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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Maybe you are allergic to the Simbicort. I would suggest talking to your physician about an alternative inhaler medication.
  2. trents
    Welcome to the forum, @Iris Kraft! Are you remembering to rinse your mouth out with water after using these inhalers?
  3. trents
    Sorry, I wish I had some good advice. When I make mistakes like this I get violently ill after about 2 hr. with intractable emesis for 2-3 hours, awful gut cramps, followed by several hours of diarrhea. I don't know of anything that really helps because I can't keep anything down.
  4. trents
    "Gluten-free" wheat starch flours are not new. The more sensitive subset of celiacs tend to still react to them because the processes they use to remove the gluten, which is the protein component of wheat, is not 100% efficient. That is, it removes most of the gluten, enough maybe to meet the less than 20ppm standard used by the FDA for gluten free food advertising...
  5. trents
    I am a celiac, officially diagnosed almost 25 years ago but I have laboratory evidence that the onset was at least 13 years prior to that when my liver enzymes became mildly but persistently elevated and there was no other explanation. My GI symptoms were relatively minor and back then they were only looking for classic GI symptoms when considering a diagnosis...
  6. trents
    Welcome to the forum, @VinnieVan! No, never heard it called that. What was the physician's racial/ethnic profile? IIRC, The connection between gluten and celiac disease was made during the WW2 era in Holland when the Germans blockaded a region along the Rhine River and the local populace did not have access to wheat flour. A local physician began to...
  7. trents
    Bone demineralization would not be detectable via bloodwork. It would require a DEXA scan. The body keeps calcium levels pretty constant in the blood and will rob it from the bones if necessary because it is such an important mineral for many metabolic processes.
  8. trents
    Low B12, low iron stores and low D all scream of celiac disease as opposed to NCGS! You would not have those deficiencies with NCGS because NCGS does not damage the villous lining of the small bowel. Of course, some or all of those deficiencies could be due to other medical conditions but the fact that you can't do gluten sure points to celiac disease. I...
  9. trents
    Welcome to the forum, @trachelospermum! There is really nothing I know of that will have a material impact on your suffering during this gluten challenge period. But I do question the wisdom of doing a gluten challenge after 30 years of being basically gluten free and at your stage of life. It is well-known that many celiacs find that there reaction...
  10. trents
    Welcome to the forum, @CarolTN! Can you give us some background? Have you been officially diagnosed with either celiac disease or dermatitis herpetiformis or both?
  11. trents
    @cam6, the problem I see with that is if multiple people call in an order around the same time using the name, "Gluten Allergy". You might get someone else's order.
  12. trents
    Recent research has shown that erythritol and xylitol likely increase the risk of cardiovascular events, due to causing platelet clumping, for higher risk people. This effect occurred when these sugar substitutes were used in concentrations commonly found in home made and commercially produced food products and may be a problem with other sugar alcohols as...
  13. trents
    Welcome to the forum, @Hocaco! First, we cannot comment with any certainty on your test values because you did not include the reference ranges for the test. There are no industry standards for the reference ranges and each lab constructs these tests a little differently. Second, recently updated "gluten challenge" guidelines recommend the daily...
  14. trents
    One thing to be aware of is that reactions to gluten can sometimes be more severe after having been gluten free for a significant period of time. Something to think about in connection with a gluten challenge.
  15. trents
    Welcome to the forum, @cococo! So. let me first clarify some terminology. Gluten intolerance is a general term that can refer either to celiac disease or NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity" for short). Having said that, in common, informal usage there is still a lot of mix up in the use of the terms "gluten sensitivity" and ...
  16. trents
    Were any other celiac antibody tests run besides the DGP-IGA? Was a total IGA test run to check for IGA deficiency? There are multiple IGA tests that can be run as well as several IGG tests when checking for celiac disease. The DGP-IGA test is helpful when diagnosing children whose immune systems are immature.
  17. trents
    I think we all wish that managing celiac disease was a simple as just avoiding gluten. And I think we all enter into the journey with that naive misconception. And for some, it is that simple. But for many, it is not. The same processes that resulted in the immune system misidentifying gluten as a threat opens the door for misidentifying other food proteins...
  18. trents
    The problem with oats is not necessarily cross contamination with gluten containing grains such as wheat, barley and rye. The problem, even with "certified gluten free" oats can be the oat protein avenin which is similar enough to gluten that it causes a "cross reaction" in about 8% of celiacs. Even a higher percentage of celiacs react to the protein...
  19. trents
    Welcome to the forum, @bpritch27! Is your daughter still consuming oats (even "gluten free" oats) and dairy?
  20. trents
    @Bernade, you might find this helpful. Ultimately, it would be up to the parents of the students in question to begin dialog with school officials and get the ball rolling. But perhaps you could could pass this information onto the parents somehow:
  21. trents
    Or, "vegetable fiber (from Australian plantago)".
  22. trents
    Do you have officially diagnosed celiac disease? Or are you not a celiac but gluten sensitive?
  23. trents
    Welcome to the forum, @Gluten Free Jeff! Are you asking this for yourself or for someone else say, as their parent?
  24. trents
    Welcome to the forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help:
  25. trents
    @ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two state...
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