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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries? As you probably know, celiac disease damages the lining...
  2. trents
    Welcome to the forum, @RobHicks! Actually, celiac disease damages the upper part of the small bowel rather than the stomach. It's the part of the intestine right below the stomach. Since being diagnosed, have you had a follow-up endoscopy with biopsy to check to see if there is good healing in the small bowel lining since beginning the gluten free...
  3. trents
    I have concern as well about the long term use of any PPI. I understand it was given to you to address the GERD but PPIs were never intended to be long term solutions. Yet, docs prescribe them like candy and never monitor for the ongoing need. They just leave people on them indefinitely which has long term negative health consequences from raising gut PH...
  4. trents
    My wife just brought home some Wendy's canned chili from Costco. I've eaten it at Wendy's and it's on their menu there as gluten free. However, it's not stated as such on the can. On the other hand, wheat is not in the allergen list on the can.
  5. trents
    There are other possible causes or damaged small bowel villi besides celiac disease. Google this: Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies There is also something known as seronegative celiac disease: https://pmc.ncbi.nlm.nih.gov/articles/PMC4586545/
  6. trents
    Thanks for the additional info, @TerryinCO. Can you give the reference ranges for the celiac antibody tests. The scores you posted are not of much value without reference range numbers since there are not industry standards for these tests as far as the the scales they use. What they are testing for is the same but how they concoct the tests is a little different...
  7. trents
    Welcome to the forum, @TerryinCO! Do you know what blood tests were ordered? Was it for like you would have done for an annual physical (CBC/CMP) or celiac disease specific antibody tests? I find it interesting that your GI doc did the endoscopy and biopsy before he/she ordered blood tests to check for celiac disease, assuming the blood tests ordered...
  8. trents
    Although I disagree with interjecting the element of dermatitis herpetiformis since this is not a real issue for the OP, I think Rogo72 gives good advice about how to navigate social situations as a celiac when finding yourself in unsympathetic company. It requires developing somewhat of a tuff skin and holding your ground in order to be safe. The psychology...
  9. trents
    knitty kitty makes a good point. Avocados are high in histamines. So are bananas. Both also trigger histamine production in the body when consumed so there's a double whammy with those two foods for those struggling with histamine intolerance/MCAS
  10. trents
    Roman Catholic theology requires bread made from wheat to be used in the eucharist. Therein lies the problem.
  11. trents
    @SaiP, why are you using white rice in instead of whole grain rice or even brown rice?
  12. trents
    This article strongly suggests what the celiac community already knows but what the medical community at large has been slow to catch on to and that is, celiac disease has long systemic fingers. Glutengek, I like your idea about a "celiac syndrome".
  13. trents
    Have you and you and the children's father been tested?
  14. trents
    Since she is asymptomatic and her first biopsy was negative I would not assume she has developed celiac disease. If her upcoming biopsy shows evidence of mucosal damage you have the firm evidence you need to trigger the gluten-free protocol at the preschool. There are other causes for mildly elevated tTG-IGA levels besides celiac disease. Studies are all...
  15. trents
    @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
  16. trents
    Since your mother has celiac disease, I would still keep an eye on this as there is a genetic component. Study results vary wildly, but the numbers are that anywhere from 10% to almost 50% of the first degree relatives of those with active celiac disease will themselves develop celiac disease.
  17. trents
    Rogol72, your recommendation to the OP to "show them pictures of dermatitis herpetiformis" confuses me as the OP does not mention having dermatitis herpetiformis.
  18. trents
    So, you have three symptoms of a gluten-related disorder: weight loss, brain fog and lose stools. Of the three, the lose stools that firm up when you cut back on gluten is the only symptom for which you have reasonable cause to assume is connected to gluten consumption since the other two persist when you cut back on gluten. But since you do not have any...
  19. trents
    Welcome to the forum, @AndiOgris! Recently upgraded guidelines for the "gluten challenge" recommend the daily consumption of at least 10g of gluten for at least 2 weeks to the day of testing to ensure valid testing, either for the antibody testing or the endoscopy/biopsy. 10g of gluten is roughly the amount found in 4-6 slices of wheat bread. So...
  20. trents
    Do you mean that your stools firmed up when you began to cut gluten from your diet?
  21. trents
    No, I have not before encountered reports of insomnia connected with gluten withdrawal. You did not answer a question from my original post. Are you officially diagnosed or self-diagnosed with celiac disease? Were you diagnosed with just antibody testing or both antibody testing and endoscopy/biopsy?
  22. trents
    My concern about the nutrition robbing potential of so much white rice consumption is coupled with the knowledge that when you remove wheat and other common cereal grain flours from your diet you are likely doing away with considerable vitamin supplementation. In the U.S. at least, common cereal grain flours are required to be fortified with vitamins and...
  23. trents
    Gluten withdrawal is no different than any withdrawal from any other additive substance like opiates or nicotine. In case you aren't aware of it, wheat has additive properties similar to opiates. So, there is a dependency that develops. When you take the additive substance away, the body cries out for it in some way but if you continue to deprive the body...
  24. trents
    You are not alone, sillyyak52! Many on this forum have shared similar experiences. I expect you can relate to this: All of us probably have experiences in life where we can't relate to what others are having to cope with and just can't understand why they just don't buck up. We haven't walked a mile in their shoes. Hopefully, in time our own experiences...
  25. trents
    Welcome to the forum, @SaiP! Have you been officially diagnosed with celiac disease or are you self-diagnosed? What is your average calorie intake per day? Your diet seems to be low in carbohydrates. The only carbohydrate rich food in your list is the white rice. A snack high in simple carbohydrates before retiring for bed at night may help with...
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