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trents

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Everything posted by trents

  1. trents
    matts, can you please post the actual name of the test you allude to in your original post? We are uncertain which test you refer to as there are a number of blood antibody tests that can be run for celiac disease. Some of us assumed it was the tTG-IGA test since that is the first tool (and often the only one) that most physicians will grab out of the diagnostic...
  2. trents
    Welcome to the forum, @Allias! May we assume you have been officially diagnosed with celiac disease? You do not address this at all but I assume you are a celiac since you are posting on a forum dedicated to that medical condition. Or, perhaps you are investigating the possibility of celiac disease as the reason for your poor calcium, folate, and iron...
  3. trents
    For the doctor to say the results of the test were "satisfactory" is rather odd. By that did he mean he didn't think you have celiac disease.? I mean, the result of the test is positive for celiac disease. Or, did he mean that it was satisfactory in the sense of agreeing with your symptoms and family history as indicating celiac disease? It was a rather ambiguous...
  4. trents
    Digestive enzymes won't help with gluten disorders per se but can often help with pancreatic enzyme deficiency related digestive problems. I'm not sure that having an IGA deficiency necessarily predisposes one to decreases in infection fighting ability but that's a good question to ask your physician.
  5. trents
    Welcome to the forum, @cjjones5969! Just out of curiosity, if you had no symptoms, what led to your diagnosis? You may have developed some additional food intolerances which is very common in the celiac community, particularly with foods whose proteins are similar to gluten. Chief suspects are dairy and oats, even gluten free oats. The protein casein...
  6. trents
    Just a heads up. Not every dermatologist is familiar with dermatitis herpetiformis nor knows how to correctly biopsy it. One common mistake made is to take the sample from the pimple instead of next to it. I agree with Scott. Your reaction to gluten is very strong and you putting your health at risk by trying to go forward with a proper gluten challenge...
  7. trents
    So, you did have symptoms: vomiting and diarrhea. They are classic symptoms of celiac disease. That must be why they checked you for celiac disease. A colonoscopy cannot be used to diagnose celiac disease. The scope can't reach up into the small bowel from the lower end. The kind of scoping they do to check for celiac disease is called an endoscopy. The go...
  8. trents
    Check with your doctor to find out if he/she wants to refer you to a GI specialist for an endoscopy/biopsy to confirm the results of the blood antibody testing or whether or not the tTG-IGA levels are high enough to grant a celiac disease diagnosis without further tests being done. If further testing is expected, you need to refrain from starting a gluten...
  9. trents
    Welcome to the forum, @BadHobit! For the biopsy they only took one sample from the stomach and one from the small intestine? They should take several samples from the small bowel as the damage from celiac disease can be patchy. Sounds like you were the victim of poor timing with regard to each of your celiac testing experiences in the sense of...
  10. trents
    @Vickey Matteson, cristiana expanded on the point I was trying to make. The term "symptom" has a broader meaning than just physical discomfort. You may feel fine but if a medical disorder is causing lab values to fall out of norm, such as iron or liver enzymes or vitamin D3 or B12 levels or bone/tooth demineralization or if you have developed a secondary...
  11. trents
    Welcome to the forum, @Vickey Matteson! What you describe is actually very common in the celiac community. We call it "silent celiac disease". Silent in the sense of not causing significant discomfort or distress. After diagnosis, many silent celiacs look back and realize they did have some symptoms but they were so minor as to not grab their attention...
  12. trents
    As far as your neck and shoulder pain goes, yes, this could be a symptom of celiac disease as one of the more than 200 symptoms associated with celiac disease is joint pain.
  13. trents
    10g of gluten or the amount in about 4-6 slices of bread daily for several weeks should be a sufficient "gluten challenge". Your primary care provider should be able to order those tests.
  14. trents
    Before you conclude you don't have celiac disease, you should request a more complete celiac blood antibody panel. You got the bare minimum blood test. You should ask for: Total IGA tTG-IGA DGP-IGA DGP-IGG TTG-IGG You need to have been eating generous amounts of gluten for weeks beforehand but sounds like you are aware of...
  15. trents
    Welcome to the forum, @Neat1! Can you list the celiac blood antibody tests that were done? Another possibility is that you are IGA deficient which can create false negatives on IGA-based antibody tests. There is a blood test to check for that, commonly known as "total IGA" but many docs don't know to run it.
  16. trents
    @N00dnutt, Greetings from the "left coast". That's how those of us of coming from a conservative perspective in the USA disparagingly refer to the states (California, Oregon and Washington) that border the Pacific ocean and are very politically and socially "progressive". Formerly known as the "west coast". Thanks for your entertaining explanation and...
  17. trents
    Have you tried a diet with a lower carb, higher fat content, something similar to the Keto diet? Are you familiar with the ketogenic diet? Fat satisfies and so curbs hunger and levels out blood sugar.
  18. trents
    But that's the point Scott is trying to make. It is up to you. You do not have to go forward with another biopsy simply because your doctor wants you to. They work for you, not the other way around.
  19. trents
    But there will still probably be times when you will get together with your brother and father in their home when food will be involved. You need to think through how you will handle that. In the meantime, separate your stuff from their stuff and keep it under lock and key if necessary.
  20. trents
    Okay, so two issue here: 1. Your brother is creating CC (Cross Contamination) problems by using your gluten free food items and mixing into them gluten containing food. I would suggest you consider keeping your gluten free food items in your bedroom instead of the kitchen. Consider getting a small fridge that will fit in your bedroom for things that...
  21. trents
    Welcome to the forum, Drewy! So help me understand about the Tacos and "trying to keep my gluten free food from my dad and brothers gluten food." When you say, "keep my gluten free food" from them, do you mean they take your gluten free food items and then use them to make meals that also us gluten things? So, for instance, they would make taco...
  22. trents
    As Scott pointed out, there are too many variables to be able to give a black and white answer to your question. Another variable I would mention is the huge range in sensitivity to small amounts of gluten exposure that is found in the celiac community. What will trigger a reaction in one celiac may not in another. One more variable is the amount of gluten...
  23. trents
    Welcome to the forum, @Chris Tonelli! Has she been officially diagnosed with celiac disease? When gluten containing grains are removed from the diet, so is a major source of vitamin and mineral content. Gluten-free flours are not required to be enriched with vitamins and minerals by the FDA as are mainline flours. Your granddaughter should be on...
  24. trents
    You are more than welcome. Blessings on your work in this area and thank you for watching out for those of us with gluten disorders.
  25. trents
    Why would B12 give you hives? Never heard of that! Are they saying some filler in the B12 tablet is causing the hives?
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