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trents

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Everything posted by trents

  1. trents
    Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well. If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
  2. trents
    Welcome to the forum, @Tyoung! Apparently, folic acid in supplements is readily absorbed into the bloodstream as opposed to getting folate from natural food sources. So, high levels in the blood can happen quickly from supplementation: Your body doesn’t absorb folate as easily as it absorbs folic acid. It’s estimated that about 85% of folic aci...
  3. trents
    Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
  4. trents
    Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption...
  5. trents
    The elevated TTG-IGG could be caused by celiac disease but it can be elevated for other reasons as well. The centerpiece of celiac blood antibody testing is the TTG-IGA and apparently that was not elevated. When you had the blood draw done for the testing, had you already been cutting back on gluten?
  6. trents
    @Oriol, I am jealous!
  7. trents
    One of the manifestations of celiac disease that some people experience is a rash known as dermatitis herpetiformis. It has little pustules in the center of the bumps. There is no other know cause for dermatitis herpetiformis other than celiac disease. If properly biopsied during an outbreak, dermatitis herpetiformis can be used to diagnose celiac disease...
  8. trents
    Welcome to the forum, @JohannesW85! Your physician gave you bad advice in telling you to avoid gluten until the hospital calls you. Reducing gluten intake will invalidate celiac disease blood antibody testing but it will also invalidate the gastroscopy/biopsy if there is significant time involved between removing gluten and when the procedure is scheduled...
  9. trents
    From the article you linked: "Currently, there are no recommended methods to test for non-celiac gluten sensitivity." "No recommended methods" is the key phrase here. Just on the anecdotal evidence of reading many posts on this forum, I think we sometimes see some elevated igg test scores with NCGS. They seem to be mildly elevated in these cases, not high...
  10. trents
    Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds...
  11. trents
    Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis...
  12. trents
    Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires...
  13. trents
    Welcome to the forum, @Pinkwells19! Can you be more specific about what the name of the test was that scored a 13? There are a number of blood antibody tests that can be run to test for celiac disease. Also, can you give the range that was used for positive vs. negative on the blood test. There are no industry standards for these tests so we need both...
  14. trents
    Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well: Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative...
  15. trents
    Yes, I can imagine. My celiac journey started with a rejection of a blood donation by the Red Cross when I was 37 because of elevated liver enzymes. I wasn't a drinker and my family doctor checked me for hepatitis and I was not overweight. No answers. I thought no more about it until six years later when I landed a job in a healthcare setting where I got...
  16. trents
    To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would...
  17. trents
    Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is...
  18. trents
    Just a heads up, if your butt sores go away on a gluten free diet, you would need to go back to eating gluten for a period of weeks or months if you want to get formally tested for celiac disease. Otherwise, the testing will be invalidated.
  19. trents
    https://www.drugs.com/inactive/sodium-starch-glycolate-128.html https://celiac.org/gluten-free-living/gluten-in-medicine-vitamins-and-supplements/ Santina, are you a super sensitive celiac? If there is gluten in the starch used in this med it would be a very small amount since gluten is the protein component of wheat, not the starchy part. You can...
  20. trents
    You say you have gluten sensitivity? Have you been officially diagnosed with celiac disease or do you refer to NCGS?
  21. trents
    Scott, I know full well that celiac disease is an autoimmune disorder and gluten sensitivity is not. And I agree that there is inconsistency in the use of the terms. But my contention is that "gluten intolerance" should not be used of NCGS since "gluten sensitivity" is actually found in the gluten disorder known as Non Celiac Gluten Sensitivity and, therefore...
  22. trents
    I wonder why they put dextrose in it?
  23. trents
    I'm wondering if this is the same issue some celiacs have with distilled liquors. The complete gluten molecule is too large and heavy to to travel up with the vapor but if their are gluten fragments created by the heat, they may not be and the immune systems of some celiacs still recognize it as gluten. I have no scientific proof for this, just a thought...
  24. trents
    There is dextrose in table salt?
  25. trents
    Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
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