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trents

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Everything posted by trents

  1. trents
    My understanding is that the biopsies should not be take from the pustules themselves but from the skin adjacent to them. It can be difficult to find a dermatologist who knows how to biopsy for dermatitis herpetiformis correctly. Do you have any GI involvement in your celiac disease? Have you had blood antibody testing done or small bowel biopsy performed...
  2. trents
    Many or most chewing gums have gluten in them. Also, check the jelly beans. The tuna is high in iodine. Iodine exacerbates dermatitis herpetiformis.
  3. trents
    @SunshineFace, the latest guidelines for the gluten challenge are 10g of gluten daily for at least 2 weeks. 10g is the amount of gluten in about 4-6 slices of bread. So, I would say you need to at least one more croissant daily.
  4. trents
    This conflicts with what you said above in your second post when you said he does have dairy. Yogurts and cheeses are dairy products.
  5. trents
    Lactose is the sugar component in milk, not the protein component. Many celiacs are lactose intolerant and this causes GI distress but would not damage the mucosal lining of the small bowel. I would like to echo what Scott is saying about the likelihood of some unexpected source of gluten having entered into your son's diet. Please read the article he linked...
  6. trents
    Welcome to the forum, @Kathleey! Does your son consume dairy? A certain percentage of celiacs experience villous atrophy from CMP (Cow's Milk Protein).
  7. trents
    Products labeled "Gluten Free" but not "Certified Gluten Free" do not require a certification "stamp". The "Gluten Free" standard is less than 20ppm (the FDA standard) whereas the "Certified Gluten Free" standard is less than 10ppm. Was the Trader Joe muffin in question labeled as gluten free or certified gluten free?
  8. trents
    Welcome to the forum, @Nicole Maree! Did you mean to say you are awaiting a "colonoscopy"? A colonoscopy cannot be used to check for celiac disease. Celiac disease damages the lining of the small bowel and a colonoscopy cannot reach up that far. They used an endoscopy for that. But maybe you are also having a lower GI scoping done to check for other possible...
  9. trents
    I heavily edited my previous post. Please review. I also wanted to make you aware that there are third party celiac blood antibody test kits available for around $100 USD. You mentioned that you had celiac testing coming up later this year. That sounds like UK health system wait times. Are you in the UK? At any rate, you might consider going third...
  10. trents
    Realize that for weeks/months leading up to celiac disease testing you must be eating generous amounts of gluten. The current recommendations are 10g of gluten (the equivalent of 4-6 slices of bread) daily for at least 2 weeks prior to testing and preferably, longer than that. So, if you are anticipating a celiac disease blood screening, I would go back...
  11. trents
    Okay, let's backup for the sake of clarity. Have you been officially diagnosed with celiac disease? How were you diagnosed? Did you get both celiac blood antibody testing done and an endoscopy/biopsy? Or, are you self-diagnosed? How often do you get "glutened"? Are you strict with your gluten free diet?
  12. trents
    AS to Brazil nuts, you could go for those still in the shell. That is, if you don't mind the challenge of cracking them open.
  13. trents
    For pumpkin seeds, this should meet your needs. I get them at Costco. Certified gluten-free.
  14. trents
    How long since your diagnosis and going gluten free has it been? Are you still experiencing diarrhea or other celiac GI symptoms?
  15. trents
    If pesticides and herbicides were totally banned we would all be hungry and paying much more for our food than we do now. Organic is a great idea on the surface but it is more results in smaller fruits and vegetables and smaller harvests. There is a reason why growers started using pesticides and herbicides in the first place and that is to keep bugs and...
  16. trents
    Antibody screening testing should always include total IGA along with tTG-IGA.
  17. trents
    If "hotspots" are the explanation, what can food companies do to address the problem? Even if they tested every batch, we're talking about variations within batches, not between one batch and another, correct? What is reasonable to expect of them?
  18. trents
    Keep us posted.
  19. trents
    Here's the NatureMade B-complex product I use with percentages RMDA percentages I get it at Costco.
  20. trents
    Why do you say that?
  21. trents
    The B-vitamins support one another as a group and it is wisest to supplement the whole spectrum of B's instead of targeting just one. They need to be in balance with each other. So, a B-complex supplement is best IMO.
  22. trents
    @Gabriellas mom, can you post the names and results of the specific tests you are referring to? There are blood antibody tests that are specific for celiac disease detection such as the TTG-IGA. Can you post them with results and with reference ranges for negative vs. positive. And then you mention that your daughter's bloodwork "shows a growth deficiency...
  23. trents
    Welcome to the forum, @Gabriellas mom! Although you don't use these terms, it sounds like celiac antibody blood tests were done and were strongly positive. That is normally the first stage of celiac diagnosis. The second stage is an endoscopy with biopsy of the small bowel lining to check for damage to that membrane. This is done to confirm the positive...
  24. trents
    I would also add that the B vitamins are water soluble so there is no concern with overdosing on them. Excess is just urinated out. Make sure all your vitamins and supplements are gluten free. Costco is a good place to find vitamins and supplements at a reasonable price and reasonable quality. Many or most of their vitamins and supplements are gluten free...
  25. trents
    Type 1 diabetes does have a genetic component: https://www.webmd.com/diabetes/diabetes-type-1-genetics You are more likely to develop Type 1 diabetes than the general population if one of your parents have it. As far at Type 1 being a disability, I see that the same as having celiac disease. If you are in a setting that allows you to do what you need...
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