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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Here is an article outlining the various tests that can be used to diagnose celiac disease: If your celiac testing proves to be negative, you need to look at NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it....
  2. trents
    But do you actually know what deficiencies she tested you for? Most traditional medicine doctors are not much into nutritional deficiencies. In my experience, they will test you for D and B12 deficiencies but that's about it.
  3. trents
    I think is is significant that you say your symptoms are worse after consuming gluten. Your next logical step would be to request a celiac panel including IGA and, since your total IGA is deficient, IGG antibody tests: TTG-IGA DGP-IGA TTG-IGG DGP-IGG You would need to be eat a significant amount of gluten daily, the equivalent of...
  4. trents
    Welcome to the forum, @alj67! Different labs used different ranges for all these celiac diagnostic tests in order to establish what is low vs. normal vs. high. Without knowing the range parameters used by the lab doing the analysis we cannot shed any light on your question. Do you have any more information? Was that the only test run? It looks like it...
  5. trents
    "Gluten Free" is an FDA standard that requires less than 20ppm of gluten. "Certified Gluten Free" is a GFCO standard that requires less than 10ppm gluten. GFCO is a third party internationally recognized certifying body.
  6. trents
    Okay, that sounds a lot better from a protein and calorie intake standpoint.
  7. trents
    No, this is certainly not normal. Besides 4 eggs a day, what else are you eating to get protein? Four eggs only gives you about 32-36 g. of protein daily. At your height and weight you ought to be consuming 3-4x that much at least. Have you had your pancreatic enzyme levels checked? I fear your are experiencing some kind of metabolic syndrome...
  8. trents
    More recent guidelines for the pretest "gluten challenge" specify at least 10g of gluten daily (roughly the amount in 4-6 slices of bread) for at least 2 weeks prior to either the blood antibody testing or the endoscopy/biopsy. To put it another way, more recent guidelines seem to advocate a higher amount of daily gluten for a shorter period than did the...
  9. trents
    If it's store brand what store do you refer to?
  10. trents
    Be careful about Trader Joe's gluten-free products. There was a big scandal back this summer over some of their gluten-free products testing well out of limit for qualifying as gluten free. There are threads about it on this forum if you want to look it up. I forget which TJ gluten-free products were involved but if I recall correctly their gluten-free bagel...
  11. trents
    Don't forget about NCGS.
  12. trents
    I assume you know that having one or more of the "celiac genes" does not equate to having celiac disease. Almost 40% of the population has one or more of the genes but only about 1% will develop active celiac disease. It's more of a rule out diagnostic measure in the sense that if you don't have one or more of the genes associated with celiac disease it is...
  13. trents
    Celiac disease is an autoimmune disorder. Hashimotos would not affect the villous lining of the small bowel. So, all things considered, it makes me wonder if you are on the cusp of celiac disease. I think you are at the point where you need to trial a gluten free diet for a few months and see if some of your symptoms improve. You have had both the blood...
  14. trents
    Welcome to the forum, @NatalieCO! So, you have conflicting results from two different tTG-IGA tests, one at 8.03 and the other at 4.62, i.e. one a weal positive and the other a negative. When they did the endoscopy, did they also biopsy the small bowel lining to have it checked microscopically by a lab for signs of the damage that would be caused...
  15. trents
    Delayed food sensitivity testing? Does that mean the testing itself was delayed or that testing was designed to detect delayed food sensitivity reactions?
  16. trents
    Welcome to the forum, @sadiec123! A couple of questions. First, what is the biggest driver behind your food anger? Is it having to deny yourself foods that you used to enjoy or is it the social cost of needing to eat gluten free? By social cost, I mean do you feel left out or even resented by family/friends at social events or do you avoid social...
  17. trents
    Welcome to the forum, @LinneaW! Yes, we do need more information. We would need the name of the antibody test performed and we would need the range used to establish positive vs. negative. These test ranges aren't standardized yet so each lab uses it's own range.
  18. trents
    Aspirin is an NSAID (Non Steroidal Anti Inflammatory Drug) and an analgesic (a pain killer). Theoretically, it could have some impact on masking the unpleasantness of a gluten reaction but in actual practice I would be very surprised if it offered any real benefit. And even so, aspirin tends to irritate the lining of the gut so that might offset any pain...
  19. trents
    The prescription version of Dulcolax may contain the same active ingredient but I wouldn't assume the non-active ingredients are the same as the over the counter product. I would check with the manufacturer of the prescription version to be sure. But if your procedure is tomorrow and you haven't finished the cleanout, will they go through with it?
  20. trents
    I had an uncle who was about TinaP's dad's age when he was diagnosed. By then he was a widower and had always been a very social person. Much of his life revolved around lunch meetings with his friends from church several times a week. Very early on after his diagnosis he realized that trying to maintain a gluten-free lifestyle was not going to be compatible...
  21. trents
    Karen9084, Dulcolax makes several different laxative products that work in different ways. Which one are you investigating as to being gluten free?
  22. trents
    Welcome to the forum, @amandavc! I would also think that your response to being glutened at any time might also depend on what else was in that meal that might have triggered histamine overload or other food intolerances that you might have developed since being diagnosed with celiac disease. And yes, I do think how we react to being gluten changes over...
  23. trents
    Ditto to what OfcVal said. It is common for celiacs to cross react to other foods like they do to gluten, especially foods that have proteins similar in structure to gluten. Chief among them are dairy, oats, eggs and soy. Dairy is the most frequent culprit. One small study found 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten. Just something...
  24. trents
    By the way, B12 is necessary for the uptake of iron. B12 deficiency is extremely common in the celiac population and, of course, plugs right into the fact of anemia also being extremely common in the celiac population. Some people have a form of anemia known as pernicious anemia in which the anemia is caused by the death of the parietal cells in the stomach...
  25. trents
    Welcome to the forum, @Jake R.! First of all, kudus to the doc who ordered the test checking for celiac disease based on the family history of it. Many in the celiac population suffer for many years before getting a proper diagnosis and that despite have classic GI symptoms. I will embed an article that you might find helpful in polishing your efforts...
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