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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Not long before my celiac dx I was experiencing proctalgia fugax but it seems to have disappeared and I haven't been bothered with it in over 20 years.
  2. trents
    I contacted the company and they explained that the barley ingredient is taken from barley sprouts, not the mature grain head seeds. The sprouts do not contain gluten. Gluten production comes at a later stage in the plant's development. This is science. Some of you who are reacting to this product may be reacting to other ingredients and not gluten or...
  3. trents
    Welcome to the forum, @Tyoung! It is possible that you are experiencing some kind of gluten withdrawal but I would thing that would have started to subside by now. There are a couple of possibilities that come to mind. One is the polysaccharide ingredients that are typically found in prepackaged "gluten-free" wheat flour facsimile foods. If...
  4. trents
    Welcome to the forum, @Kwinkle! Realize first that the B vitamins are water soluble which means excess is excreted in our urine and does not build up in our tissues like fat soluble vitamins do. So, there is little risk of toxicity with large doses of the B's. Second, if you start with smaller doses they may not be large enough to be therapeutic...
  5. trents
    There is no established connection between type 2 diabetes and celiac disease. There is a connection with type 1, however, as about 6% of those with type 1 diabetes also have celiac disease. This rate is 6x that of the celiac rate found in the general population. https://celiac.org/about-celiac-disease/related-conditions/diabetes-and-celiac-disease/
  6. trents
    Welcome to the forum, @BeeBarnard! I really can't imagine how either skin or skinless chicken thighs could not be gluten free unless one or the other were treated with some seasoning ingredient that was not gluten free. Do the product labels indicate any additional ingredients added to the meat? Is your daughter a super sensitive celiac? If not, the...
  7. trents
    Well, I strongly disagree that it was a comprehensive celiac disease panel. In addition to the tTG-IGA and the Immunoglobulin A, a comprehensive celiac panel would have included DGP-IGA, DGP-IGG and TTG-IGG. What he ordered was the most popular celiac antibody test available (and perhaps the best one), the tTG-IGA and he also, to his credit, ordered the Immunoglobulin...
  8. trents
    Our insight into the immune responses involved in celiac disease has steadily increased and there have been many attempts to develop drug therapies to either break down gluten before it triggers immune system responses or to, in some way, trick the immune system into no longer identifying gluten as a threat. So far, all these attempts have been disappointments...
  9. trents
    Welcome to the forum, @KCGirly! From Wikipedia on Semaglutide: "The most common side effects include nausea, vomiting, diarrhea, abdominal pain, and constipation." How much gluten are you consuming daily? Recently revised recommendations are for the daily ingestion of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at...
  10. trents
    I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases...
  11. trents
    Welcome to the forum, @emily 1! "stock" pain?
  12. trents
    The silence is deafening.
  13. trents
    Welcome to the forum, @LKMatchett! This is basically the same question as are distilled spirits made from wheat/barley/rye gluten free, a question which has stirred a great deal of controversy on this forum. So, expect to get a lot of conflicting responses with strong opinions. There are scientific reasons to conclude "no" but anecdotal reasons to conclude...
  14. trents
    Even 10,000 IU daily should be safe for as long as it takes to get your levels up to snuff. Historically, early on concerns about toxicity concerns from D3 supplementation have proven to be to be overly cautious.
  15. trents
    Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the...
  16. trents
    The only vegetable sources of B12 are some fermented bean products using a certain microbiotic culture. It is next to impossible to get adequate B12 from vegetable sources without supplementation. Same with D3. Some mushrooms can make D3 when exposed to UV light. Are you vegetarian or vegan? Do you do dairy and eggs or no animal products at all? Low...
  17. trents
    Russ, can you link an article supporting your assertion that small amounts of gliadin are detectable in human breast milk? Not doubting you but it would be nice to have the whole text for reference.
  18. trents
    See attachment which is excerpted from this article:
  19. trents
    Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing...
  20. trents
    It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
  21. trents
    Well, the only thing I would conclude with would be, if you choose not to trial the gluten free diet, is to encourage you to get periodically tested, either antibody blood tests or the biopsy or both. I think it something that needs to be monitored.
  22. trents
    Well, I wouldn't rule either out. And you might consider trialing a gluten free diet for a few months to see if symptoms improve. That would tell you a lot. By the way, the incidence of other bowel diseases is higher in the celiac population than it is in the general population. And even if you don't have celiac disease, you could have NCGS. Gluten is just...
  23. trents
    IMO, Part 3 has some abnormalties that could indicate the early stages of celiac disease but the doctor is tentatively thinking not, at least at this point.
  24. trents
    Yes, that's the one. IGA Quantitative. What is the reference range given for that one? If no reference range was given, is there another notation associated with it indicating it was either low or high or neither? If not, I would assume your score does not indicate IGA deficiency.
  25. trents
    When you say a GI doc did an IGA five years ago and it was negative, which IGA measure do you speak of. There are several possibilities. Do you refer to the tTG-IGA? Have you had a total IGA test done? It isn't a test for celiac per se but can establish whether or not you are IGA deficient. If you are IGA deficient, it will drive individual IGA test...
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