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Newly diagnosed Celiac


Aussie Celiac

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Aussie Celiac Newbie

Well at the ripe old age of 55 I'm newly diagnosed as Celiac. What a surprise.  I was low in iron and this was the only symptom. Well I did get heartburn after eating bread but according to all sources this isn't officially a symptom! Better late than never lol. 


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trents Grand Master

Welcome to this online community and to the celiac nation, @Aussie Celiac! Let us know if we can help you with anything as you start the journey. By the way, we have forum participants who weren't diagnosed until they were in their 80s. It is often the case that the actual onset of the condition precedes the official diagnosis by many years, especially when symptoms are minimal. I was 50-51 when I was diagnosed but looking back I had laboratory evidence of the onset preceding the diagnosis by 13 years. It probably took years for your celiac nutrient malabsorption to deplete your iron stores such that nothing was left in the bank and your actual hemoglobin levels began to drop.

Scott Adams Grand Master

Welcome, and heartburn is a symptom, along with ~200 other symptoms, but many celiacs have no symptoms, however, this does not mean that their health is not at risk should they keep eating gluten--the health risks are the same to all celiacs, regardless of whether or not they have symptoms.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

knitty kitty Grand Master

Welcome to the tribe, @Aussie Celiac

How are you progressing?  Are your iron levels getting better?

Aussie Celiac Newbie

Hi there, I haven't been back for another blood test. I had an iron infusion awhile ago and feel a bit better. It's only quite recent so hopefully things will improve. 

Peace lily Explorer

Welcome to the forem

i got diagnosed in march with cealiac it’s been a process for me

 I’m strictly gluten free . I went years with suffering with the pain . Don’t want to go thru with that again if I can help it but I found you really have to read the labels on food products . I had a nutritionist for awhile and helped me get thru this who new soy sauce has gluten in it.

plus this forem helps a lot you will get a lot of knowledge.

good luck

peace lily

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    • Stegosaurus
      i used to get cold sores frequently before I went gluten free.  Then I only got them when stressed.  Then I cured my gut dysbiosis, and haven't had one in 20 years.
    • Aretaeus Cappadocia
      To me, this bread is pretty special. The first time I tried adapting it I used a commercial gluten-free flour blend and it was good, but when I experimented using individual flours I tried the almond flour and it took it from good to special. I add walnuts or pecans to a lot of my desert bread recipes but I haven't tried nuts with this one. I would guess that adding either of them would result in the whole being less than the sum of the parts because the almond and other nut flavors would be competing. I wouldn't want to add almonds because of the texture. But you never know until you try. Have not tried cinnamon in this recipe. I imagine it would work. As I modified this recipe from the original, I reduced the sugar. The posted recipe is what I currently use. You are right that the pears bring a little sweetness to it.
    • Aretaeus Cappadocia
      It's kind of funny that before my celiac diagnosis I did a lot more "functional eating" where I just needed a meal and wasn't so worried about how interesting/delicious it was, just needed to eat something. After my diagnosis I've become a dedicated cook and I am very tuned into flavor and novelty. In answer to your question, I find the recipe very forgiving for trying add-ins. I've supplemented the greens with green onions, bell pepper (any color), celery leaves and stalks, and fresh parsley. Sometimes I throw in pepitas (pumpkin seeds), craisins, walnuts and/or sunflower seeds. One thing I tried that didn't really work was currants. I think that maybe it's because they are too small and too sweet. I haven't experimented with cheeses beyond the 2 in the recipe. I would guess that grated hard cheeses would work, medium hard cheeses (like swiss or cheddar) might work, and soft cheeses would not.
    • Harris
      That actually sounds really nice. Pear bread feels like one of those things that would be soft and a little sweet without being too heavy. I like the idea of using fruit like that instead of just relying on sugar. It probably makes it feel more fresh and homemade. Have you tried adding anything like cinnamon or nuts to it, or do you keep it simple?
    • Harris
      That actually sounds really good, I wouldn’t have thought to mix sorghum with kale but it makes sense. The roasted cherry tomatoes probably bring a nice bit of sweetness to balance everything out. I’ve been trying to find more simple gluten-free meals that don’t feel boring, and this feels like something you could make ahead and just keep eating through the week. Did you add anything else to it, like nuts or cheese, or keep it pretty simple?
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