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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    cristiana, correction to something you posted earlier in this thread. Certified Gluten Free products contain less than 10ppm of gluten. Gluten Free products contain less than 20ppm of gluten, at least that is the standard here in the USA. But the CFGF is an international standard.
  2. trents
    The PPI increases the PH of the gut (makes it less acidic of an environment) and reduces the absorption of vitamins and minerals from your diet.
  3. trents
    Welcome to the forum, @MzMillz! Some clarification from you first, please. Your post's subject line says "Wheat Allergy". Yet, your actual post speaks of avoiding gluten as if you may have celiac disease. Celiac disease is not an allergy. It is an autoimmune disorder. Have you been officially diagnosed with celiac disease?
  4. trents
    https://health.usnews.com/wellness/food/articles/glutathione-benefits "Taking glutathione supplements isn't an evidence-backed way to improve your health. While there's no question that glutathione produced by the body has a number of health benefits, the benefits of glutathione supplements are not established."
  5. trents
    Welcome to the forum, @McNeill! Gastritis, GERD is common in the celiac population. It was/is one of mine as well. Mine is complicated by a hiatal hernia such that my LES (Lower Esophageal Sphincter) doesn't seal well. Ann, you would so well to look into histamine intolerance/MCAS (Mast Cell Activation Syndrome) and a low histamine diet. The...
  6. trents
    You seem to be taking all the necessary precautions to avoid gluten in a shared kitchen situation. I wouldn't worry about airborne gluten unless you worked in a flour mill or a bakery.
  7. trents
    In some countries, there is government subsidization of gluten free food products as well as follow-up care if there is an official diagnosis of celiac disease. It is also true that, psychologically, it seems to be necessary for some people to have an official diagnosis in order to not rationalize it away and keep falling off the wagon. And most countries...
  8. trents
    Do we know any specifics about which oat varieties elicit a gluten-like response in the sub population of celiacs in question?
  9. trents
    You need to be on some high potency vitamin and mineral supplements. I'm talking about more than an adult multivitamin. Sublingual B12, B-complex, 5-10,000 IU of D3, Magnesium glycinate or magnesium citrate, and zinc. Make sure all are gluten free. What does your CBC say your hemoglobin score is? You might also need to be on an iron supplement. If you take...
  10. trents
    I think one thing that needs to happen is a standardization of testing method. More research needs to be done to determine the most reliable testing method and then regs need to be put in place mandating that this method is applied industry wide by those using gluten-free and CFGF labels. So far, it seems that the G12 ELISA test is the best candidate.
  11. trents
    The problem with restaurants that have gluten-free menus is that it doesn't eliminate cross contamination in the way they cook and handle the food back in the kitchen where they are using the same grills, pots and pans and utensils they are using to cook and handle wheat containing foods. The food may start out as gluten free but get's cross contaminated...
  12. trents
    Welcome to the forum, @GeneticMess! The answer is yes. Celiac disease damages the mucosal lining of the small bowel which is the area of the intestinal track where all of our nutrition is absorbed. This "villous lining" is composed of millions and millions of tiny finger-like projections that creates a huge amount of nutrient absorbing surface area....
  13. trents
    Welcome to the forum, @anonymous66801! First, I would not take your cardiologist's vegetarian advice too seriously. You might want to cut out red meat but keep chicken, turkey, fish, eggs and low fat dairy for the protein. It is difficult to get sufficient protein on a vegetarian diet and nearly impossible to get vitamin B12 on a vegetarian diet. As...
  14. trents
    Welcome to the forum, @barb hankins! Tell us about yourself. Have you been officially diagnosed with celiac disease? If so, how long ago? Have you been following a strict gluten free diet? For bone health, it's important to be getting plenty of magnesium and D3 and not just calcium. Are you on medication for acid reflux disease by any chance...
  15. trents
    Personally, I would not be concerned about this at Starbucks. I can't imagine anything they might put in their coffee orders that might have gluten in it or that any utensils used in food preparation would be used in coffee making.
  16. trents
    Frankly, we are all wondering if we can trust the labels "Gluten Free" and "GFCO" any longer. But they are currently our best options. Hopefully, there will be some stricter testing regulations put into place in the wake of recent revelations of laxity. I'd still encourage you to add in a full-spectrum high potency B-complex product into your supplement...
  17. trents
    Are you taking any high potency vitamin and mineral supplements that would address neurological health such as B-complex, D3, and Magnesium glycinate or Magnesium citrate? I'm talking more than a multi-vitamin product here.
  18. trents
    First, I have never head of IvIg treatments. What does this involve? Second, I would investigate what besides celiac disease/gluten sensitivity can cause elevated DGP-IGA levels. It's always better to address the cause rather than to treat the symptoms if you can. My guess is you are still getting some small gluten exposure consistently. I note...
  19. trents
    Celiac disease damages the villous lining of the small bowel. This is the area of the intestinal track where all of our nutrition is absorbed. Long term, undiagnosed celiac disease invariably results in vitamin and mineral deficiencies. It typically takes two years or longer after going gluten free to experience full healing of the small bowel lining so that...
  20. trents
    It's also important to understand that celiac disease is not an allergy to gluten. It is an autoimmune disorder fueled by gluten consumption. Food "sensitivity/intolerance/allergy" testing does not address this spectrum of the immune system response. Autoimmune disorders are characterized by the immune system attacking the body's own tissues. Having said...
  21. trents
    An ordinary adult multi vitamin is not a high potency supplement so I think you need something stronger than gummies.
  22. trents
    Welcome to the forum, @Suzyq112! Many or most of the symptoms you describe are not unusual in the celiac community. There is this misconception out there that celiac disease only produces GI symptoms but we now have identified over 200 medical conditions and symptoms associated with celiac disease. Many doctors are still in the dark about this, however...
  23. trents
    Welcome to the forum, @Rageagainstthewheat! First, let's deal with terminology because you may not be using the term "intolerance" in the same way as it is normally deployed when referring to gluten-related disorders. Gluten is found not only on wheat but in barley and rye. Though you will find some inconsistency in how people use the terms "intolerance...
  24. trents
    @Gemz, 14 weeks should be plenty of time for the gluten challenge but make sure you are also eating enough gluten daily during that time. More recent guidelines call for the daily consumption of at least 10gm of gluten (the amount found in about 4-6 slices of bread) for at least 2 weeks before either the blood antibody test or the endoscopy/biopsy. So, however...
  25. trents
    Welcome to the forum, @Gemz! Shame on your doctors and their ignorance.! It does matter whether or not you have been eating gluten free before being tested for celiac disease, whether it be the blood antibody test or the endoscopy/biopsy. We hear this same story from new members all too often! The fact that you have an issue with gluten is indisputable...
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