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So confused


Diane London

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Diane London Newbie

🫣 Hello my name is Diane, I was diagnosed with cileac disease & Barrett's esophagus. Have had 2 scopes done. Second one couple weeks ago.Came back worse than my first. Having such a hard time celiac tells you can eat one thing & Barrett's says no. All I was told was do a gluten free diet for celiac. Barrett's if it hurts me don't eat it that's it. I also have type 2 diabetes. Still on all my meds. I'm so mixed up can't hardly sleep my Barrett's went from stage 2 to stage 3. My celiac went from a 2 to a 6. Can anyone help me to understand please 🙏. I also feel that the food for these is so expensive we should get help some help. Just saying being on disability me & my husband can be hard. Have a wonderful blessed day thank you Diane 🙏 

 


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trents Grand Master

Welcome to the forum, @Diane London!

How long ago were you diagnosed with celiac disease?

Have you checked your meds and supplements for being gluten free? Wheat starch can be used as a filler in pills and also can be used to make the gel caps. I'm attaching this article to help you with the gluten free eating part as there is always a considerable learning curve involved in getting to the point where you are actually eating gluten free and not just eating a lower gluten diet.

If you depend on a lot of premade gluten free foods it indeed gets expensive to eat. However, it's not all that difficult to eat gluten free using mainline foods not bearing the "gluten free" label that are, nonetheless, gluten free by the nature of what they are. But it takes discernment. The key is to focus on fresh meat, veggies and fruit and cooling simple, that is, avoiding a lot of seasonings and sauces, which, can be sources of gluten. This would also probably be helpful in controlling your diabetes. Eating out poses the biggest threat to the gluten free diet effort.

 

knitty kitty Grand Master

Welcome to the forum, @Diane London,

I found cutting out sugar and processed foods very helpful.  I followed the Autoimmune Protocol Diet (AIP diet).  Meat, veggies and fruits are naturally gluten free.  Processed gluten free facsimile foods are not nutritionally sound.  They are filled with excess sugars, excess fibers and fillers and are devoid of vitamins.  

Barret's Esophagitis is connected to Thiamine Vitamin B1 Deficiency.  Celiac Disease causes malabsorption which can result in vitamin deficiencies.  Thiamine is the vitamin that runs out first because we need so much of it but can't absorb enough. 

Have you been checked for nutritional deficiencies?  This is part of proper follow up care for Celiac Disease.  Talk to your doctors about supplementing with essential nutrients while healing. 

I have diabetes as well as celiac disease, too.  Following the AIP diet has helped reduced inflammation and helps keep my glucose levels from becoming too high.  I also supplement with essential vitamins and minerals. 

Most Diabetics are deficient in Thiamine because we lose so much Thiamine because our kidneys don't re-absorb thiamine correctly.  

Here's some interesting reading:

https://hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/

And...

https://hormonesmatter.com/more-about-eosinophilic-esophagitis/

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    • JA917
      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
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    • trents
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    • Art Maltman
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