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trents

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Everything posted by trents

  1. trents
    This. How long has it been since you were tested for celiac disease?
  2. trents
    You have been doing all the right things to manage your celiac disease since diagnosis so what would you have changed? Perhaps the only negligence was not seeking follow-up testing sooner and more regularly. But even then, what would you have done differently as far as the day to day management of your celiac disease? I assume you realize that when something...
  3. trents
    No, one crumb from a month before the blood test would not materially affect the results of the test. I sense you are devoting a lot more "worry energy" to this than it deserves. That will do you more harm than a tick over normal on the TTG-IGA score.
  4. trents
    The do what? Give you a gluten-like reaction you mean?
  5. trents
    Different labs use different reference ranges for celiac-related tests. They concoct the tests a little differently in each place so the ranges are custom. So, I would trust the lab that analyzed the test and not google.' All celiac diagnostic tests are less than 100% specific. That is to say, there are other medical conditions, some medications, some...
  6. trents
    Welcome to the forum, @PA Painter! Are the oats you are using either gluten free or GFCO certified gluten free? It is not well-known but there are certain cultivars of oats that contain gluten. If you are using mainstream food industry oat brands there are two threats: 1. cross contamination from other grains containing gluten in the fields, in...
  7. trents
    First, the IGA score of 415 probably refers to what we call "Total IGA" rather than a specific IGA test for celiac disease per se. Physicians should always order this test along with other IGA tests to look for IGA deficiency. Total IGA checks for IGA deficiency. If you are IGA deficient, then other IGA tests will be artificially low and false negatives can...
  8. trents
    Well come to the forum @AdelaW! One positive celiac blood antibody test with flattened villi in the small bowel would strongly support a diagnosis of celiac disease. There are some other medical problems that could cause these things but the odds of this being the case are very small when compared to the likelihood of celiac disease being the culprit...
  9. trents
    This may help you get off onto the right foot: There usually is quite a learning curve involved in attaining to consistency in gluten free eating. Attaining a "low gluten" diet is easy because you simply cut out the obvious things like bread and pasta. It's the places gluten is found in the food industry that you would never expect that trips up newbies...
  10. trents
    Welcome to the forum, @kim91380! A little education perhaps is in order here. I hope you aren't offended. The tests don't measure blood levels of gluten but the blood levels of the antibodies produced by the immune system as it attacks the gluten that comes in contact with the cells that line the small bowel. So, as we eliminate gluten from the diet...
  11. trents
    Guest, thanks for the clarification. I think I understand your point now. Yes, I realize gluten can produce non Gi Reactions. Let us know if you find out that there is gluten in these inhalers. I have my doubts but gluten does show up in strange places. It could also be manufacturer dependent of these inhaler products are generic.
  12. trents
    I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this...
  13. trents
    There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
  14. trents
    Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers.
  15. trents
    I don't mean to be an ogre but this thread would seem to be unrelated to gluten/celiac/NCGS issues. Is there another health-related online community that might be more appropriate and more helpful to those experiencing these reactions to inhaler use?
  16. trents
    A Chipotle will be opening in our small town this month and I am excited. I probably will not use it often but it is a reasonable fast food option for me when family wants to do fast food. I am not supersensitive.
  17. trents
    Nonetheless, unless you are a supersensitive celiac, Chipotle would seem to be one of the better options when you must eat out. I'm not suggesting that any celiac, supersensitive or not, should ignore cross contamination issues but sometimes you are in situations where you have to make choices between options that are less than perfect.
  18. trents
    Have you looked into SIBO (Small Intestine Bacterial Overgrowth)? Also, MCAS (Mast Cell Activation Syndrome)/histamine intolerance (they go together like a hand and glove). Both of the above are common in the celiac community.
  19. trents
    The problem with dairy isn't necessarily lactose which is the sugar component. It can be but the other issue and the more serious one from the standpoint of celiac disease is the protein casein. It can damage intestinal mucosa just like gluten. https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/
  20. trents
    Welcome to the forum, @Rhenriksen! A few thoughts. First, learning to eat truly gluten free is a real learning curve for most people because of all the ways gluten is hidden in the food supply that you would never expect and because of cross contamination. If you are still eating out you are almost guaranteed to be getting glutened through cross...
  21. trents
    Okay, then. It definitely looks like TTG-IGA to me and your score far exceeds the 10x or greater that is becoming the new standard for official celiac disease diagnosis criteria without biopsy. Talk to your physician about this.
  22. trents
    Do you have a reference range for the Serum Tissue Transglutimate? Different labs used different reference ranges so just giving the raw score of >100 is necessarily helpful. And the terminology they employed for that one is unusual. So, I'm not sure if they are referring to what we call "total IGA" or what we abbreviate normally as TTG-IGA? I think it...
  23. trents
    Welcome to the forum, @alannahP! Excellent question but I don't know that I have ever seen any TTG-IGA score be "0". But then again, I only see TTG-IGA scores of people who have celiac disease. It would be interesting to know if people who don't have celiac disease would necessarily have a "0" TTG-IGA score or if a very low TTG-IGA score is normal for...
  24. trents
    Perhaps the sorghum was cross contaminated with a gluten containing grain in the field or in harvesting, transport, storage or processing. Or it could be that something other than gluten is causing a gluten-like reaction when you consume sorghum. But the fact is, the protein component of sorghum is different than gluten. Gluten is found only in wheat, barley...
  25. trents
    In some countries, like the UK, there are tangible benefits to having an official celiac diagnosis such as government stipends to offset the cost of gluten free food and supplemental follow-up care. Also, some people find it difficult to stay on the gluten free bandwagon without an official diagnosis. But I hear you. If the toll on your health and livelihood...
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