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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Celiac newbie
trents replied to Matt8949's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
RMJ pretty much says what there is to say on the subject. It mostly boils down to your level of gluten sensitivity but there are other factors as well. In a production environment that is not dedicated gluten free the level of cross contamination may vary from batch to batch and from run to run. When the goal of production is not to arrive at a gluten free... -
Yeast extract
trents replied to Amanda Hunter's topic in Gluten-Free Foods, Products, Shopping & Medications
Welcome to the forum, @Amanda Hunter! I'm not clear on what you are asking. I think there is a typo in your sentence. Are you asking if the yeast extract in crisps and snacks, etc. can trigger an episode of ataxia in a person with gluten ataxia? Or, are you asking if a person with gluten ataxia can safely eat crisps and snacks, etc. that contain... -
Dermatitis Herpetiformis Help Please
trents replied to Caroline S's topic in Dermatitis Herpetiformis
@BoiseNic, if most fruits give you problems, I would think you might be fructose intolerant.- 20 replies
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Dermatitis Herpetiformis Help Please
trents replied to Caroline S's topic in Dermatitis Herpetiformis
Have you given thought to the health risks associated with long term PPI therapy? They raise stomach PH and inhibit digestion of nutrients and also put you at increased risk for GI infections. I was on a PPI for years but managed to wean myself off it over about a year and now, after some other dietary and lifestyle changes, hardly have any problem with GERD...- 20 replies
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Oats Not Safe for Some People with Celiac Disease
trents commented on Jefferson Adams's article in Oats: Are They Gluten-Free?
Kefflax? Did you mean Keflex? Keflex is an antibiotic. Why would your doctor put you on that one after a seizure?- 10 comments
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Dermatitis Herpetiformis Help Please
trents replied to Caroline S's topic in Dermatitis Herpetiformis
My understanding is that the biopsies should not be take from the pustules themselves but from the skin adjacent to them. It can be difficult to find a dermatologist who knows how to biopsy for dermatitis herpetiformis correctly. Do you have any GI involvement in your celiac disease? Have you had blood antibody testing done or small bowel biopsy performed...- 20 replies
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Dermatitis Herpetiformis Help Please
trents replied to Caroline S's topic in Dermatitis Herpetiformis
Many or most chewing gums have gluten in them. Also, check the jelly beans. The tuna is high in iodine. Iodine exacerbates dermatitis herpetiformis.- 20 replies
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@SunshineFace, the latest guidelines for the gluten challenge are 10g of gluten daily for at least 2 weeks. 10g is the amount of gluten in about 4-6 slices of bread. So, I would say you need to at least one more croissant daily.
- 30 comments
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Post diagnosis
trents replied to Kathleey's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This conflicts with what you said above in your second post when you said he does have dairy. Yogurts and cheeses are dairy products. -
Post diagnosis
trents replied to Kathleey's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lactose is the sugar component in milk, not the protein component. Many celiacs are lactose intolerant and this causes GI distress but would not damage the mucosal lining of the small bowel. I would like to echo what Scott is saying about the likelihood of some unexpected source of gluten having entered into your son's diet. Please read the article he linked... -
Post diagnosis
trents replied to Kathleey's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @Kathleey! Does your son consume dairy? A certain percentage of celiacs experience villous atrophy from CMP (Cow's Milk Protein). -
Products labeled "Gluten Free" but not "Certified Gluten Free" do not require a certification "stamp". The "Gluten Free" standard is less than 20ppm (the FDA standard) whereas the "Certified Gluten Free" standard is less than 10ppm. Was the Trader Joe muffin in question labeled as gluten free or certified gluten free?
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Welcome to the forum, @Nicole Maree! Did you mean to say you are awaiting a "colonoscopy"? A colonoscopy cannot be used to check for celiac disease. Celiac disease damages the lining of the small bowel and a colonoscopy cannot reach up that far. They used an endoscopy for that. But maybe you are also having a lower GI scoping done to check for other possible...
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Advice regarding symptoms
trents replied to Kittycat28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I heavily edited my previous post. Please review. I also wanted to make you aware that there are third party celiac blood antibody test kits available for around $100 USD. You mentioned that you had celiac testing coming up later this year. That sounds like UK health system wait times. Are you in the UK? At any rate, you might consider going third... -
Advice regarding symptoms
trents replied to Kittycat28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Realize that for weeks/months leading up to celiac disease testing you must be eating generous amounts of gluten. The current recommendations are 10g of gluten (the equivalent of 4-6 slices of bread) daily for at least 2 weeks prior to testing and preferably, longer than that. So, if you are anticipating a celiac disease blood screening, I would go back... -
Okay, let's backup for the sake of clarity. Have you been officially diagnosed with celiac disease? How were you diagnosed? Did you get both celiac blood antibody testing done and an endoscopy/biopsy? Or, are you self-diagnosed? How often do you get "glutened"? Are you strict with your gluten free diet?
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nuts and seeds
trents replied to CeliacWarrier's topic in Gluten-Free Foods, Products, Shopping & Medications
AS to Brazil nuts, you could go for those still in the shell. That is, if you don't mind the challenge of cracking them open. -
nuts and seeds
trents replied to CeliacWarrier's topic in Gluten-Free Foods, Products, Shopping & Medications
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If pesticides and herbicides were totally banned we would all be hungry and paying much more for our food than we do now. Organic is a great idea on the surface but it is more results in smaller fruits and vegetables and smaller harvests. There is a reason why growers started using pesticides and herbicides in the first place and that is to keep bugs and...
- 67 comments
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- agrochemicals
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Antibody screening testing should always include total IGA along with tTG-IGA.
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- autoimmune disorder
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If "hotspots" are the explanation, what can food companies do to address the problem? Even if they tested every batch, we're talking about variations within batches, not between one batch and another, correct? What is reasonable to expect of them?
- 70 replies
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Keep us posted.
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Why do you say that?