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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Julianne101! Your experience is exceedingly common in the celiac community. First, regardless of how gluten free the food was in the restaurant experience you described actually started out to be, you have no idea what measures were taken in the cooking, preparation and handling to prevent cross contamination. Sounds...
  2. trents
    Well, you have some decisions to make. If you want an endoscopy, you must start the "gluten challenge" and daily eat the gluten equivalent of 4-6 slices of bread for several weeks.
  3. trents
    Your PCP is not well informed. The tTG-IGA is a very reliable celiac blood antibody test. There are some other foods, medications and diseases that can cause elevated tTG-IGA but the chances of the elevated tTG-IGA count being due to some other cause than celiac disease is not very great. This is especially true given your symptoms, your genetic profile and...
  4. trents
    Keep us posted. I'm guessing there are others who would like to know how to make it for themselves. Stuff like that is expensive to buy ready made.
  5. trents
    Well, questions just can't be answered except by hands on experimentation I guess. Press on!
  6. trents
    Welcome to the forum, Rubii! A normal biopsy despite having classic celiac symptoms and a high score on the TTG-IGA antibody test could be cause by a couple of things. One, your celiac disease could have been caught at an early stage before enough time had lapsed for damage to be done to the villous lining of the small bowel. Second, and this is more...
  7. trents
    There are two traditional Asian recipes for soy sauce. One contains wheat and it is the most popular one and the one you usually see in restaurants and on grocery shelves. The other does not contain wheat. Kikkoman makes a line of gluten free soy sauces and teriyaki sauces. Walmart and others carry them.
  8. trents
    The only possible difference I would think would be whether or not either of the two is ground with the skin intact on the seeds.
  9. trents
    I think 5 weeks should be sufficient but it probably doesn't matter if it's whole wheat or white as long as it's bread made from wheat flour.
  10. trents
    Welcome to the forum, @RedPandi! I don't know that I'd make too much out of the variation in your reaction to different gluten-containing foods. It could be due to many things including the amount of gluten in different sources, how full or empty your gut is at the time of consumption, the buffering effects of other ingredients on the rate of digestion...
  11. trents
    Ask for a more complete celiac panel that includes more than IGA antibody tests. Young children have immune systems that are immature and they often don't respond the same way to IGA antibody testing as adults do and so it can be valuable to check for IGG antibodies. Ask for: Total IgA TTG-IGA DGP-IGA DGP-IGG It is also possible she...
  12. trents
    Welcome to the forum @MariaC! The test terminology you supplied is unfamiliar to me but I will assume Russ H is correct in his interpretation that they are not specific to celiac disease. Were there other celiac specific tests ordered that you did not list, perhaps ones that were negative? There are blood antibody tests designed to specifically...
  13. trents
    I have been on Coumadin for years because I have a genetic blood clotting disorder known as Factor 5 Leiden. I think it's mainly green leafy veggies that you have to worry about. They are the ones high in vitamin K. And if your are consistent in your consumption of them it your INR should level out. I get my INR checked every 6 weeks. Certain medications...
  14. trents
    Any NSAID has potential for creating peptic ulcers if used regularly. Some more than others. Cox 2 inhibitors are less prone to cause that issue but even they don't eliminate the possibility altogether. Coumadin does not harm the gut if you need a blood thinner.
  15. trents
    I agree with knitty kitty.
  16. trents
    So, did you get the decimal point wrong in both places? Was that original tTG-IGA 18.9 instead of 189? So, did it go from 18.9 up to 22.6 or from 189 down to 22.6? The endomycial (aka, EMA) is an older test and has generally been replaced by the tTG-IGA which is less expensive to perform and pretty much tests in the same way. It is more sensitive than...
  17. trents
    Looks like what was not done that should have been done was Total IGA. If total IGA is low, it can drive other IGA scores down toward the negative range. Was he avoiding wheat-based foods by any chance when the blood draw was taken?
  18. trents
    Welcome to the forum, @Deborah123! Can you be more specific about which blood test for celiac disease was done? Do you have a record of the testing that you can access? There are several that should be ordered by many physicians will only order the tTG-IGA which may not be a good choice for a child so young because their immune systems are immature. ...
  19. trents
    RMJ makes a great point about the high level of antibodies continuing to do damage for awhile. I have participated in this forum for years and that is the highest tTG-IGA antibody score I have ever heard of by far! Did you really mean to typed 3000 and not 300?
  20. trents
    One of the symptom categories we now know that can accrue from celiac disease is neurological problems. Several of her symptoms could fall into that grouping: swallowing, blurred vision, headaches. The blood antibody score of 3500? Was that tTG-IGA? Was her biopsy positive and was it given a Marsh scale score? I'm wondering if she has some severe...
  21. trents
    Welcome to the forum, @kate g! Moving up to a new level of school can be very stressful. How's your daughter's stress level? Some of her symptoms could be stress related but the swallowing issues and blurred vision are not likely among them. There can be withdrawal symptoms when going gluten free but she should be past that now and besides, the...
  22. trents
    Wheatwacked, my definite impression is that NCGS is commonly referred to as gluten sensitivity (hence the word "sensitivity" in the acronym) whereas gluten intolerance is generally used as a synonym for celiac disease. But it is true, there is some inconsistency in the literature in terminology usage.
  23. trents
    Have you had your gall bladder checked?
  24. trents
    There are specific blood tests to check for celiac disease (aka, gluten intolerance) and your symptoms scream of that. You must have been eating generous amounts of gluten (the equivalent of 4-6 slices of bread) for at least two weeks for the testing to be valid, however. I would be concerned that since you have been cutting back on your wheat consumption...
  25. trents
    I can't comment on your main question but I would make you aware that there is somewhere between a 10% and an almost 50% chance that your children will develop active celiac disease some day. Earlier studies put the figure at 10% but some recent larger studies (two that I know of consisting of over 300 family members each) found the rate of active celiac...
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