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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the...
  2. trents
    The only vegetable sources of B12 are some fermented bean products using a certain microbiotic culture. It is next to impossible to get adequate B12 from vegetable sources without supplementation. Same with D3. Some mushrooms can make D3 when exposed to UV light. Are you vegetarian or vegan? Do you do dairy and eggs or no animal products at all? Low...
  3. trents
    Russ, can you link an article supporting your assertion that small amounts of gliadin are detectable in human breast milk? Not doubting you but it would be nice to have the whole text for reference.
  4. trents
    See attachment which is excerpted from this article:
  5. trents
    Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing...
  6. trents
    It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
  7. trents
    Well, the only thing I would conclude with would be, if you choose not to trial the gluten free diet, is to encourage you to get periodically tested, either antibody blood tests or the biopsy or both. I think it something that needs to be monitored.
  8. trents
    Well, I wouldn't rule either out. And you might consider trialing a gluten free diet for a few months to see if symptoms improve. That would tell you a lot. By the way, the incidence of other bowel diseases is higher in the celiac population than it is in the general population. And even if you don't have celiac disease, you could have NCGS. Gluten is just...
  9. trents
    IMO, Part 3 has some abnormalties that could indicate the early stages of celiac disease but the doctor is tentatively thinking not, at least at this point.
  10. trents
    Yes, that's the one. IGA Quantitative. What is the reference range given for that one? If no reference range was given, is there another notation associated with it indicating it was either low or high or neither? If not, I would assume your score does not indicate IGA deficiency.
  11. trents
    When you say a GI doc did an IGA five years ago and it was negative, which IGA measure do you speak of. There are several possibilities. Do you refer to the tTG-IGA? Have you had a total IGA test done? It isn't a test for celiac per se but can establish whether or not you are IGA deficient. If you are IGA deficient, it will drive individual IGA test...
  12. trents
    Yeah, you may not have been consuming enough gluten to result in valid testing.
  13. trents
    Welcome to the forum, @Kiwifruit! Were you on a reduced gluten diet when those blood tests or the biopsies were done?
  14. trents
    ABP2025, there are no definitive diagnostic tests for NCGS. It is arrived at by first ruling out celiac disease despite continuing symptoms from gluten ingestion.
  15. trents
    Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
  16. trents

    Gluten migranes at night

    trents commented on Debado's blog entry in Debado

    I'll ask the same question that knitty kitty asked? On what basis did your Dr arrive at the conclusion that you have gluten intolerance? But let's be clear about terminology because the terms "gluten intolerance" and "gluten sensitivity" are typically used interchangeably out there in the wild and both are used indiscriminately to speak of two different...
  17. trents

    Gluten migranes at night

    trents commented on Debado's blog entry in Debado

    What medicine did they give you for migraines? Does it help much? I also suffer from migraines and am on one med for prevention and another for relief after onset. Many times, my headaches start during the night when I'm sleeping but not always. Have you cut back on gluten consumption of late? As knitty kitty explained, you must have been eating generous...
  18. trents
    Early on, DQ2 and DQ8 were the primary genes that have been connected to the potential to develop celiac genes but more recent genetic research suggests there may be more.
  19. trents

    Gluten migranes at night

    trents commented on Debado's blog entry in Debado

    Go to the main web site home page: celiac.com. You can type "celiac.com" into the internet browser address window and hit enter. That will take you to the web site home page. Then click on the "Forums" tab (I have circled it for you in the attached pic). Scroll down the page and choose a topic appropriate for your issue and click on it. You can create a new...
  20. trents
    Eating out at restaurants is the single most risky environment for cross contamination. Shared oven racks should be thoroughly cleaned after being used for cooking/baking of gluten containing foods. Better yet, purchase a second set of racks that are used only for one or the other.
  21. trents
    I would say the tTG-IGA would be sufficient.
  22. trents

    Gluten migranes at night

    trents commented on Debado's blog entry in Debado

    Is there a particular reason you created a blog for this topic rather than posting your question in one of the regular forum topic sections where it will get more eyes?
  23. trents
    By specificity, it's not so much that elevated dgp-igg can be caused by other diseases but that it can be a false positive or a transitory immune system reaction to gluten. I believe it can also point to NCGS or a transition from NCGS to celiac disease in some cases. Some experts feel that NCGS can be a precursor to celiac disease. If biopsies are negative...
  24. trents
    From your first post, tests 1-4 are individual antibody tests used to detect celiac disease. #5 is what we call "total IGA" which is used to check for IGA deficiency. If a person is IGA deficient, it can skew their individual IGA test scores down toward the negative range and generate false negatives. You are not IGA deficient. Test #4 from your first post...
  25. trents
    Let me "ditto" Cristiana's welcome to the forum, @DayaInTheSun! Many in this online family can identify with your struggle. With all of your food sensitivity/intolerance issues you probably should research MCAS (Mast Cell Activation Syndrome) and consider a low histamine diet.
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