Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,394

  • Joined

  • Last visited

  • Days Won

    506

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    When you say you have been in an "entirely gluten-free household" since January of 2025" does that include making sure you have checked that all medications, supplements and oral hygiene products are gluten free? I can also tell you that for some people, it can take several years for their antibody numbers to normalize.
  2. trents
    I believe you are falsely concluding that elevated tTG-IGA/tTG-IGG levels can only be caused by celiac disease. I will offer a link here to an article outlining the various blood antibody tests that can be used to diagnose celiac disease. Each one them has less than a 100% specificity for celiac disease:
  3. trents
    Welcome to the forum, @ehb! This might be helpful: https://www.verywellhealth.com/villous-atrophy-562583 and this: https://www.mayoclinicproceedings.org/article/S0025-6196(17)30892-3/fulltext
  4. trents
    Welcome to the forum, @Gary Libby! This might be helpful: https://www.celiac.com/forums/forum/27-gluten-free-recipes-cooking-tips/ Also, just "google" for the gluten free version of something you like and want to try. For instance, google "gluten free recipe for meatloaf" or "gluten free recipe for tuna casserole". There are also gluten free...
  5. trents
    @Kjmanchester, going on a gluten free diet before the GP has had a chance to run the blood tests for celiac disease will likely invalidate the results of the tests. Hair sample tests for gluten disorders are not recognized as reliable diagnostic methods. Can you supply a link to the "pin prick" test you got from Amazon? The fact that your symptoms...
  6. trents
    As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
  7. trents
    Welcome to the forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in...
  8. trents
  9. trents
    Welcome to the forum @Mushroom73! About 8% of celiacs cross react to the oat protein avenin. That means 92% do not. A likely higher percentage probably cross react to CMP (Cow's Milk Protein) https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/. Corn, eggs and soy are also common cross reactors. It would be impossible to eliminate all foods that some proportion...
  10. trents
    @alltheceliacquestions, that may only be true for the average celiac but for the many in the super sensitive subset of our community, 20ppm is not good enough. 20ppm is the FDA threshold for advertising food products as "gluten free". There is another, stricter standard known as "Certified Gluten Free" (testing done by an organization known as GFCO) that...
  11. trents
    Or, you could be experiencing the development of additional food sensitivities/cross-reactivity and eating away from home at the lodge temporarily removed those foods from your diet.
  12. trents
    Welcome to the forum, @MagsM! A "total IGA" test should have been ordered along with the tTG-IGA in order to check for IGA deficiency. Certainly, an endoscopy with biopsy would be the most direct route to investigate the possibility of celiac disease. But if the physician is unwilling to provide a GI referral for that or if that means an endoscopy is...
  13. trents
    @AllyJR, older studies placed the likelihood of the first degree relatives of those with celiac disease also developing celiac disease at about 10%. Two more recent and large sample studies place it at almost 50%. There are likely multiple epigenetic factors involved in the development of active celiac disease, one of which may be the consumption of modern...
  14. trents
    Welcome to the forum, @Idnam! Ranitidine and Famotidine are not proton pump inhibitors. They are H2 blockers. It is true that histamine intolerance is common in the celiac population. We often don't produce enough of a histamine regulator called DAO (diamine oxidase). Not sure, but this may be due to damage to the gut lining by celiac inflammation...
  15. trents
    Welcome to the forum, @SB04! Let's cut to the chase. Did they run a tTG-IGA and a total IGA? Total IGA goes by many names but it checks for IGA deficiency. If you are IGA deficient, IGA test scores will be artificially low and it can result in false negatives. The tTG-IGA is the centerpiece of celiac disease antibody testing. Dermatitis herpetiformis...
  16. trents
    @ohmichael doesn't have an official diagnosis of celiac disease yet. That would need to happen if he were to pursue a disability claim.
  17. trents
    Welcome to the forum, @Olenaideole! There are phone apps that read product bar codes to check for gluten ingredients but they depend on user input maintained data bases so they are generally incomplete. There have also been pocket gluten detection meter gadgets available in the past but I'm not sure if any are still on the market. The main company...
  18. trents
    Welcome to the forum, @Gliadingoaway! You say you "avoided gluten for awhile". What was the timing of that with regard to when the biopsy and blood draw for the celiac antibody tests were done? If they coincided, that would explain the negative biopsy results and the mixed results in the blood antibody testing for celiac disease. Any testing for...
  19. trents
    Welcome to the forum, @Redlima! Not sure if this could relate to your issue but it is well-known by the celiac community that gluten has an opiate-like effect that causes some people to experience withdrawal symptoms upon going gluten free. This usually manifests itself within the first few weeks. So, I'm not sure that fits with your time frame. Also...
  20. trents
    Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check...
  21. trents
    Welcome to the forum, @Hope07! The reference range would refer to what is considered normal in healthy people. So, 7 or less would mean there is no indication of "active" celiac disease. Apparently, you are doing very will in avoiding gluten. The "Tissue Transglutaminase IGA" is the centerpiece antibody test that clinicians run when checking for...
  22. trents
    Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity).
  23. trents
    So, you are not IGA deficient. But as Russ H suggested, it looks like you may be a seronegative celiac.
  24. trents
    With regard to the Iga 106, is there a reference range given for that one?
  25. trents
    That's how I took it but I was confused because in your previous post you said of your biopsy, "and mine very much showed damage". In the celiac antibody panel that was ordered, was there a test for total IGA included, aka, "Immunoglobulin A (IgA)"? This one checks for IGA deficiency. IGA deficiency can result in false negatives for the IGA celiac antibody...
×
×
  • Create New...