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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    It is common for celiacs to develop additional food intolerances over time. Keep in mind that celiac disease is at heart a dysfunction of the immune system and it which tends to become more dysfunctional with time. I'm guessing there is something or somethings in your diet that are not gluten that you have become intolerant of since developing gluten intolerance...
  2. trents
    It's not the gluten in the oats that is the issue, it's the oat protein itself, which is not considered to be gluten so it's not violating the gluten free standard.
  3. trents
    It sounds like you are getting some dairy still and many celiacs are intolerant of dairy, either from the lactose or the protein, casein, in dairy which closely resembles gluten. Are you still consuming oats? Oats is another common cross reactor. Oat protein, avenin, is similar to gluten. Also, have you looked into MCAS/histamine intolerance?
  4. trents
    https://www.beyondceliac.org/research-news/potential-drug-to-treat-celiac-disease-prevents-damage-caused-by-gluten-in-recent-study-of-molecular-action/ Time will tell whether or not this new drug being tested proves to be effective and safe. There have been many attempts to develop a celiac drug that did not pan out. However, has been a valuable "spin...
  5. trents
    Did this actually happen? It feels contrived. I can't imagine this happening in real life. And the question raised at the end of the story seems to confuse what the issue really is. Is the issue the gluten sensitive woman's safety or is it selfishness? I don't see why allowing her pregnant friend to sample her gluten free meal would present a safety risk...
  6. trents
    That makes sense. Do you really make pickle beet pasta?
  7. trents
    Still, the scientific definition of osmosis involves a semipermeable membrane.
  8. trents
    That may not be enough. The most recent guidelines are calling for the daily consumption of 10g of gluten (an amount found in about 4-6 slices of bread) for at least two weeks leading up to the day of testing. One thing our community knows is that many medical practitioners are not up to date when it come to diagnosing celiac disease and advising their patients...
  9. trents
    Make sure you don't reduce your gluten intake (wheat/barley/rye products) until all testing for celiac disease is complete. The first stage of testing involves a blood draw which is sent to a lab to check for celiac antibodies. If any of the celiac antibody tests are positive, you will likely be scheduled for an endoscopy with biopsy of the small bowel lining...
  10. trents
    Unless you live in the western US, you likely will not find Franz products in your stores.
  11. trents
    Welcome to the forum, @Dee4825! Is the consistency of your bowel movements normal or are you experiencing diarrhea? Have you added into your diet any pre-prepared/pre-packaged gluten-free foods and snacks or are you just going with naturally free main stream foods? BTW, I notice you also posted your question in another place in the forum. Please don...
  12. trents
    As I think about it more, you may have a valid point about it being osmosis but the experiment outlined in the article, as limited as it was, suggests that not much osmosis actually happened. And I wonder if you're example of adding fish sauce to the water makes the pasta take on the fish sauce flavor because it has crossed the semipermeable membrane (as...
  13. trents
    Thyroglobulin antibody: nearly 1,000 (ref: 0.0 to 0.9)! What's with that? It's super high! Do you have Hashimotos? Maybe you said that already somewhere back in this long thread.
  14. trents
    @GardeningForHealth, when is the last time you had a follow-up endoscopy or even a follow-up antibody panel?
  15. trents
    What do you mean about seeing Cheerios having so many pros and cons about it? Do you mean about whether or not it is truly gluten free?
  16. trents
    What you are describing is reconstitution, not osmosis.
  17. trents
    sc'Que?, I think your science is bad. Osmosis is the movement of liquid in a solution across a semipermeable membrane from an area of higher solution concentration to an area of lower solution concentration. Hard pasta is not in solution and there is no semipermeable membrane present. The salt simply raises the boiling temperature of the water and also adds...
  18. trents
    If you had four positive out of six celiac antibody tests and there was inflammation in your duodenum as the pathology report stated, I would say that is pretty conclusive for celiac disease. You may have caught it early enough before villi blunting was happening.
  19. trents
    Welcome to the forum, @NoMoreBreadForMe! You said you are not anemic but are your blood oxygen saturation levels within the normal range?
  20. trents
    I asked about the dairy because a significant proportion of the celiac population reacts to CMP (Cow's Milk Protein) like they do gluten. Oats is another common cross reactor. https://www.beyondceliac.org/research-news/cows-milk-protein-allergy-could-be-the-culprit-when-some-children-dont-recover-on-the-gluten-free-diet/?_hsmi=243747802&_hsenc=p...
  21. trents
    Welcome to the forum, RK37! I don't have any bright ideas as to what is causing the bone edema. That's something I have never heard of in children or adults. So, it's the actual bone that is swelling and not the synovium or the compartment around the bones? Is he consuming dairy products by any chance? I'm also curious about how he was diagnosed...
  22. trents
    When is the gastroscopy scheduled for? If there is a significant wait period, I would ask the doctor to run additional blood tests including: Total IGA DGP-IGA DGP-IGG If the gastroscopy is coming soon, just go for that. But don't start the gluten free diet until all testing is done. Make sure you are consuming an amount of gluten daily...
  23. trents
    Hmm. You must have allergies to wheat or one of the other two gluten containing grains. Celiac disease is not an allergy but an autoimmune disorder which engages a different immune system pathway than do allergies.
  24. trents
    Not every dermatologist knows how to biopsy for dermatitis herpetiformis correctly. Check with your derm doctor first to see if the have had much experience with biopsying dermatitis herpetiformis. For one thing, the biopsy needs to be taken from tissue adjacent to a bump, not on a bump.
  25. trents
    I could be wrong but the pathology report doesn't seem to describe the kind of damage to the lining of the small bowel caused by celiac disease that we normally see. Celiac disease causes a blunting of the villi. It wears them down and reduces the nutrient absorbing efficiency of what starts out to be millions and millions of tiny finger-like projectiles...
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