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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    One of the symptom categories we now know that can accrue from celiac disease is neurological problems. Several of her symptoms could fall into that grouping: swallowing, blurred vision, headaches. The blood antibody score of 3500? Was that tTG-IGA? Was her biopsy positive and was it given a Marsh scale score? I'm wondering if she has some severe...
  2. trents
    Welcome to the forum, @kate g! Moving up to a new level of school can be very stressful. How's your daughter's stress level? Some of her symptoms could be stress related but the swallowing issues and blurred vision are not likely among them. There can be withdrawal symptoms when going gluten free but she should be past that now and besides, the...
  3. trents
    Wheatwacked, my definite impression is that NCGS is commonly referred to as gluten sensitivity (hence the word "sensitivity" in the acronym) whereas gluten intolerance is generally used as a synonym for celiac disease. But it is true, there is some inconsistency in the literature in terminology usage.
  4. trents
    Have you had your gall bladder checked?
  5. trents
    There are specific blood tests to check for celiac disease (aka, gluten intolerance) and your symptoms scream of that. You must have been eating generous amounts of gluten (the equivalent of 4-6 slices of bread) for at least two weeks for the testing to be valid, however. I would be concerned that since you have been cutting back on your wheat consumption...
  6. trents
    I can't comment on your main question but I would make you aware that there is somewhere between a 10% and an almost 50% chance that your children will develop active celiac disease some day. Earlier studies put the figure at 10% but some recent larger studies (two that I know of consisting of over 300 family members each) found the rate of active celiac...
  7. trents
    You ask the question of should you consider trying going gluten free but before that you also state you had declined testing due to not wanting to continue eating gluten. Those two statements seem to contradict each other. Had you started eating gluten free at some point? Skipping one day of eating will have no material effect on celiac antibody test scores...
  8. trents
    Many celiacs react the same way to CMP (Cow's Milk Protein) the same way they do to gluten and it also blunts the villi. The protein structures of the two are very similar. What about your BMs. Do you have oily stools and "floaters" when you eat fatty foods? Do you avoid dairy?
  9. trents
    Welcome to the forum, @moore.amy! The ttg-iga antibody test is an indirect measure of inflammation. Inflammation is a response to antibodies attacking the body's tissues. So, indeed this is a very odd test report. The only possible scenario that would explain this that I can think of is that you were eating totally gluten free in advance of the blood...
  10. trents
    @Smitty1953, there are actually two main genes that have been identified with the potential to develop celiac disease, HLDQ2 and HLDQ8. They also have variants and recent research suggests there may be more genes involved. But you would want to have at least those two checked for.
  11. trents
    I just think we need to be careful not to make dogmatic statements about things like this based on such limited research. And at times I have been guilty of this myself. I think it's more appropriate to couch things of this nature in terms like, "Some studies indicate . . . may be as high as . . . " Or present the idea in general terms like, "many celiacs...
  12. trents
    I don't know. When I read that whole article I see things like this: "Our finding that, in a fraction of coeliac patients, CM protein challenge may induce an inflammatory reaction of the same magnitude, as did gluten challenge, may also suggest an innate as well as adaptive immune response to CM, and casein in particular. However, lack of increased serum...
  13. trents
    50%? Are you sure it's that high, kk?
  14. trents
    It needs to also be said that having the genetic potential for celiac disease does not equate to a diagnosis of celiac disease. 30-40% of the general population has the genetic potential for celiac disease but only about 1% of the general population ever develop active celiac disease. Not having the genes can be used as a rule out, however, and having the...
  15. trents
    Welcome to the forum, @Jole! Can you share specificcaly what diagnostic test or tests were done? Do you have documentation that you can pull the name of the test or tests from? Often, physicians will order only the tTG-IGA test. For young children especially, more tests should be ordered. Children's immune systems are immature and they often don't respond...
  16. trents
    Welcome to the forum, @Smitty1953! Sounds like your daughter has been on a reduced or even gluten free diet for sometime as you say she is sensitive to CC (cross contamination). If so, her testing for celiac disease would be negative. For the celiac antibody blood tests to be valid, the person being tested must have been consuming regular amounts of gluten...
  17. trents
    I think insufficient bile/pancreatic enzymes may be a problem in the under digestion of fats and other foods but I think in celiac disease the damage to the villous lining is the big factor since it can greatly reduce the ability to absorb nutrients from the food we consume. Floating, oily stools is a very common, even classic symptom of celiac disease and...
  18. trents
    Mari, isn't non tropical sprue just a synonym for celiac disease? Sprue is just an older term for the disease is my impression.
  19. trents
    10,000 IU of D3 daily would be an upper limit and should be plenty. How long have you been taking that amount? Your vitamin D3 levels should be higher than 30 ng/ml unless you have only recently started taking the D3 supplement amount you mention. I think 30 ng/ml is like the low end of what is considered normal. But it is certainly not optimum. I do...
  20. trents
    Well, you with a total IGA score of almost 1000 you certainly aren't IGA deficient which is one thing that can suppress tTG-IGA scores. Some other things are that can suppress tTG-IGA are diabetes, thyroid disease, anemia and having a reduced gluten intake weeks in advance of the antibody test blood draw. But as Scott said, I would go back to your doctor...
  21. trents
    The pepper may or may not have enough gluten to produce a celiac reaction. Best to avoid things that you are unsure about and we cannot give certain answers to those kinds of questions any more than you can. It depends on too many things and if there is any gluten in that pepper and how much may vary from one batch of it to to another depending on how well...
  22. trents
    Are you aware of the big flap created recently by the testing Mom's of America had done on Trader Joe's bagels that showed they were way out of tolerance with regard to the 20ppm FDA standard for using "Gluten Free" claims? There was a big story that surface on this forum recently if you care to search for it. I would not recommend Trader Joe's as a safe...
  23. trents
    I think Bfree does now offer a sour dough gluten free loaf bread. I believe I bought some at Costco back this spring.
  24. trents
    If the pepper package says it could contain traces of gluten I would avoid it. How long have you know that you are a celiac? How long ago were you diagnosed? Different celiacs vary significantly in how sensitive they are to trace amounts of gluten and that's something it can take time to get a handle on as an individual. I think the cashier job...
  25. trents
    Welcome to the forum @Dora77! I would not expect you to get any significant exposure to gluten from tactile or airborne means as a supermarket cashier. I think your worries are overdone in that scenario. But it is not true that you are asymptomatic if you are experiencing "floating, light brown and undigested stools". That is a classic symptom...
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