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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    How will you gauge this?
  2. trents
    Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
  3. trents
    I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives...
  4. trents
    Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test...
  5. trents
    Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The...
  6. trents
    Welcome to the forum community, @Jesmar! The HLA DQ2 and DQ8 genes were the original halotypes identified with the potential to develop celiac disease. Since then, other genes have been discovered that apparently afford a predisposition to celiac disease. As is always the case, these new discoveries are not yet common knowledge and not yet widely dispersed...
  7. trents
    It's a moving target, isn't it!
  8. trents
    Yes, the yeast could have been cultured on a wheat substrate. But another batch may use a yeast extract cultured on something else that did not contain gluten. These food companies will switch suppliers according to what is the cheapest source at any given time. I take it you are a pretty sensitive celiac.
  9. trents
    Here are the ingredients listed for the regular sour cream and cheddar Ruffles: Potatoes, Vegetable Oil (Canola, Corn, Soybean, and/or Sunflower Oil), Maltodextrin (Made from Corn), Salt, Whey, Cheddar Cheese (Milk, Cheese Cultures, Salt, Enzymes), Onion Powder, Monosodium Glutamate, Natural and Artificial Flavors, Buttermilk, Sour Cream (Cultured Cream,...
  10. trents
    What is a "boots pharmacist"?
  11. trents
    But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo the "gluten challenge" before testing but you need to understand that the...
  12. trents
    Well, you asked how it could be gluten free and I was just explaining how it could be. And that must be the case sense the entire dish is being marketed as gluten free. If one of the ingredients is not gluten free, then the entire dish is not.
  13. trents
    There are a number of gluten free beer products on the market these days. Where have you been? It just has to be brewed from non-gluten containing sources such as sorghum.
  14. trents
    Bright blood in the stool would indicate bleeding down at the lower end in the colorectal area as opposed to the small bowel below the stomach where celiac manifests damage to the villous lining. Are these blood stools persistent? It's not unusual for this to happen once in a while to most anyone when a small surface vessel breaks, kind of like a nose bleed...
  15. trents
    There is no question that elevated liver enzymes are connected with celiac disease. That is a well established fact. I was one of those and mild but chronically elevated ALT and AST was what led to my celiac diagnosis. About 18% of celiacs have elevated liver enzymes. I would not trust a neurologist to give a valid answer to your question about that. He/she...
  16. trents
    Welcome to the forum community, @lasthope2024! Many of the symptoms you describe seem to have been temporary and transitory. What would you say is your biggest current cause of concern and suffering? May we ask you age?
  17. trents
    1000 mcg of B12 supplementation is peanuts. You should be taking 5000 mcg. and you should be taking a high potency B-complex to boot. The B-vitamins are seldom found in isolated deficiencies but are usually deficient as a group. If you live near a Costco, their Nature Made product line is a good choice and if gluten free will be labeled as such. Most of them...
  18. trents
    How many mg or IU of B12 are you taking daily? One way to address malabsorption inefficiency is to just take more of the supplement. For example, if your absorption efficiency is 25% of normal, you could theoretically, uptake the same amount as someone with 100% absorption efficiency by taking four times as much. Are you also anemic by some chance? B12 uptake...
  19. trents
    Your symptoms definitely align with celiac disease and your endoscopy/biopsy certainly points to possible celiac disease. However, your celiac antibody testing does not. This could very likely be due to inadequate gluten consumption during the weeks/months leading up to the blood draw. Guidelines for the gluten challenge are evolving but the current trend...
  20. trents
    Welcome to the forum, @gameboy68! The lab numbers you gave are not helpful to us because you did not include the reference ranges for negative vs. positive. Especially for the celiac antibody tests this is critical info since there are no industry standards. Each lab develops their own tests and uses custom reference ranges.
  21. trents
    Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
  22. trents
    Welcome to the forum community, @Dave R! You certainly have a lot to cope with at the current time. Because of years of living with undiagnosed celiac disease, I have osteopenia but relatively minor fallout from it at this point. I'm about to turn 73 and have some lower back discomfort, particularly when sleeping and some kyphosis (curvature in the upper...
  23. trents
    Okay, I must have misunderstood. I thought your said the Mauna Loa macadamia product itself had the gluten free label.
  24. trents
    If the product has a gluten free label that would cover the flavoring component as well. But realize that in order to bear the "gluten free" label a product just needs to test under 20ppm of gluten which is not a strict enough standard for some celiacs. "Certified Gluten Free" requires a stricter standard - under 10ppm of gluten. On the other hand, you could...
  25. trents
    Then maybe the OP should talk to the gastro doc at the appointment about granting a celiac disease diagnosis on the high antibody count alone so as not to have to go through the endoscopic procedure. Cristiana, if it is true that a PCP cannot officially diagnose celiac disease then it must be true that a GI doc can do this since we do know that many in the...
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