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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Only if symptoms occur? But what if your son is a silent celiac? And let him eat once in a while? How often is once in a while? And if only very occasionally, what is the benefit of it from a carb standpoint? There is some inconsistency here. And if more often than occasionally, it will do damage to his small bowel lining that will eventually cause health...
  2. trents
    For a person with celiac disease, every time wheat is consumed it generates inflammation in the lining of the small intestine. This is not just an irritation reaction like a hot spice might produce, it is an autoimmune reaction where the body is attacking its own tissues. If this happens frequently over time it will trash the villous lining of his small bowel...
  3. trents
    http://celiacindia.org.in/about-celiac-disease/celiac-disease/prevalence/ The incidence of celiac disease in India is the same as in the West. There has been a dramatic increase in the diagnosis of celiac disease in the past 30 or so years in developed countries. This has coincided with the development of good diagnostic tools and greater awareness and...
  4. trents
    The onset of celiac disease can happen at any stage of life. And I don't think wheat is any less a part of the typical American diet than it is in India. But it may be true that we probably introduce wheat later into the diet after birth in the West than is common in India. I'm not sure it is accurate to say that having Asian genes affects the diagnostic...
  5. trents
    This article might be helpful to you as you begin your gluten free journey.
  6. trents
    With the passage of time after going gluten free, we tend to react more intensely when we do get glutened. We eventually lose all tolerance to it that we may once have had when consuming it regularly.
  7. trents
    Welcome to the forum, @mswhis! They may be related in the sense of both are autoimmune disorders and autoimmune disorders tend to cluster. If you have an autoimmune disorder, you are likely to develop others. But I would hesitate to say there is a cause and effect relationship between the two or that gluten could be contributing to your IC. It is certainly...
  8. trents
    Wheatwacked, did you mean to say, " . . . and not eating gluten is probably the biggest mistake of our lives"?
  9. trents
    In the UK and some other nations there is an increasing tendency for doctors to forego the endoscopy/biopsy if the ttg(IGA) is 10x normal range or greater. Your son's score easily exceeds that. There is only a 5% chance that his elevated ttg(IGA) levels are caused by something other than celiac disease and not more than a 10% chance that his elevated ttg...
  10. trents
    If the purpose of the endoscopy is to check for celiac disease they will take biopsies of the small bowel lining. But not all endoscopies are done for that purpose. You would need to be clear about the purpose of the endoscopy with the doctor ordering it.
  11. trents
    Before I comment, please supply the ranges used by the lab for negative vs. positive for both the ttg(IGA) and the ttg(IGG). Different labs use different ranges. There is no industry standard. Please supply this in a new post as you likely will not be able to edit your existing post.
  12. trents
    Welcome to the forum, @Dhruv! Many with celiac disease are asymptomatic. We call them "silent" celiacs. That doesn't mean they will always be asymptomatic, however. It could just mean their physical constitutions are stronger and providing more resistance to damage. Eventually, it will catch up to them if they continue to consume gluten and they will...
  13. trents
    I assume you were on antibiotics for the E-coli infection? C-diff almost always is the result of prolonged and/or repeated antibiotic treatment. And there is a growing consensus that celiac disease is connected with gut dysbiosis which in turn is likely connected with first world overuse of antibiotics, preservatives and carbohydrate intensive/low nutrient...
  14. trents
    To simplify this for you, there are two primary genes that have been linked to the potential for developing celiac disease, HLDQ2 and HLDQ8. You have one of them. This means you have the potential to develop celiac disease. It does not mean you have celiac disease or will develop celiac disease. It just means you have the potential to do so. Almost 40% of...
  15. trents
    knitty kitty, are you IGA deficient? I'm wondering if seronegative IGA celiacs will also be necessarily IGA deficient.
  16. trents
    You still may have NCGS. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac...
  17. trents
    Welcome to the forum, @jmiller93! What was the range used by that lab to establish positive vs. negative? Different labs use different ranges. There is no industry standard. But the number is low enough to suggest a negative test result for the tTG-IGA. That one is actually an antibody test used to detect celiac disease. The other one, the "IGA" at ...
  18. trents
    I do not think allergy testing requires you to have been consuming allergens in proximity to the testing. The testing itself supplies the allergens. There are two kinds of allergy testing that can be done. One is the skin prick panel and the other is serological. I've had both done. There is a lot of skepticism in the medical community with regard to allergy...
  19. trents
    Welcome to the forum, @damnyoureyes! Your elevated serum B12 levels are because you supplemented with B12 and would not be due to malabsorption from celiac disease. Malabsorption from celiac disease would give the opposite effect. Were you ever tested for B12 serum levels before you started supplementing with B12? I understand you were trying to find...
  20. trents
    Welcome to the forum, @Pua! Yes, many, many forum participants have been in this same boat. That is, suspecting celiac disease and testing the waters by going gluten free but then realizing they undermined the ability to bet tested for it by doing so. It's a very common mistake??? but a completely understandable decision making sequence. The symptoms...
  21. trents
    Welcome to the forum, @MomofGF! I know you said you are not looking for a dx but the symptoms you describe scream of celiac disease as opposed to NCGS (Non Celiac Gluten Sensitivity). Celiac disease does not damage the stomach lining but rather the lining of the small bowel, i.e., the intestinal area right below the stomach. This is the area where...
  22. trents
    Holli Madsen, be aware that it can be difficult to wean off of PPIs once you have been on them for an extended period of time. There is typically a rebound of GERD when going off after being on them for long periods of time. They are designed to be a short term remedy to be taken for weeks but many physicians put their patients on PPIs and leave them on for...
  23. trents
    Many celiacs are what we call "silent". That is, they don't have classic GI symptoms but begin developing other medical problems such as you describe with your husband. Also, it is unfortunate that many doctors, and in some cases their hands are tied by stingy healthcare system protocols, do bare minimum testing for celiac disease which would consists...
  24. trents
    Even though you were tested for celiac disease at 20 and it was negative, you can develop celiac disease at any stage of life. Developing active celiac disease requires to elements. The first element is the genetic potential. There have been two primary genes connected to the development of celiac disease, HLDQ 2 and HLDQ 8, and some secondary variant...
  25. trents
    Check my last post as I added some to it.
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