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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, @Patrick-Tyler! I think most of us are at least a little nervous about eating at fast food restaurants, even McDonalds, who claims to offer gluten-free fries. What does that mean? Only that gluten is not an intentional ingredient or does it also mean the fries are cooked in a dedicated frier? This has long been a question kicked...
  2. trents
    No, I don't know of anyone in particular. But if you are consuming gluten regularly, it would be a great time to get antibody testing done for celiac disease. Many celiacs are of the "silent" type. That is, even though slow damage is being done to the lining of their small bowel, they are largely asymptomatic and remain that way sometimes for years until...
  3. trents
    Thanks for getting back to us Geordie. From time to time we do get reports of what seems like remission from those who have been diagnosed with celiac disease but it doesn't always last. I don't recall you saying you have been diagnosed with celiac disease, but just having various food intolerances and also implying in your last post that these intolerances...
  4. trents
    I understand from one of our forum moderators who is UK-based that the benefits of having an official celiac diagnosis varies depending on your postal code. So then, it must be a benefit tied to local government rather than national government.
  5. trents
    Obviously, you have looked at all this from various angles and I respect that. But consider this, you could trial the gluten-free diet for six months to see if it results in lower ttg-iga scores. If so, it is another piece of evidence pointing to celiac disease. You could then go off the gluten fast and return to a gluten loaded diet for weeks or months and...
  6. trents
    I'm wondering if you are possibly on the cusp of developing celiac disease. It would be interesting to see what would happen to your ttg-iga levels if you were to commit to eating gluten free for six months and then have them checked again. When ttg-iga levels are elevated, there is only a 5% chance it could be due to something besides celiac disease.
  7. trents
    So, let me seek some clarification here. You have not been officially diagnosed with celiac disease. Even though you had elevated ttg-iga levels on three different occasions your endoscopy/biopsy in 2021 was negative so the conclusion was that you do not have celiac disease so you have continued to consume gluten. Is this correct? However, you have...
  8. trents
    Are you following a strict gluten-free diet? When you refer to ttg I assume you mean ttg-iga and not ttg-igg?
  9. trents
    Only if symptoms occur? But what if your son is a silent celiac? And let him eat once in a while? How often is once in a while? And if only very occasionally, what is the benefit of it from a carb standpoint? There is some inconsistency here. And if more often than occasionally, it will do damage to his small bowel lining that will eventually cause health...
  10. trents
    For a person with celiac disease, every time wheat is consumed it generates inflammation in the lining of the small intestine. This is not just an irritation reaction like a hot spice might produce, it is an autoimmune reaction where the body is attacking its own tissues. If this happens frequently over time it will trash the villous lining of his small bowel...
  11. trents
    http://celiacindia.org.in/about-celiac-disease/celiac-disease/prevalence/ The incidence of celiac disease in India is the same as in the West. There has been a dramatic increase in the diagnosis of celiac disease in the past 30 or so years in developed countries. This has coincided with the development of good diagnostic tools and greater awareness and...
  12. trents
    The onset of celiac disease can happen at any stage of life. And I don't think wheat is any less a part of the typical American diet than it is in India. But it may be true that we probably introduce wheat later into the diet after birth in the West than is common in India. I'm not sure it is accurate to say that having Asian genes affects the diagnostic...
  13. trents
    This article might be helpful to you as you begin your gluten free journey.
  14. trents
    With the passage of time after going gluten free, we tend to react more intensely when we do get glutened. We eventually lose all tolerance to it that we may once have had when consuming it regularly.
  15. trents
    Welcome to the forum, @mswhis! They may be related in the sense of both are autoimmune disorders and autoimmune disorders tend to cluster. If you have an autoimmune disorder, you are likely to develop others. But I would hesitate to say there is a cause and effect relationship between the two or that gluten could be contributing to your IC. It is certainly...
  16. trents
    Wheatwacked, did you mean to say, " . . . and not eating gluten is probably the biggest mistake of our lives"?
  17. trents
    In the UK and some other nations there is an increasing tendency for doctors to forego the endoscopy/biopsy if the ttg(IGA) is 10x normal range or greater. Your son's score easily exceeds that. There is only a 5% chance that his elevated ttg(IGA) levels are caused by something other than celiac disease and not more than a 10% chance that his elevated ttg...
  18. trents
    If the purpose of the endoscopy is to check for celiac disease they will take biopsies of the small bowel lining. But not all endoscopies are done for that purpose. You would need to be clear about the purpose of the endoscopy with the doctor ordering it.
  19. trents
    Before I comment, please supply the ranges used by the lab for negative vs. positive for both the ttg(IGA) and the ttg(IGG). Different labs use different ranges. There is no industry standard. Please supply this in a new post as you likely will not be able to edit your existing post.
  20. trents
    Welcome to the forum, @Dhruv! Many with celiac disease are asymptomatic. We call them "silent" celiacs. That doesn't mean they will always be asymptomatic, however. It could just mean their physical constitutions are stronger and providing more resistance to damage. Eventually, it will catch up to them if they continue to consume gluten and they will...
  21. trents
    I assume you were on antibiotics for the E-coli infection? C-diff almost always is the result of prolonged and/or repeated antibiotic treatment. And there is a growing consensus that celiac disease is connected with gut dysbiosis which in turn is likely connected with first world overuse of antibiotics, preservatives and carbohydrate intensive/low nutrient...
  22. trents
    To simplify this for you, there are two primary genes that have been linked to the potential for developing celiac disease, HLDQ2 and HLDQ8. You have one of them. This means you have the potential to develop celiac disease. It does not mean you have celiac disease or will develop celiac disease. It just means you have the potential to do so. Almost 40% of...
  23. trents
    knitty kitty, are you IGA deficient? I'm wondering if seronegative IGA celiacs will also be necessarily IGA deficient.
  24. trents
    You still may have NCGS. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac...
  25. trents
    Welcome to the forum, @jmiller93! What was the range used by that lab to establish positive vs. negative? Different labs use different ranges. There is no industry standard. But the number is low enough to suggest a negative test result for the tTG-IGA. That one is actually an antibody test used to detect celiac disease. The other one, the "IGA" at ...
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