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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    An endoscopy without a biopsy of the small bowel lining would not necessarily be a good diagnostic for celiac disease. If the damage to the small bowel lining is profound enough, and if the scope resolution is good enough, and if the person doing the scoping is experienced enough to recognize "villi blunting" then it can be seen without the aid of a microscope...
  2. trents
    The most recent "gluten challenge" guidelines for those having been gluten free for a long period of time and wishing to be tested are the daily consumption of 4-6 slices of wheat bread (or the gluten equivalent - 10g) for at least two weeks prior to the antibody test blood draw. I would recommend mor like four weeks to be sure. Many people find they...
  3. trents
    Just for the sake of clarity, there are two gluten disorders that often get confused because the terminology is used carelessly. There is celiac disease, aka, "gltuen intolerance" and there is NCGS (Non Celiac Gluten Sensitivity), aka, "gluten sensitivity". There is overlap in their symptoms but the distinguishing factor is that celiac disease causes inflammation...
  4. trents
    Welcome to the forum, Natynat! Do you experience this no matter what you have eaten or are these symptoms tied to certain foods? Gluten is a protein found only in wheat, barley and rye. The symptoms you describe also sound like they could be caused by say, fructose intolerance or some kind of blood sugar swing. Have you been tested for either diabetes...
  5. trents
    Is that the only test that was ordered? Was there a "total IGA" test ordered? That is far from a comprehensive celiac antibody panel.
  6. trents
    I would suggest you consider adding in some high potency vitamin and mineral supplements. I'm talking about more than an adult multivitamin. Long term undiagnosed celiac disease typically results in vitamin and mineral deficiencies due to the damage it does to the lining of the small bowel. That is the section of the intestines where all of our nutrition...
  7. trents
    Welcome to the forum, @Lorilinn! Be aware that about 10% of celiacs react to the protein, avenin, in oats like they do the protein, gluten, in wheat/barley/rye. Namaste's "The Perfect Flour Blend" is what my wife uses. She gets it at Costco. But there are probably lots of good options in this area.
  8. trents
    Yes, most likely the onset was years ago.
  9. trents
    Are you currently under the care of a gastroenterologist? Your post is confusing to me in that you seem to have said on one place you are only being treated in ER/Urgent care settings but in you most recent post you say you certainly are dealing with obstinate gastroenterologists. Are you totally against the use of biologics? Have you tried the...
  10. trents
    Welcome to the forum, @savona! How long ago were you diagnosed with celiac disease? Since diagnosis with celiac disease, have you been diligent to follow the gluten free diet? Are you saying your primary care doc doesn't recognize your celiac diagnosis while in Canada as a valid or are you dealing with an obstinate gastro enterologist? What...
  11. trents
    By the way, it is not unusual at all to be diagnosed with celiac disease at your age in case you were wondering.
  12. trents
    Welcome to the forum, @carolcat! Many celiacs are of the "silent" type, meaning, they have few or no symptoms, sometimes for years after onset of the disease, until the damage to the villous lining of the small bowel reaches a critical level and other disease processes, such as osteoporosis, are well underway. Essentially, that describes my experience...
  13. trents
    Welcome to the forum, @Jessiemyers! No, I have not heard of this kind of reaction to gluten in our celiac/NCGS forum community. There is an epidermal expression of gluten intolerance/celiac disease known as dermatitis hermpetiformis, which is a rash with pustules in the bumps, but what you describe doesn't sound like that. Having said that, we are...
  14. trents
    Welcome to the forum, @KsBlonde! To find out if these drugs contain gluten, you might want to find out who manufactures them and contact that company to ask the question. A pharmacist can usually help you with manufacturer info. As long as the med or its container does not intentionally contain gluten I would not worry about things like cross contamination...
  15. trents
    Welcome to the forum, @Diane London! How long ago were you diagnosed with celiac disease? Have you checked your meds and supplements for being gluten free? Wheat starch can be used as a filler in pills and also can be used to make the gel caps. I'm attaching this article to help you with the gluten free eating part as there is always a considerable...
  16. trents
    I'm not sure IGA deficiency ever changes. I think total IGA level is something that is innate to a person's immune system. So, if you have IGA deficiency it is likely your individual IGA antibody scores will never be trustworthy as diagnostic tools.
  17. trents
    Ditto. An official celiac diagnosis is not worth permanently damaging your health.
  18. trents
    Let me caution you about one possible flaw in your logic when you say that departing from the carnivore diet to experiment with other foods like avocados gives you nausea, bellyaches, etc. I think when you eliminate any food from your diet for a long period of time and then go back to it you can have problems, even if you are a normal healthy person with...
  19. trents
    Just type the test results in a new post, please. Make sure you include not only the test scores but the reference ranges.
  20. trents
    This could happen if these numbers represent the lower limits of the detection technology. In this case, if celiac disease-like symptoms persist I would suspect NCGS since they share similar symptoms but there is no test for NCGS at this point in time.
  21. trents
    Welcome to the forum, @MamaBearLiv! The first thing I would make you aware of is that taking your son off of gluten before the endsocopy/biopsy (if this is planned) will invalidate the results. He would need to go back on regular amounts of gluten for weeks before the procedure for it to yield valid results. Second, is your son still consuming dairy...
  22. trents
    " but he basically told me that if the antibodies are negative then I do not have Celiac regardless of my GI symptoms (that have drastically improved since cutting gluten from my diet), the dermatitis herpetiformis, the + gene, the severe damage to my duodenum (ulcer, lymphocytosis, villous blunting) he said “these are all nonspecific findings.” I also exp...
  23. trents
    6 slices should be plenty. Doesn't matter whether it's wheat or white. Are you on Metformin for your diabetes?
  24. trents
    You can break off a few slices of bread at a time from the frozen loaf and put them in a ziplock bag for current use. How long a load lasts before it gets moldy depends on a lot of things. I keep my gluten-free bread loafs in the frig and warm them up in a popup toaster so that the loaf doesn't mold so quick. Sometimes I have gotten them and they were moldy...
  25. trents
    Krusteaz makes a line of gluten free cornbread mixes. We use the "honey cornbread mix" one by Krusteaz and it's good. Sweeter than homemade, somewhat like a cake, but it's pretty good. Can you take the frozen gluten free bread home and let it thaw out? They probably keep it in the freezer to keep it from molding as gluten free bread products generally...
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