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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Scott, what do you make of that? Different results because of different testing methods used?
  2. trents
    She could be seronegative for celaic disease as is one of our moderators with celiac disease. More likely would be NCGS.
  3. trents
    Did you mean Ileus disease? I couldn't find anything on Elias disease when I googled it.
  4. trents
    So it looks like total IGA still needs to be run.
  5. trents
    Testing terminology can be challenging but it looks like they did the TTG-IGA and DGP-IGA. They should have also done a "total IGA" test because if total IGA is low then it can cause false negatives in the individual IGA tests. Also, with children, because their immune systems are immature, they should also have run a TTG-IGG test. I would go back to the...
  6. trents
    Welcome to the forum, @Izzysmom! The numbers you posted aren't helpful unless you also include the lab's reference ranges for negative vs. positive. There are no industry standard ranges for celiac antibody tests in place yet so each lab uses their own. Can you post back with additional info? You will likely need to do it in a new post since the time...
  7. trents
    About 10% of celiacs react to the oat protein avenin like they do gluten. Can you generally eat gluten free oats otherwise without getting a reaction?
  8. trents
    What is "sm"? By the way, a colonoscopy cannot be used to diagnose celaic disease. Celiac disease damages the small bowel lining. The small bowel is accessed by an endoscopy (upper GI scope).
  9. trents
    "possible sm celiac disease"? Translate please. What kind of testing was done to arrive at this diagnosis?
  10. trents
    Yes, when total IGA is low, other tests need to be run including DGP-IGA and DGP-IGG. Also, there is the possibility of NCGS (Non Celiac Gluten Sensitivity) which some experts see as a pre-celiac gluten disorder, 10x more common than celiac disease, sharing many of the same symptoms with celiac disease but for which there is no testing available yet...
  11. trents
    In this context, what does it mean to "proof"?
  12. trents
    Welcome to the forum, @Lori from Fl! Floaters are usually caused by undigested fat/oils in stool. Have you been officially diagnosed with celiac disease? Many celiacs cannot tolerate dairy products, either the sugar lactose or the protein casein in dairy. Same with oats because of the protein avenin being so similar to gluten. You might try...
  13. trents
    Welcome to the forum, @Emma S! I'm not a biochemist or a baker so forgive my ignorant questions but could you clarify somethings from your post? 1. Is this alcohol taste in the bread you speak of actually caused by alcohol or something else? It sounds like alcohol is being produced in the breadmaking process as you speak of "proofing" the bread...
  14. trents
    About 10% of celiacs are also intolerant of the protein "avenin" in oats.
  15. trents
    For that reason I never order anything in a Mexican eatery that is a wrap. I stick to corn taco shells, tortillas and chips.
  16. trents
    What is your plan for her to eat safely at college? Will she be off campus? In a dormitory? Eating at campus cafeteria or cooking her own meals? Is she commuting from home?
  17. trents
    About three years ago I developed a cornea tear from dry eyes. I would wake up in the middle of the night and my eyelids would be stuck to my eyeball. Had to have a surgical repair. Now I use an ophthamalic salve in my eyes when I go to bed for lubrication and Theratears when I get up in the morning. Have you been evaluated for pernicious anemia?
  18. trents
    Brenda, welcome to the forum! That's going to be challenging. Not as much from the gluten standpoint but from the age standpoint as physicians are reluctant to prescribe many common sleep meds like ambien to us who have quite a few candles on our birthday cakes. I'm 73. They are afraid we will get up to go potty in the middle of the night and fall. Having...
  19. trents
    Many of your symptoms are classic celiac symptoms. Your history is complex and timing with respect to periods of being gluten free and being tested for celiac is critical. Also, it is unfortunate that no biopsy was done when the upper GI was performed since unless damage is advanced it may not be visible during scoping. You could also have NCGS (Non...
  20. trents
    I have some anxiety about eating out at restaurants but I'd call it more like vigilance. I do not use gluten breakdown supplements. Those supplements themselves make me ill, believe it or not. I'm not a super sensitive celiac so I can get away with a little cross contamination when eating out. As long a wheat/barely/rye are not intentional ingredients I am...
  21. trents
    This is not abnormal at all, Mary. I get almost exactly the same reaction as you do when I have an accidental ingestion of gluten to any extent. Before my diagnosis 23 years ago, when I was consuming gluten daily, my symptoms were very vague. A little tummy discomfort, occasional diarrhea, headaches. Now, after more than two decades of not being exposed regularly...
  22. trents
    Scott, I imagine the companies in question will not be forthcoming with responses to inquiries about this matter because some of them are in the process of litigation already and others fear it might be coming. They don't want to say anything they might regret that could become a part of public record. But I want to thank you for acting on behalf of our community...
  23. trents
    Jackie, unfortunately, medical doctors are not well-trained on nutritional issues and you are not likely to get much interest from you doctor about vitamin and mineral supplements. But on this forum we learn of the nutritional ravages of celiac disease everyday. We routinely suggest that newly diagnosed celiacs start taking a high potency B-complex vitamin...
  24. trents
    He can always stick to fresh naturally gluten free food items like potatoes, rice, fresh meat, fruit and veggies as opposed to prepackaged meals and entrees.
  25. trents
    "The biopsies of duodenal mucosa show increased intra-epithelial lymphocytes and severe villous blunting" I agree with you conclusion, Sarah. Time to put her on the gluten free diet in earnest.
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