trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Years of testing - no real answers
trents replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, you may not have been consuming enough gluten to result in valid testing. -
Years of testing - no real answers
trents replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Kiwifruit! Were you on a reduced gluten diet when those blood tests or the biopsies were done? -
ABP2025, there are no definitive diagnostic tests for NCGS. It is arrived at by first ruling out celiac disease despite continuing symptoms from gluten ingestion.
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Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
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I'll ask the same question that knitty kitty asked? On what basis did your Dr arrive at the conclusion that you have gluten intolerance? But let's be clear about terminology because the terms "gluten intolerance" and "gluten sensitivity" are typically used interchangeably out there in the wild and both are used indiscriminately to speak of two different...
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What medicine did they give you for migraines? Does it help much? I also suffer from migraines and am on one med for prevention and another for relief after onset. Many times, my headaches start during the night when I'm sleeping but not always. Have you cut back on gluten consumption of late? As knitty kitty explained, you must have been eating generous...
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Early on, DQ2 and DQ8 were the primary genes that have been connected to the potential to develop celiac genes but more recent genetic research suggests there may be more.
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Go to the main web site home page: celiac.com. You can type "celiac.com" into the internet browser address window and hit enter. That will take you to the web site home page. Then click on the "Forums" tab (I have circled it for you in the attached pic). Scroll down the page and choose a topic appropriate for your issue and click on it. You can create a new...
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Eating out at restaurants is the single most risky environment for cross contamination. Shared oven racks should be thoroughly cleaned after being used for cooking/baking of gluten containing foods. Better yet, purchase a second set of racks that are used only for one or the other.
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I would say the tTG-IGA would be sufficient.
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Is there a particular reason you created a blog for this topic rather than posting your question in one of the regular forum topic sections where it will get more eyes?
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By specificity, it's not so much that elevated dgp-igg can be caused by other diseases but that it can be a false positive or a transitory immune system reaction to gluten. I believe it can also point to NCGS or a transition from NCGS to celiac disease in some cases. Some experts feel that NCGS can be a precursor to celiac disease. If biopsies are negative...
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From your first post, tests 1-4 are individual antibody tests used to detect celiac disease. #5 is what we call "total IGA" which is used to check for IGA deficiency. If a person is IGA deficient, it can skew their individual IGA test scores down toward the negative range and generate false negatives. You are not IGA deficient. Test #4 from your first post...
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Being a burden to family/friends
trents replied to DayaInTheSun's topic in Coping with Celiac Disease
Let me "ditto" Cristiana's welcome to the forum, @DayaInTheSun! Many in this online family can identify with your struggle. With all of your food sensitivity/intolerance issues you probably should research MCAS (Mast Cell Activation Syndrome) and consider a low histamine diet. -
Most recent guidelines recommend at least 10g of gluten daily for at least 2 weeks daily leading up to the day of the test. 10g of gluten is roughly the amount found in 4-6 slices of wheat bread. Personally, to be sure you will produce valid test results I would extend the "gluten trial" period from two weeks to four weeks.
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How to Transition to a Gluten-Free Diet: A Step-by-Step Guide (+Video)
trents commented on Scott Adams's article in Celiac Disease Basics
Two weeks would be the minimum. I would start now to ensure valid test results. Yes, earlier guidelines for the amount of gluten consumption for the "gluten challenge" leading up to testing are now considered to have been on the deficient side. The trend is to recommend higher amounts. The trend in thinking seems to be moving from low amounts spread over... -
Was the blood draw made while you were still consuming regular amounts of gluten and had been doing so for at least a period of months? Getting blood antibody tests after already having embarked on a gluten free diet or even limiting gluten consumption will invalidate testing.
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Yeah, it's just a marketing ploy.
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"Yet another watered down certification that is really no better than basic FDA gluten free labeling." My thoughts exactly. And the staff person responding to you needs to take a refresher course in English grammar: "products that has low risk" and "Also, they submit a gluten free test results for the possible gluten residue." I'm not impressed with...
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@gfreenc, there is no gluten in milk, whether human or bovine. Gluten is a protein in certain grains but it is broken down into various amino acids during digestion before it gets into the bloodstream and thus it will not wind up in milk.
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I would agree. The tests do not indicate you have celiac disease. So, if you are convinced that when you eliminate gluten from your diet your symptoms improve, I would conclude you have NCGS.
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So it sounds like Global Foods has adopted the FDA standard for "gluten free" advertising.
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Never heard of them. They give an email address so if I were you I would contact them and ask those questions. It would be wonderful if they had tighter requirements than GFCO in the sense of more frequent batch testing and even random testing. Recent news articles on this forum from back in this summer have revealed that GFCO is letting us down.
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How to Transition to a Gluten-Free Diet: A Step-by-Step Guide (+Video)
trents commented on Scott Adams's article in Celiac Disease Basics
Yes, if you reduce gluten intake the inflammation of the small bowel lining begins to subside, the damage begins to heal, and the villous lining of the small bowel beings to rebuild itself. If there is no inflammation, there are no new antibodies being produced and the antibody level eventually begins to drop below detectable levels. And if you were to go... -
How to Transition to a Gluten-Free Diet: A Step-by-Step Guide (+Video)
trents commented on Scott Adams's article in Celiac Disease Basics
Welcome to the forum @DonnaKEllis! Actually, a colonoscopy cannot be used to diagnose celiac disease. Celiac disease typically damages the lining of the small bowel, the portion of the intestines immediately below the stomach. A colonoscopy cannot reach up that far. They use an endoscopy to diagnose celiac disease. But that is usually the second stage...
