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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    What I liked: 1. Narrator had a good, clear speaking voice and smiled pleasantly. 2. Good practical information that was logically organized and succinct. What I didn't like: 1. Narrator was obviously reading from a teleprompter script, including topic headers, which seemed very wooden and unnatural. Almost like listening to a Joe Biden...
  2. trents
    This might be helpful as well:
  3. trents
    Welcome to the forum, Brianne03! It is relatively easy, as you have discovered, to identify gluten-free products when considering only intentional ingredients but it can be much more difficult or impossible to get definitive answers about cross contamination. Does your daughter fall into the supersensitive category of celiacs? That is, does she have...
  4. trents
    Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful: It is good that you have identified some other foods that you cannot tolerate at this point as this is so common...
  5. trents
    What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about...
  6. trents
    Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing...
  7. trents
    Not being able to implement all elements of a discipline does not necessarily mean going through with the rest of it will not benefit you.
  8. trents
    The problem with declaring something to have "zero parts gluten" is that we do not have detection technology capable of detecting gluten concentrations below a certain level. I think maybe 5 ppm may be the practical limit.
  9. trents
    Do you get an annual physical with bloodwork as part of your healthcare benefits? If so, kidney function tests are usually part of the CMP (Complete Metabolic Panel).
  10. trents
    Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity...
  11. trents
    I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
  12. trents
    Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
  13. trents
    Any testing for celiac disease done while on a gluten free or even a restricted gluten diet will not be valid. The blood antibody tests for celiac disease are designed to detect specific kinds of antibodies produced by the inflammation in the small bowel lining produced by gluten ingestion so when you remove gluten or restrict it you eliminate or reduce the...
  14. trents
    Although genetic testing cannot be used as a stand alone diagnostic measure, it can serve as corroborative evidence to support a diagnosis of celiac disease when considered together with symptoms, particularly when withdrawal of gluten results in dramatic improvement in symptoms. This may be the best course of action in cases where health risks make the gluten...
  15. trents
    Welcome to the forum, @gemknorodo! In your post you actually mention two antibody tests that are commonly run when checking for celiac disease. The first is the TG-IgA. You do not give a score for that one. The second one is the Immunoglobulin A for which you scored 3.06. This is above the normal range. This test is also commonly known as ...
  16. trents
    Pua, do you understand that genetic testing cannot be used as proof of having celiac disease as it only establishes the potential to develop active celiac disease? About 40% of the population has the genetic potential to develop active celiac disease but only about 1% actually develop it. However, it can be used as a rule out measure.
  17. trents
    Welcome to the forum, @Marilyn1941! As Wheatwacked explained, we need more information. There are a number of blood antibody tests that can be run to detect celiac disease. Some are more meaningful than others in the sense of positive results being due to celiac disease or possibly due to something else. So, knowing exactly what test the score you gave...
  18. trents
    "She regularly used approved unpaid leave and ADA accommodation days when she experienced health flare-ups, particularly after incidents of gluten contamination, which worsened her condition." Though this happens at least occasionally to most celiacs, even the most diligent, I wonder how consistent she was with her gluten free diet.
  19. trents
    Here is an excerpt from this article: https://pmc.ncbi.nlm.nih.gov/articles/PMC82695: Studies have shown that various peptidases of fungal, plant, animal, or bacterial origin are able to hydrolyze gluten into harmless peptides. According to SDS‐PAGE pattern, proteolytic enzymes hydrolyze gliadins (Heredia‐Sandoval et al., 2016; Scherf et al., 2...
  20. trents
    Scott, could you elaborate on hydrolyzed wheat? Does that remove or deactivate the gluten protein?
  21. trents
    Welcome to the forum, @Patrick-Tyler! I think most of us are at least a little nervous about eating at fast food restaurants, even McDonalds, who claims to offer gluten-free fries. What does that mean? Only that gluten is not an intentional ingredient or does it also mean the fries are cooked in a dedicated frier? This has long been a question kicked...
  22. trents
    No, I don't know of anyone in particular. But if you are consuming gluten regularly, it would be a great time to get antibody testing done for celiac disease. Many celiacs are of the "silent" type. That is, even though slow damage is being done to the lining of their small bowel, they are largely asymptomatic and remain that way sometimes for years until...
  23. trents
    Thanks for getting back to us Geordie. From time to time we do get reports of what seems like remission from those who have been diagnosed with celiac disease but it doesn't always last. I don't recall you saying you have been diagnosed with celiac disease, but just having various food intolerances and also implying in your last post that these intolerances...
  24. trents
    I understand from one of our forum moderators who is UK-based that the benefits of having an official celiac diagnosis varies depending on your postal code. So then, it must be a benefit tied to local government rather than national government.
  25. trents
    Obviously, you have looked at all this from various angles and I respect that. But consider this, you could trial the gluten-free diet for six months to see if it results in lower ttg-iga scores. If so, it is another piece of evidence pointing to celiac disease. You could then go off the gluten fast and return to a gluten loaded diet for weeks or months and...
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