyway. Getting to the point where you are truly...
  25. trents
    No. There is no damage done to the gut lining with NCGS.
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