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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Keep us posted as to your progress, Cathijean90.
  2. trents
    Okay, so, "make you feel poorly or experience poor health" then. Many celiacs in the early and middle stages of progression are not doing poorly. We call them "silent celiacs". They are largely asymptomatic.
  3. trents
    Welcome to the forum, @Lynda scott! Lynda, your sentence is a little awkward so could you provide some clarity? You say, "if I go out for bread it's what I choose as little gluten free choices". Are you speaking of going grocery shopping or going out to eat at a restaurant? You seem to be saying there are few gluten free choices but I am not sure...
  4. trents
    "no they didn't , but doesn't celiac make you really poorly ? This definitely isn't the case." Make you what poorly? @Sammy Web, I think you left out a key word there.
  5. trents
    Welcome to the forum, @Mettedkny! Your ttg-igg numbers are elevated but what about your ttg-iga numbers? Were your ttg-iga numbers elevated at your original diagnosis? The reason I ask is because elevated igg antibody test scores are more likely to be caused by something else besides a celiac reaction to gluten. The ttg-iga test is considered to be the...
  6. trents
    Thanks for reporting back @Nicbent35! You seem to understand the options and the risks. So, it is a decision you will just have to make. But you don't have to make it right away. You might consider keeping her gluten-free for a while yet. I would give it six months before considering adding gluten back in. Make sure the improvement you are seeing is due to...
  7. trents
    If you have been on a strict gluten-free diet for several years, it would be normal for testing to show no evidence of celiac disease. No gluten, no inflammation. No inflammation, no antibodies and healing of the small bowel lining would result. Personally, I think the doc gave you bad advice and I feel confident that trialing a return to gluten consumption...
  8. trents
    Welcome to the forum, @jkinloch! That is unusual because celiac disease is a genetically based autoimmune disorder. One the latent genes are triggered such as to produce active celiac disease they are "on" permanently. Celiac disease doesn't go away. But first, let's establish some fact-based history before we speculate any further about how this...
  9. trents
    Celiac disease does not damage the stomach. It damages the lining of the small bowel, the part of the intestines immediately below the stomach. Also called the duodenum. Do you know if biopsies were taken from this area to look for celiac disease?
  10. trents
    herminia, Omeprazole may mask some of the symptoms of celiac disease but it will not prevent the damage being done to the villous lining of your small bowel that defines the disease. You seem not to be taking that very seriously.
  11. trents
    Sammy, I have doubts as to whether you were eating enough gluten to render any of the celiac testing you had done valid. Recently revised guidelines for pretest celiac blood antibody analysis is the daily consumption of at least 10 g of gluten (about the amount found in 4-6 slices of wheat bread) for at least 2 weeks before the blood draw.
  12. trents
    From: https://en.wikipedia.org/wiki/Gluten "Gluten is a structural protein naturally found in certain cereal grains. The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily, that forms readily with the addition of water and often kneading in the case of bread dough. The types of grains that contain...
  13. trents
    The blistery rash is almost certainly dermatitis herpetiformis, a classic indicator of celaic disease and for which celiac disease is the only known cause. There really isn't much doubt that she has celiac disease given all the evidence so far.
  14. trents
    Looks like from your spellings ("coeliac"), expressions ("bloods" for blood tests) and the lack of timely communication and appointment availability that you must be in the UK. It must be very frustrating to have to deal with such a dysfunctional healthcare system. I hope I haven't offended you. In the UK and in Europe in general, there is trend for...
  15. trents
    I do not think that foregoing the biopsy when the ttg-iga is 10x normal has yet been adopted as a universal protocol in the U.S. We are not quite as far along on that one as they are in Europe I believe. One option is to trial a gluten free diet and then attempt a "gluten challenge" later on if for some reason it becomes important to distinguish between having...
  16. trents
    The EMA is an older test that isn't run so often any more. I think it was the original test developed to detect celiac disease. It's fairly expensive to run because, if I recall correctly, it requires mammalian organ tissue to execute. But when it is positive, it's a pretty safe bet that there is celiac disease. I would suggest discussing your options...
  17. trents
    Welcome to the forum, @lizzie42! Can you also supply the reference range for that celiac antibody test? Each lab uses its own reference ranges for the celiac antibody tests so we can't comment otherwise until we know. And was that the TTG-IGA? There is also a TTG-IGG celiac antibody test. There is a growing tendency for physicians to forego the endoscopy...
  18. trents
    If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it...
  19. trents
    Welcome to the forum, @Deb888! There is also the possibility that you do not have celiac disease but are gluten sensitive (NCGS or Non Celiac Gluten Sensitivity). They share many of the same GI symptoms but NCGS is 10x more common. There are no tests for it. Celiac disease must first be ruled out. Before the blood draw, had you already begun to...
  20. trents
    Yes, lectins can be problematic for some people. IGG testing can be used to detect celiac disease but not IGE. IGE antibodies have to do with allergic reactions and ceilaic disease is not an allergy, it is an autoimmune reaction. The IGG tests are not as reliable for detecting celiac disease as are the IGA tests but they can be be very helpful, particularly...
  21. trents
    Welcome to the forum, @Nstvns03! Immunoglobulin A Qn is not a test for celiac disease per se. It's what we commonly call "total IGA" and it is a test used to determine if there is IGA deficiency. If there is IGA deficiency, the individual IGA tests done to look for celiac disease are going to be artificially low and this can produce false negatives....
  22. trents
    Thanks for the information, knitty kitty. It helps bring some clarity and reduces the confusion that misinformation such as is contained in this thread title introduces into the community. People new to the celiac experience are already struggling to wrap their minds around not being able to eat just wheat, barley and rye any longer. We don't need to unnecessarily...
  23. trents
    I did some research on what exactly is gluten . . . what defines it. "The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily . . . " "The types of grains that contain gluten include all species of wheat (common wheat, durum, spelt, khorasan, emmer and einkorn), and barley, rye, and some...
  24. trents
    I think Scott speaks truth. And I think there is more to this than the prospect of her having celiac disease. If it wasn't this issue, I'm betting it would be another.
  25. trents
    If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
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