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trents

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Everything posted by trents

  1. trents
    Don't forget about NCGS.
  2. trents
    I assume you know that having one or more of the "celiac genes" does not equate to having celiac disease. Almost 40% of the population has one or more of the genes but only about 1% will develop active celiac disease. It's more of a rule out diagnostic measure in the sense that if you don't have one or more of the genes associated with celiac disease it is...
  3. trents
    Celiac disease is an autoimmune disorder. Hashimotos would not affect the villous lining of the small bowel. So, all things considered, it makes me wonder if you are on the cusp of celiac disease. I think you are at the point where you need to trial a gluten free diet for a few months and see if some of your symptoms improve. You have had both the blood...
  4. trents
    Welcome to the forum, @NatalieCO! So, you have conflicting results from two different tTG-IGA tests, one at 8.03 and the other at 4.62, i.e. one a weal positive and the other a negative. When they did the endoscopy, did they also biopsy the small bowel lining to have it checked microscopically by a lab for signs of the damage that would be caused...
  5. trents
    Delayed food sensitivity testing? Does that mean the testing itself was delayed or that testing was designed to detect delayed food sensitivity reactions?
  6. trents
    Welcome to the forum, @sadiec123! A couple of questions. First, what is the biggest driver behind your food anger? Is it having to deny yourself foods that you used to enjoy or is it the social cost of needing to eat gluten free? By social cost, I mean do you feel left out or even resented by family/friends at social events or do you avoid social...
  7. trents
    Welcome to the forum, @LinneaW! Yes, we do need more information. We would need the name of the antibody test performed and we would need the range used to establish positive vs. negative. These test ranges aren't standardized yet so each lab uses it's own range.
  8. trents
    Aspirin is an NSAID (Non Steroidal Anti Inflammatory Drug) and an analgesic (a pain killer). Theoretically, it could have some impact on masking the unpleasantness of a gluten reaction but in actual practice I would be very surprised if it offered any real benefit. And even so, aspirin tends to irritate the lining of the gut so that might offset any pain...
  9. trents
    The prescription version of Dulcolax may contain the same active ingredient but I wouldn't assume the non-active ingredients are the same as the over the counter product. I would check with the manufacturer of the prescription version to be sure. But if your procedure is tomorrow and you haven't finished the cleanout, will they go through with it?
  10. trents
    I had an uncle who was about TinaP's dad's age when he was diagnosed. By then he was a widower and had always been a very social person. Much of his life revolved around lunch meetings with his friends from church several times a week. Very early on after his diagnosis he realized that trying to maintain a gluten-free lifestyle was not going to be compatible...
  11. trents
    Karen9084, Dulcolax makes several different laxative products that work in different ways. Which one are you investigating as to being gluten free?
  12. trents
    Welcome to the forum, @amandavc! I would also think that your response to being glutened at any time might also depend on what else was in that meal that might have triggered histamine overload or other food intolerances that you might have developed since being diagnosed with celiac disease. And yes, I do think how we react to being gluten changes over...
  13. trents
    Ditto to what OfcVal said. It is common for celiacs to cross react to other foods like they do to gluten, especially foods that have proteins similar in structure to gluten. Chief among them are dairy, oats, eggs and soy. Dairy is the most frequent culprit. One small study found 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten. Just something...
  14. trents
    By the way, B12 is necessary for the uptake of iron. B12 deficiency is extremely common in the celiac population and, of course, plugs right into the fact of anemia also being extremely common in the celiac population. Some people have a form of anemia known as pernicious anemia in which the anemia is caused by the death of the parietal cells in the stomach...
  15. trents
    Welcome to the forum, @Jake R.! First of all, kudus to the doc who ordered the test checking for celiac disease based on the family history of it. Many in the celiac population suffer for many years before getting a proper diagnosis and that despite have classic GI symptoms. I will embed an article that you might find helpful in polishing your efforts...
  16. trents
    When our children hurt, we hurt too! Every parent can identify with what you are saying. Iron supplements can definitely gripe the tummy! Are you using an enteric form of iron that is easier on the stomach? What kind of mag have you been giving her? The most common form you see on store shelves is magnesium oxide and it isn't absorbed very well...
  17. trents
    Welcome to the forum, @MG1031 What about oats? Dairy and oats are the two most common cross reactors in the celiac population. The oat protein "avenin" is similar in structure to the protein gluten. Chicken eggs is another common cross reactor. Is your daughter on any vitamin and mineral supplements? The damage to the villous lining of the small...
  18. trents
    One small study I read recently found that half of the celiacs in the study experienced small bowel villous inflammation from CMP (Cow's Milk Protein).
  19. trents
    What is BROW?
  20. trents
    True, it is an autoimmune disorder. But it is also true that you can have an allergy to the protein gluten or to wheat apart from celiac disease.
  21. trents
    Welcome to the forum, @SusanB123! Celiac disease has a genetic base but the genes need some stress trigger to be "turned on" to result in active celiac disease. Almost 40% of the population has one or more of the genes that are associated with celiac disease but only about 1% ever develop active celiac disease because the genes aren't turned on. The...
  22. trents
    Welcome to the fourum, @Grace Good! I cannot find any claims in the Amazon advertising for this company's products to the effect of it being gluten free. Yet, you state in your post that "it says their gluten free". What is "it"? Is there such a statement on the packaging?
  23. trents
    Okay, Scott and I were correct in our assumption then. It was a specific celiac blood antibody test and it was positive.
  24. trents
    cristiana, what do you mean when you say "I recall my total IgA wasn't convincing"? Convincing of what? That one isn't even checking for celiac disease per se. It's only run in order to check for IGA deficiency since IGA deficiency can cause false negatives in the actual individual IGA celiac antibody tests. The total IGA test is not a direct test for celiac...
  25. trents
    Welcome to the forum, @HannahF! The problem with oats can not only be "cross contamination" but also "cross reaction". Cross contamination refers to the inadvertent inclusion of wheat, barley or rye in the oatmeal. Cross reactivity refers to the fact that the main protein in oats (avenin) is similar enough in structure to gluten such that it causes gluten...
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