trents
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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by trents
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Yes, IMO, you need to quit and look for another job. You can't put a price on your health. It's unfortunate that your parents don't understand but they don't have to live with the ravages of unattended celiac disease. Sometimes you have to do what you have to do and just be willing to live with the fact that some people will not understand. I don't know your...
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CVS (Cyclic vomiting syndrome)
trents replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading... -
Welcome to the forum, @NightRaven92! The symptoms you describe definitely align with celiac disease or at least NCGS (Non Celiac Gluten Sensitivity). That, and the family history of celiac disease, certainly warrant being tested for it. The first stage of diagnosis involves blood tests looking for antibodies that are more or less specific to celiac disease...
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CVS (Cyclic vomiting syndrome)
trents replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Marky0320! Simple nausea and emesis is common with celiac disease when gluten is ingested but I have not heard of a connection between CVS and celiac disease per se. Are you asking this question as one who has already been officially diagnosed with celiac disease or as someone who is investigating the possibility of having celiac... -
Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
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@Tammy Rivard raises a good point, and it's the same one we face with regard to food. Companies can and do change their product formulations from time to time such that what once was gluten free no longer is and, for that matter, the opposite could be true as well. So, don't assume "once gluten free, always gluten free".
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Welcome to the forum, @Nattific! First, let's deal with terminology which can be very confusing because there is a great deal of inconsistency in how the terms associated with gluten disorders are used by lay people and even in the medical/scientific literature as well. Having said that, it is probably more accurate to use the term "gluten intolerance...
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Wheat flour is fortified with vitamins in the U.S. as a part of USDA policy. Gluten free facsimile products are not fortified. There is no government mandate for such. When you remove wheat flour by going gluten free, you may be removing a significant source of vitamins.
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Multivitamin products are seldom potent to offset the vitamin and mineral deficiencies that typically result from long term undiagnosed celiac disease. We commonly recommend sublingual B12, a B-complex 5-10k IU of D3, 400 mg daily of magnesium glycinate, and zinc picolinate. The forms of certain vitamins like magnesium and zinc are important since it has...
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Are you addressing possible/probable vitamin and mineral deficiencies through some serious supplementation?
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That's the spirit Beagirl!
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Welcome to the forum, @DanteZaffar! Are you still eating oats (even gluten free oats) and dairy? There are other foods besides those that contain gluten that can cause celiac-like reactions. We call this "cross reactivity" (not to be confused with cross contamination). Their proteins are similar enough in structure to gluten to trigger the same kind...
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EGD with flatten mucosa
trents replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific... -
GliadinX is such a product and many/some report it really helps. In the interest of disclosure, the company that produces it is one of our sponsors.
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Restaurants that offer gluten free no cross contamination
trents replied to Kenz's topic in Gluten-Free Restaurants
Welcome to the forum, @Kenz! Eating out is the number one threat to anyone with celiac disease. The best advice I can give is "don't"! Especially if you are supersensitive. The biggest problem isn't avoiding gluten in what you order but in how it is prepared and handled back in the kitchen where cross contamination can and does happen at multiple stages... -
Thanks for the clarification on the scope. This is what confused me, "gastro doc said from the biopsy there was mild atrophied villi but I know that could be from where the sample was taken and they could be gone not far away." I interpreted that to mean when the scope was done they didn't do a thorough job of checking the area that would be affected by celiac...
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You might be having trouble digesting meat because of the damage to your villi. But what about gallbladder problems? Were those burgers, even the turkey ones, greasy? The odd thing is the "peeing like a racehorse" after consumption. You say you have follow up GI appointment coming up. Please be aware if the GI doc wants to do an upper GI to specifically...
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Concerning dosage, I found this: https://patient-info.co.uk/sodium-feredetate-190-mg-5ml-oral-solution-88092/summary-of-medicine-characteristics Age 6 – 24 months: 12.5 mg Age 2 – 5 years: 20–30 mg Age 6 – 11 years: 30 – 60 mg But these dosages are in mg, not ml.
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It is "chelated" to improve absorption but not buffered from what I can tell. What she is taking is an appropriate pediatric iron supplement product. By the way, it is normal for iron supplementation to turn poo black. That is not a worry per se. But iron supplementation can cause an upset tummy. Iron can irritate the mucosal lining of the tummy...
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What iron product is she prescribed? Is it buffered? Has she had her B12 levels checked? B12 is necessary for the assimilation of iron.
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Found this: https://pubmed.ncbi.nlm.nih.gov/26830864/ Shows an association between rosacea and celiac disease as well as other autoimmune disorders.
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Welcome to the forum, @Nita hearn! It's interesting that you should ask this question. I just has an appointment with my dermatologist last week because I have developed a red rash on my cheeks and red bumps/pimples in the bridge of my nose. My wife was concerned that I might have developed rosacea, which she developed years ago. She's not a celiac but...
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Some might. Some might not. Why don't you try it? Taste is a very personal and individual thing. I don't know that anyone can speak for you.
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Welcome to the forum, @Thoas! Just curious. Why do you ask? Is there some reason you are hesitant to try it besides taste?
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Does Celiac disease affect blood pressure?
trents replied to Dorothy O.'s topic in Related Issues & Disorders
Malabsorption of vitamins and minerals from celiac disease tends to be global. So, if you are low in one or two things that have been tested, you are likely low in other vitamins and minerals as well. Routinely, we the admins on this forum recommend to those celiacs who were undiagnosed for years to supplement with sublingual B12, a high-potency B-complex...
