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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, @damnyoureyes! Your elevated serum B12 levels are because you supplemented with B12 and would not be due to malabsorption from celiac disease. Malabsorption from celiac disease would give the opposite effect. Were you ever tested for B12 serum levels before you started supplementing with B12? I understand you were trying to find...
  2. trents
    Welcome to the forum, @Pua! Yes, many, many forum participants have been in this same boat. That is, suspecting celiac disease and testing the waters by going gluten free but then realizing they undermined the ability to bet tested for it by doing so. It's a very common mistake??? but a completely understandable decision making sequence. The symptoms...
  3. trents
    Welcome to the forum, @MomofGF! I know you said you are not looking for a dx but the symptoms you describe scream of celiac disease as opposed to NCGS (Non Celiac Gluten Sensitivity). Celiac disease does not damage the stomach lining but rather the lining of the small bowel, i.e., the intestinal area right below the stomach. This is the area where...
  4. trents
    Holli Madsen, be aware that it can be difficult to wean off of PPIs once you have been on them for an extended period of time. There is typically a rebound of GERD when going off after being on them for long periods of time. They are designed to be a short term remedy to be taken for weeks but many physicians put their patients on PPIs and leave them on for...
  5. trents
    Many celiacs are what we call "silent". That is, they don't have classic GI symptoms but begin developing other medical problems such as you describe with your husband. Also, it is unfortunate that many doctors, and in some cases their hands are tied by stingy healthcare system protocols, do bare minimum testing for celiac disease which would consists...
  6. trents
    Even though you were tested for celiac disease at 20 and it was negative, you can develop celiac disease at any stage of life. Developing active celiac disease requires to elements. The first element is the genetic potential. There have been two primary genes connected to the development of celiac disease, HLDQ 2 and HLDQ 8, and some secondary variant...
  7. trents
    Check my last post as I added some to it.
  8. trents
    If she's pooping regularly and even several times a day, how is it that she is getting "full up and bunged up"? Is there a delay in her stomach emptying into her small bowel? Well, from the testing numbers you supplied, it is obvious the results are greater than 10x normal and there really is no reasonable doubt that your daughter has celiac disease...
  9. trents
    Do you have information concerning the range for negative vs. positive for the celiac antibody blood test that was performed on your daughter? Different labs use different ranges. There is no industry standard in how these tests are constructed. The reason I ask is that it is becoming more common in medical practice to forego the gastroscopy/biopsy for confirmation...
  10. trents
    https://www.medicinesfaq.com/brand/movicol It's basically made up of three different salt compounds. I'm thinking it may irritate the gut but I don't know. At any rate, at the dosage she was using it sounds like food was moving too fast through her gut so I'm thinking the gut was overstimulated.
  11. trents
    Welcome to the forum, @sh00148! How old is your daughter? Emesis is a classic symptom of celiac disease but the movicol could be exacerbating the problem. I understand you don't want her to become impacted again but don't overdo the movicol. An ounce of prevention is worth a pound of cure but a pound of prevention may be worse than the disease itself...
  12. trents
    Welcome to the forum community, @RiosMom! Unless you are in the super sensitive subset of the celiac community, I wouldn't worry about transdermal exposure to gluten.
  13. trents
    May we ask your age? Do you have problems with your knee joints? It is common for men as they age to lose muscle mass, especially in the legs and buttocks as testosterone/DHT levels drop. And there is a higher concentration of androgen receptors in the upper body to begin with. I am 73 and I have also noticed that as knee joint pain has begun to set...
  14. trents
    I understand your frustration but there is also a significant subset of celiacs that cross react to oats and soy. You just can't eliminate all possible cross reactive ingredients.
  15. trents
    My bad. The reason it is important to rinse quinoa is because of saponins, not lectins. Some people, and I am one of them, get very ill from the saponins. Like lectins, saponins are part of the natural defense mechanism of some plants. https://www.allrecipes.com/article/should-you-rinse-quinoa/
  16. trents
    Good point. But I have been made very ill by eating unwashed quinoa that was not cooked but used in a side salad.
  17. trents
    Quinoa is high in lectins. Try rinsing it thoroughly before cooking and consuming it.
  18. trents
    That's actually not a mystery. There is a considerable range of sensitivity to gluten within the celiac community. A large number of celiacs don't even have discernable symptoms to consuming full servings of gluten, even though some inflammation is occurring when they do. We call them "silent" celiacs. Others get a reaction simply by smelling the aroma of...
  19. trents
    I've never fainted but do get severe cramps and intractable nausea followed by diarrhea. There's probably a lot of blood flow being diverted to the gut to support all the stressful activity happening there and, coupled with the dehydration that occurs, I can easily see how insufficient blood flow to the brain and fainting could occur. By the way, welcome...
  20. trents
    From Scott's post above: "The wheat found in today’s food supply is derived from traditional selective breeding practices rather than genetic engineering." GMO is not selective breeding or hybridization. It is the use of modern cutting edge technology to remove or add genetic material. In some cases, genes from entirely different organisms, such as a...
  21. trents
    The over prescription of antibiotics has created (or at least contributed to in a major way) an epidemic of gut dysbiosis which has led to a rise in celiac disease.
  22. trents
    As myself and others have pointed out, your use of the term GMO is flawed. GMO technology was not available in the 1950s.
  23. trents
    Great article! Thanks. And it addressed towards the end the question that immediately popped into my mind, namely, how will eliminating the gluten affect the baking quality of the product. And, can we actually call it wheat? I hope they find something better than xanthan gum to restore the texture. Xanthan gum is not well-tolerated by many celiacs but is...
  24. trents
    @Brian C. Comstock, that the recent "explosion" in celiac disease may be exaggerated by the advent of greater awareness (both in the pubic and the medical sector) and the development of diagnostic tools that allow the differentiation between celiac disease and other bowel maladies. Probably a lot more people suffered from celiac disease in previous generations...
  25. trents
    You still have provided no concrete evidence, not even cited reliable sources, that the wheat flour sold commercially on world markets shows evidence of genetic modification. If this pollen release from GMO experimental stock has tainted world wheat supplies then it would be all over the news by now. The environmentalist green crowd would see to that. I mean...
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