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trents

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Everything posted by trents

  1. trents
    How old are you? Have you actually had your testosterone level checked? There are many factors that can contribute to loss of libido that have nothing to do with Celiac disease. Some of them are not even physiological, such as depression. After having been gluten free for some months in the first year after my celiac disease diagnosis I had my testosterone...
  2. trents
    If indeed you do have pernicious anemia the oral dosing of B12 you are taking is not high enough to be effective. Studies have shown that shots are not the only way to address perniciou anemia for some people. Apparently there is a passive mechanism of absorbtion that with high enough oral dosing does not require the normal intrinsic factor for assimilating...
  3. trents
    "Some groups aren't waiting. The American Academy of Pediatrics says breast-fed infants should get 400 IUs of supplemental D daily. The National Osteoporosis Foundation urges adults over age 50 to get at least 800 to 1,000 IUs to prevent fractures. Look for D3, which is more potent than D2." And since most with celiac disease are not absorbing vitamins...
  4. trents
    Very interesting! I've not heard that before - that lots of computing time is a major cause of kyphosis. I sat up straighter at the keyboard as soon as I read that! Actually, when I look at pictures of myself in Jr. High I can see the beginnings of kyphosis. It runs in my mother's side of the family big time. I wonder if my osteopenia from celiac disease...
  5. trents
    Concerning bad posture causing scoliosis or kyphosis, I wonder if its more often the other way around. One thing I have seen that might cause spinal misalignment is weight traiing done in such a way as to strengthen the chest muscles without doing anything to strengthen the upper back muscles. The higher muscle tone in the front then pulls the shoulders and...
  6. trents
    I have mild scoliosis and pronounced kyphosis as well. I think I have read somwhere on the net there is a connection. I assume it has to do with bone density loss in the vertebrae from calcium and mineral malabsorbtion.
  7. trents
    Give it time, Child of the 80's. I'm a child of the 50's and 60's.
  8. trents
    Is the issue really a high forehead or is it a short rest of the face that makes the forehead look long proportionally? Or, maybe its a high hairline that's to blame. My hair line keeps moving closer to the back of my head as I age. I've decided it's not really hair loss but hair shift. What use to be on my head has now gravitated down to my ears, nose, and...
  9. trents

    ARCHIVED Anemia

    trents replied to Wolicki's topic in Related Issues & Disorders

    I don't think intrinsic factor will be on your usual, run of the mill CBC or CMP lab work sheet. It requires special testing and I don't think they can measure for it directly. I'm sure someone else on the forum has had it done and can explain the testing process. Do you take a folic acid supplement? If so, discontinue it some time before you get pernicious...
  10. trents

    ARCHIVED Anemia

    trents replied to Wolicki's topic in Related Issues & Disorders

    Wolicki, Have you been tested for pernicious anemia, i.e. lacking the "intrinsic factor" necessary to absorb B12, a necessary biochemical compound for the assimilating of iron frome the gut?
  11. trents
    Barbara, Why do you say you do not have Celiac disease? Have you had the edoscopy/biopsy done to verify that assertion? You say you get sick to your stomach when you ingest "major gluten". That certainly is a classic symptom of celiac disease.
  12. trents
    Funny, my serum protein levels are chronically a little low. I've been trying to figure that one out. I had prealbumin checked once a couple of years ago and it was perfectly normal so that says my dient is not deficient in protein and I would think, at least, that I am absorbing enough.
  13. trents
    Wendy, Thanks for your hard work with regard to this book. I am a 58-year-old male celiac but I do not suffer from prostititis that I know of. I notice there are no other replys to your post. I think the overwhelming majority of participants on this forum are female and this could be the reason.
  14. trents
    TEaglefeather, Most of us who have had celiac disease for a while realize how expensive the "gluten free" foods can be, even when you live somewhere they are available and we probably don't rely on them much. However, you really can eat gluten free off mainstream grocery store stock if you become savvy about how gluten is disguised in food label terminology...
  15. trents
    Jillian is correct, it does have to do with the stomach muscles not the intestines. Sorry, my bad. I made an assumption and should have looked it up instead. Here is a Wikipedia link that puts it in layman's terms: Open Original Shared Link. TEaglefeather, did your hubby's doc use the term gastro paresis to describe your husband's problem? Loss of intestinal...
  16. trents
    Where do you live? I hope somewhere not served by a socialized health care system (I guess I tipped my political hat on that one!) so that if your hubby needs to see a specialist it can be arranged relatively soon. If you are not satisfied that your GP is taking this seriously please ask for a referral to a gastroenterologist.
  17. trents
    You're more than welcome. Your husband's problem could be gastroparisis or a partial blockage caused by scar tissue or even a tumor. Sometimes a hard ball of stool gets lodged in the intestines and can cause something like this where new stool kind of squeezes around the ball so there is some passing of waste, usually in the form of diarreah. At any rate...
  18. trents
    It's when your intestines (or a section of them) become paralyzed, i.e. the slow rythmic muscle wall movent of the intestine that moves the waste along in the system ceases to be. It is usually caused by nerve damage (as from gut surgeries) or blood ciriculation impairment in the arteries and veins that feed the smooth muscles of the intestinal wall. With...
  19. trents
    Are you taling a folic acid supplement? Folic acid supplementation will mask a B12 deficiency and B12 deficiency results in pernicious anemia, as you probably know. Your post was difficult for me to follow because it kind of rambled but why do you say the low ferritin and rbc explain the bruises on your thigh that won't go away? That sounds like a clotting...
  20. trents
    That's a terrible experience! Doc had a bad aim, huh? Actually, even if he had not missed the liver, bleeding is one of the dangers with a liver biopsy. There's lots of blood supply to the liver.
  21. trents
    Yeah, I'd seen that first linked article by Dr. Reich several years ago. What is your age? The latest research suggests there is usually not good recovery of the flattened villi after about age 35 even when people go gluten free. Have you had a repeat biopsy since going gluten free? I had one in April afte 5+ years of concientous gluten free living and...
  22. trents
    I don't have an answer for you but I have a question: Do you have any recent records of total protein/albumin levels? After years of undiagnosed celiac disease and elevated alt/ast levels my total protein/albumin levels are chronically below normal even though I have been gluten free for about 6 years and my liver enzymes returned to normal range within ...
  23. trents
    It certainly could be related to gluten. Depression and some other mental health issues are more prevalent in the celiac population than in the general population. If you Google it I think you will find that out. What you are describing sounds like panic attacks. Why have you gone off your diet? Are your life circomstances more stressful lately than usual...
  24. trents
    Good question and I don't know the exact answer but I do know folic acid is water soluble. I would think it would be leached from the system rather quickly. That's why you don't have to be as careful with water soluble vitamin supplementation as you do fat soluble vitamin supplementation because the water soluble ones don't remain behind in the body's tissues...
  25. trents
    Sue, I am staff chaplain in a hospital setting and have encountered many patients with C-diff. It's nasty stuff and my heart goes out to you. Take heart, though, you will eventually conquer it. It is contracted most often by those who have suffered an imbalance in their gut microbial mix such as those who have been on prolonged antibiotic therapy for other...
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