trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Gotcha! -
It is a biopsy but it's not a colonoscopy, it's an endoscopy.
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The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal...
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It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing...
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How long had you been practicing a reduced gluten diet by the time you had the blood draw?
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Thanks, Scott. I have that products containing lecithin have often disagreed with me.
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Keep us posted and let us know the results of the biopsy. Your case is atypical in a way in that you have this high DGP-IGA but normal TTG-IGA so knowing how it turns out will give us more data for similar situations that may be posted in the future.
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It would be helpful for this article to list by name common mono and diglycerides used in gluten-free food products.
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No, you don't necessarily need multiple testing methods to confirm celiac disease. There is an increasing trend for celiac diagnoses to be made on a single very high tTG-IGA test score. This started in the UK during the COVID pandemic when there was extreme stress on the healthcare system there and it is spreading to the US. A tTG-IGA score of somewhere between...
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The tests outlined in the article I linked are rated according to "sensitivity" and "specificity". Sensitivity refers to how well the test does in not missing those who actually have the disease being tested for, in this case, celiac disease. The DGP-IGA test is estimated to have a sensitivity of 75% to 95%. Specificity refers to how well the test...
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Welcome to the forum, @Jo Woodard! The problem with oats is not always cross contamination with gluten from other grains. The main protein found in oats is "avenin" and it has a structure similar to the wheat/barley/rye protein "gluten". It is similar enough to cause a gluten-like reaction in some celiacs. About 10% of celiacs cannot tolerate oats.
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You might find this interesting as it outlines the various antibody tests that can be ordered and rates them for their relative reliability: What symptoms do you experience and how long have you been experiencing them? Do you have any other blood work parameters that are out of range from say a CBC or CMP. For those with celiac disease, the immune system...
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Welcome to the forum, @Skg414228! You say that your DGP-IGA score is high and you give the absolute test score but you do not give the scale or units used by the lab doing the analysis so we cannot comment further on your conclusion. Different labs use different reference ranges for the same tests. There is no industry standard for these celiac antibody...
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This might be helpful to you at this point:
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But isn't it easier to just take a D3 supplement? Is the D light somehow a superior source? Links?
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Do I really need to get a biopsy?
trents replied to Ryangf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Ryangf! If you don't have celiac disease you could still have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms but NCGS does not damage the lining of the small bowel as does celiac disease. Some experts feel NCGS can be a precursor to the development of celiac disease. NCGS is 10x more common than celiac... -
Less than 10 parts per billion issues
trents replied to Hauama's topic in Gluten-Free Foods, Products, Shopping & Medications
I have no specific recommendations but I would suggest looking for products that are advertised as produced in a dedicated gluten-free facility. That should eliminate one possible route of cross contamination. It doesn't guarantee that none of the ingredients going into the product are totally gluten free but is should eliminate adding more CC to the mix... -
COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk
trents commented on Scott Adams's article in Latest Research
I found this article interesting. It mentions "autoimmunity" as one of the possible contributing factors to those who experience chronic health problems following vaccinations, particularly COVID vacs. https://www.foxnews.com/health/scientists-find-clues-covid-vaccine-causes-chronic-health-problems -
Years of testing - no real answers
trents replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for following up with us on the results. This might be helpful to you now: -
The tTG-IGA is considered the centerpiece of celiac disease blood antibody testing. Your test results exceed 10x normal range so you could be officially declared to have celiac disease without going through an endoscopy/biopsy of the small bowel lining. As you used the term "bloods" to refer to your antibody testing, I am assuming you live in the UK and it...
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@KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of...
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Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
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@GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
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Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important...
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The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a...
